"People in the United States seem to have grown complacent and forgotten that HIV/AIDS is not just a problem overseas, but one here in our own nation. With as many as 1.1 million people in our country living with HIV/AIDS, our government, through passing a new Ryan White CARE Act, must ensure that lifesaving drugs, medical care, and social services are provided to those in need, wherever they live."
"Continued flat funding for CARE Act programs will do little to help eliminate current waiting lists, and nothing to extend care and treatment to people who aren't even on those lists. Instead, it will only serve to pit city against city and state against state for the limited dollars available. A person's ability to receive treatment should not depend upon where in the country they live."
"The Ryan White CARE Act works -- that is why it must be reauthorized. In the devastation following Hurricane Katrina, one of the only bright notes was that the Ryan White/ADAP system in states across the country went into high gear to assure that poor patients could access their life-saving medications. The CARE Act and the systems it has created serve as a model for all medical care in the U.S."
"Ryan taught us that AIDS can strike anyone, anywhere. As we work together to renew the Ryan White CARE Act, I urge the Congress and the Administration to provide adequate funding so that everyone who is in need of these lifesaving medications and medical care, can have the chance to live productive, healthy and longer lives."
"With as many as 1.1 million people in the U.S. living today with HIV/AIDS, and nearly 3 out of 4 of them uninsured or relying on public assistance, the CARE Act for them is a matter of life or death. This media campaign will remind Americans that HIV/AIDS exists in everyone's neighborhood and that despite the success of the Ryan White program, not all Americans have access to lifesaving care and treatment."
"The Ryan White CARE Act has a proven track record of success in providing lifesaving drugs as well as a full range of medical care and support services. The CARE Act is keeping people alive much longer than ever before. It has had strong bipartisan support from Congressional leaders over the years. We expect the same this year -- swift passage of reauthorization legislation this fall."
Resources at The Body:
Ryan White ACTION Campaign Spokesperson Biographies
- Jeanne White-Ginder
- Dr. David Satcher
- Dr. A. Gene Copello
- Dr. Howard Grossman
- Christine Lubinski
- Julie Scofield
Jeanne White-Ginder, mother of the late Ryan White, is a nationally-recognized advocate on AIDS. In 1984, her son Ryan White -- a hemophiliac -- was diagnosed with AIDS. His crusade to remain in school captured the nation's attention and forever changed our view of AIDS and those living with it. Jeanne and Ryan eventually went to court to fight for Ryan's right to attend school. While they won their initial battle, threats from the townspeople, including a bullet shot through the Whites' window, forced them to move. In his new hometown, Ryan went to school, became an honor roll student, earned a driver's license, and continued to speak out even while his health was rapidly deteriorating. On Sunday, April 8, 1990, five and a half years after he was diagnosed with AIDS, Ryan White died. Jeanne and family friend Elton John were by his side. In the ensuing weeks, Jeanne received over 60,000 pieces of mail. She soon realized she needed to continue Ryan's legacy of education and compassion. She published Ryan's book, written by him for other children, and appeared at many AIDS fundraisers and benefits. In May of 1990, she came to Capitol Hill to lobby for the Ryan White Comprehensive AIDS Resource Act (CARE), a bill that called for federal funding of AIDS education, research, and emergency medical care. She served as the Founder and President of The Ryan White Foundation, a non-profit organization that educated teens and adolescents on the personal, family, and community issues related to HIV/AIDS and is a board member of The AIDS Institute. Her most recent book, Weeding Out the Tears: A Mother's Story of Love, Loss, and Renewal, was published in 1997.
Dr. David Satcher was the 16th Surgeon General of the United States. He was sworn in on February 13, 1998, and served a 4-year term. Dr. Satcher served simultaneously in the positions of Surgeon General and Assistant Secretary for Health from February 1998 through January 2001. He also held the posts of Director of the Centers for Disease Control and Prevention and Administrator of the Agency for Toxic Substances and Disease Registry from 1993 to 1998. Upon his departure from the post of Surgeon General, Dr. Satcher became a fellow at The Kaiser Family Foundation. In the fall of 2002, he assumed the post of director of the National Center for Primary Care at the Morehouse School of Medicine. Before joining the Administration, he was President of Meharry Medical College in Nashville, Tennessee, from 1982 to 1993. Dr. Satcher served as professor and Chairman of the Department of Community Medicine and Family Practice at Morehouse School of Medicine from 1979 to 1982. He is a former faculty member of the UCLA School of Medicine and Public Health and the King-Drew Medical Center in Los Angeles, where he developed and chaired the King-Drew Department of Family Medicine. From 1977 to 1979, he served as the Interim Dean of the Charles R. Drew Postgraduate Medical School, during which time, he negotiated the agreement with UCLA School of Medicine and the Board of Regents that led to a medical education program at King-Drew. He also directed the King-Drew Sickle Cell Research Center for six years.
Dr. Satcher is a former Robert Wood Johnson Clinical Scholar and Macy Faculty Fellow. He is the recipient of many honorary degrees and numerous distinguished honors, including top awards from the American Medical Association, the American College of Physicians, the American Academy of Family Physicians, and Ebony magazine. In 1995, he received the Breslow Award in Public Health and in 1997 the New York Academy of Medicine Lifetime Achievement Award. Earlier this year, he received the Bennie Mays Trailblazer Award and the Jimmy and Roslyn Carter Award for Humanitarian Contributions to the Health of Humankind from the National Foundation for Infectious Diseases. Dr. Satcher graduated from Morehouse College in Atlanta in 1963 and was elected to Phi Beta Kappa. He received his M.D. and Ph.D. from Case Western Reserve University in 1970 with election to Alpha Omega Alpha Honor Society. He did residency/fellowship training at Strong Memorial Hospital, University of Rochester, UCLA, and King-Drew. He is a fellow of the American Academy of Family Physicians, the American College of Preventive Medicine, and the American College of Physicians.
Dr. A. Gene Copello, Executive Director, The AIDS Institute, has more than 20 years of HIV/AIDS program and public policy experience. Founded in 1992, The AIDS Institute is a national public policy research and advocacy organization with offices in Washington, D.C. and Florida. The agency is affiliated with the University of South Florida College of Medicine, where Dr. Copello also serves as an assistant professor and director of the Center for Public Policy Research and Medical Ethics. Previously, Dr. Copello served as chief of HIV services for the city of San Francisco and also spent six years as executive director of the San Mateo County AIDS Program in California. He began his career in HIV/AIDS as a faculty member at the Vanderbilt University School of Medicine, where he also directed the Vanderbilt AIDS Project. He has served on a wide array of boards of directors and committees, local and national in scope. These have included AIDS Action Council, Communities Advocating Emergency AIDS Relief (CAEAR) Coalition, National ADAP Working Group, Government Affairs Committee of AIDS Alliance, California Conference of Local AIDS Directors, Southern AIDS Coalition, and Nashville CARES, among others. He currently serves as co-chair of the Federal AIDS Policy Partnership and as a member of the Board of Directors of the National AIDS Housing Coalition and a member of the Public Policy Committee of the American Academy of HIV Medicine. Dr. Copello has received several professional and community awards over the past two decades. He is published in the HIV/AIDS field and is a frequent invited speaker on HIV/AIDS topics. Dr. Copello received his doctoral degree in public policy and medical ethics from Vanderbilt University. He also holds a Master of Divinity degree from Vanderbilt University in social ethics and a Master of Science degree in social work from the University of Tennessee.
Dr. Howard Grossman, Executive Director of the American Academy of HIV Medicine, represents a professional association of 2100 front-line HIV providers, based in Washington, DC. Dr. Grossman is a board-certified internist, who had a private practice in Manhattan from 1988 to 2005. His work with people affected by HIV led him to become one of the plaintiffs in the landmark suit Vacco v. Quill, et al., which sought to overturn laws preventing terminally-ill patients from obtaining their physicians' help to end their own lives. The case was decided in 1997, with the Supreme Court finding no constitutional guarantee of the "right to die," but leaving the door open for states to experiment with various options. Dr. Grossman earned a B.A. in political science at Haverford College and studied medicine at SUNY Downstate College of Medicine in Brooklyn. Dr. Grossman worked at St. Clare's Hospital, at the first dedicated AIDS unit in the country and entered private practice in 1987. Dr. Grossman is Associate Attending Physician at St. Luke's-Roosevelt Hospital Center in Manhattan and is an Assistant Clinical Professor of Medicine at Columbia University, College of Physicians and Surgeons. Dr. Grossman has written articles for many publications and for The Body.com. He has served as medical editor for columns in HX, POZ, GMHC's Treatment Issues, amfAR's treatment newsletter among others. Dr. Grossman has worked with government panels at the National Institutes of Health and the Food and Drug Administration and is the medical advisor for the patient-oriented website www.aidsmeds.com. He has been involved with multiple community-based organizations, he is the Board chair for the New York State Chapter of the American Academy of HIV Medicine and serves as chairman of the Public Policy Committee and Chairman of the Ethics Committee.
Christine Lubinski, Executive Director, HIV Medicine Association (HIVMA) of the Infectious Diseases Society of America (IDSA), a professional organization that represents more than 2,800 HIV physicians. Christine Lubinski has more than 20 years of federal policy analysis and advocacy experience in Washington, D.C. Her primary focus has been health policy. Prior to joining IDSA in 1998, Christine Lubinski served as the deputy executive director for programs at AIDS Action Council, a national AIDS advocacy group, for more than 5 years. She was the lead policy spokesperson for AIDS Action and led federal advocacy, community outreach, and media advocacy programs. Ms. Lubinski's policy work is grounded in years of community activism. Before joining AIDS Action, she served from 1983-1993 as director for public policy at the National Council on Alcoholism and Drug Dependence focusing mainly on health care access and discrimination facing people living with a stigmatizing illness. She has also served as a service provider, directing programs for abused women and their children and homeless women.
Julie Scofield, Executive Director of the National Alliance of State and Territorial AIDS Directors (NASTAD), joined the organization in February 1993. Under Ms. Scofield's leadership, NASTAD has grown from a staff of one, to a highly respected national HIV/AIDS organization of 25 FTEs and major programs in the areas of HIV prevention, care and treatment, viral hepatitis, government relations, and global HIV/AIDS technical assistance. Prior to opening NASTAD's national office, Ms. Scofield served as legislative assistant in the Washington, D.C. office of former New York State Governor Mario M. Cuomo. Ms. Scofield represented Governor Cuomo on HIV/AIDS and science and technology policy and funding issues before Congress and the Administration from 1987 to 1993. Ms. Scofield served on the legislative staff of former U.S. Representative Stan Lundine (D-NY) from 1981 to 1987.