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Luci

1996

Luci, at 13, has lived 12 years longer than her doctors predicted. All because of the love and care of her two mothers, Alison and Peggy. While she has become more symptomatic and ill in this recent year, she enjoys a very full life, which includes ballet, bowling, reading, mood swings, and she helps with the laundry. She loves greatly and she is greatly loved.

Luci is one of five girls in her family. Three of her four sisters have AIDS. All of them were adopted into this wonderful and loving home when their own families weren't able to care for them any longer for whatever reasons.

Luci loves to dance. And each time she gets back on her feet, she dances.

The following story looks back on Luci's early weekly AIDS treatments.


1991 A Retrospective

 

At the age of seven, Luci knows a great deal about medicine and the important role it plays in keeping her healthy. Her daily routine living with AIDS is punctuated by the ups and downs of fevers and side effects.

 

Luci's immune system is so fragile that she can't fight ordinary childhood diseases. She suffers inside and out with weak organs and itchy itchy itchy skin lesions and arthritis. She can't eat solid foods.

 

Every week, she has a gamma globulin transfusion. The treatment can take as long as five hours. The process is painful and exhausts her.

 

She talks about being 'with the angels' when the pain is unbearable - she knows that someday this may happen.

 

As a child will, she gets past the pain each time and smiles as if to get on with the business of living.

A poem with Luci in mind

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