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PWA Health Group

The PWA (People With AIDS) Health Group was founded in 1987, and is primarily dedicated to providing access to promising or experimental treatments for HIV/AIDS, and providing treatment education and support to people living with the virus and to those institutions that serve PWAs The PWA Health Group was founded by Thomas Hannan and Michael Callen, both PWAs, and their physician, Joseph Sonnabend MD, and is organized in New York State as People With AIDS Working for Health, Inc., a 501(c)3, not-for-profit corporation.

Info Sheets

Drug descriptions, fact sheets on the latest antiviral treatments, special issue information sheets on such things as side effects (Diabetes Alert), Hepatitis C, wasting, dosing, treatment strategies, and results from clinical trials.

Notes from the Underground

The PWA Health Group Newsletter, published six times a year, reporting on issues pertaining to underground AIDS treatment and access.

Women's TX News

Published four times a year, reporting on treatment issues pertaining specifically to women living with HIV/AIDS; a special insert in each issue from the Pediatric Working Group focuses on treatments for infants and children.

Order forms/contributions

Other buyers clubs around the country

Executive Director Lillie Mikesell
Deputy Director James Learned
Office Manager Mark Niedzolkowski
Accountant Carolie Jenner
Editor Mark Niedzolkowski
Women's Treatment Project Coordinator J.D.

Board of Directors
Jeff Birnbaum, MD | Io Cyrus | Andrea Dubose |
John Falkenberg, RN | Catherine Hanssens, Esq |
Joe Sonnabend, MD (Emeritus) | Lillian Thiemann | Gus Vianna

Michael Callen | Thomas Hannan | Joe Sonnabend, MD

How to Reach PWA Health Group

People with AIDS Working for Health, Inc.
P.O. Box 136, Village Station, New York, NY 10014
tel (212) 255-0520
fax (212) 255-2080

Latest by PWA Health Group

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Pediatric Study Group

I am very grateful to have been given the opportunity to write about the Pediatric Working Group (PWG) which meets at the PWA Health Group. Even though there are some women who feel that there should not be pediatric issues in a women's treatment new...

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Triple-Drug Combination Pediatric Trial

In December 1997, the U.S. government issued guidelines for the treatment of HIV infection in children. These were revised and published in April 1998 (Guidelines for the Use of Antiretroviral Agents in Pediatric HIV Infection, MMWR, vol. 47, no. RR-...

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Personal Stories

Excuse Me Miss ...

Excuse me, Miss... your test result came back positive.

I will never forget the day I heard those words. I still get a numbing feeling just remembering. So much in my life is different, that it seems almost like a lifetime ago. When I heard those wo...

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Depression: Chasing the Blues Away

Have you been feeling sad, blue, lost or despairing? Do the things that usually make you happy and satisfied (like work, family, friends and hobbies) instead leave you cold? Have these feelings lasted more than two weeks? If you answered yes to these...

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Pediatric Dosing Schedule

Nucleoside Reverse Transcriptase Inhibitors (nRTIs)Drug NameHow SuppliedRecommended DoseSpecial ConsiderationsEpivirlamivudine3TC (approved for pediatrics)Solution: 10 mg per ml.Tablets: 150 mg.Infants less than 30 days: 2 mg per kg twice daily.Pedia...

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A Mother Allowed to Refuse Treatment to Her HIV+ Son

AP -- In Portland, Oregon a mother who is worried that powerful AIDS drugs might kill her HIV+, 4 year old son can continue to refuse treatment, the state Supreme Court decided on November 12th.

The court warned that if the boy's condition worsens o...

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Substance Use

Methadone Interactions With Anti-HIV Drugs, Medications for Opportunistic Infections, and Psychiatric Drugs

Because many medications for HIV and for the prevention of opportunistic infections are broken down by the same liver enzymes that metabolize (break down) methadone, these drugs may cause changes in the way you respond to your methadone dose.

Some d...

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Antiretroviral Chemotherapy -- A Rose by Any Other Name ...

Antiretroviral chemotherapy. It's a term we rarely see in print, either in our community newsletters or in the mass media. Nor do we use the term very often in conversation. When we talk with health care providers, researchers and each other, we say ...

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SAMe As It Ever Was?

Neurological symptoms related to HIV infection -- myelopathy (degeneration of the coatings of nerve fibers in the spinal cord), peripheral neuropathy (nerve pain in the hands and feet) and dementia -- are among the most troubling and difficult to han...

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Banding Together to Challenge Schering-Plough's Monopoly on Hepatitis C Treatment

The PWA Health Group has been importing ribavirin since the late 1980's, when its potential anti-viral activity against HIV was first being looked into. Ribavirin's promise as an anti-HIV agent didn't pan out; however, over the last few years, studie...