Name: Louie Evangelista
I am writing to seek people in my position , I will be 70 sept 13 and I know I am one of the longest livid patients to date my original doctor was doctor Jeffery Green at NYU he was also a good friend who had to let me go for my own good if you are truly interested in a fascinating story of how I was ps when there was truly no test available and then the western blot became available and finally figured me out I stumped Dr Edward Amorosi renound hemotoagest at NYU and by his own admission later they did not no then. My purpose is to find people in my position to relate to because I feel I can be helpful and most of all I have lived with with this desease that we used to call the monster but no more . I am like a volcano ready to erupt if after all these years I do not come to terms. Thank you for your time.
Hello and thank you for writing. I am so happy to hear of your long life with HIV, even through the dark days of the epidemic when there were very few options. You are not alone. There are many of us who, against all expectations, survived, thrived and are now facing (for better or for worse) problems of aging. By 2020, 70% of people living with HIV will be over the age of 50.
Living with HIV is said to accelerate the aging process and you need to be monitored for high cholesterol, hypertension, and kidney and liver function. All those medications for all those years really took a tool.
Other people would certainly benefit from you experience and you would also gain in such interactions. Social connection is vitally important.
There are an increasing number of resources for aging and HIV. Here are several:
The Reunion Project
HIV 50+ Strong and Healthy
For more information check out TheBody's Resource Center for Aging and HIV..
All the best,