Neuropathy & HIV/AIDS
The Basics
 HIV and Neuropathy: How to Avoid Becoming a Nervous Wreck (Regularly Updated)
A blog by Dave R.
From The Body
- Neuropathy and HIV: Personal Experiences, Research, News and Notes (Regularly Updated)
An informational blog for people suffering from both neuropathy and HIV. An opportunity to exchange experiences, tips and opinions.
From Neuropathy & HIV
 Pain, Drugs and the Risks of Self-Medication (February 14, 2012)
"I share this experience to convey that I understand the disabling effects of severe pain and our complicated relationship with the medications that control it. We may need these drugs at times, but they can quickly and all too easily create other significant problems."
From The Body
- The Supplement Syndrome: "I'm Not Sure It's Helping but It May Get Worse If I Stop!" A Blog Entry by Dave R. (February 1, 2012)
"Ask questions, do your research and target it at the symptoms that are giving you the most trouble. Then make your choices accordingly and with a bit of luck you will find some relief. The key thing is not to press the neuropathy panic button and clear the shelves of your local health store."
From The Body
- The Self-Worth Analysis, or How Neuropathy Can Steal Your Social Self: A Blog Entry by Dave R. (January 20, 2012)
"People have lived through this before, with the doubt and fear that they would be excluded from society by HIV; but the advent of neuropathy can attack an already fragile ego like rust on metal."
From The Body
- The Lemming Compulsion, or How People With Neuropathy and HIV Will Grab at Straws: A Blog Entry by Dave R. (January 10, 2012)
"They're called 'self-care strategies' or 'unhealthy behaviours,' which patients use to manage or alleviate the symptoms brought on by HIV-related neuropathy. Recent studies have brought the problem to light but despite Google's search potential, you can count the number of scientific articles explaining why this happens and what is being done about it on one hand."
From The Body
- Why Do People With HIV Suffer From Neuropathy? A Blog Entry by Dave R. (December 22, 2011)
"It really does seem profoundly unfair: you've contracted HIV and have begun treatment ... Eventually, for most people the situation tends to settle down and you learn to live with HIV as an irritating but constant companion. ... Then, seemingly out of nowhere, you begin to feel strange, new and unpleasant symptoms."
From The Body
- What Is Neuropathy? A Growing Problem: A Blog Entry by Dave R. (December 17, 2011)
"This article is not meant to depress people but it is meant to be realistic. If you know what you're dealing with, then it's much easier to find a place for it in your life. Moreover, worst-case scenarios are just that: you will probably be able to find something to help your own neuropathy experience become more bearable."
From The Body
- Peripheral Neuropathy (December 15, 2011)
To read PDF, click here.
From AIDS InfoNet
- Peripheral Neuropathy and HIV/AIDS (August 2011)
From The Well Project
 HIV/AIDS, Neuropathy, Painkillers (My Personal Hell): A Blog Entry by Maria T. Mejia (January 21, 2011)
"WHY did this doc put me on a medication that seems like heroin but in pills??? That it’s highly addictive?? I get so angry with the hell I have been through."
From The Well Project
- Understanding and Managing Peripheral Neuropathy (Winter/Spring 2010)
To read PDF, click here.
In Bulletin of Experimental Treatments for AIDS, from San Francisco AIDS Foundation
- Manage Peripheral Neuropathy (Fall 2009)
To read PDF, click here.
In Being Alive Newsletter, from Being Alive
- Peripheral Neuropathy (March 26, 2009)
In HIV and AIDS Treatment in Practice, from aidsmap.com
- Peripheral Neuropathy (March 2008)
To read PDF, click here.
From Project Inform
- Peripheral Neuropathy (August 15, 2006)
From AIDS Treatment Data Network
- Neuropathy in the Era of HAART: Slides (April 12, 2006)
Slide presentation by Cheryl Jay, M.D., of the University of California-San Francisco and San Francisco General Hospital.
From HIV InSite
- Peripheral Neuropathy (2006)
Part of "A Practical Guide to HIV Drug Side Effects"
To read PDF, click here.
From Canadian AIDS Treatment Information Exchange
- My Kind of Life: Peripheral Neuropathy (November/December 2004)
[Archived Article]
Carlos A. Perez on what it's like to live with PN, and what treatments are available.
To read PDF, click here.
In Positively Aware, from Test Positive Aware Network
- Update on Peripheral Neuropathy in HIV-Infection (April 2004)
[Archived Article]
Summary of a plenary presentation at CROI 2004 on distal symmetrical polyneuropathy.
In HIV Treatment Bulletin, from HIV i-Base
- Peripheral Neuropathy (Winter 2002)
[Archived Article]
In Bulletin of Experimental Treatments for AIDS, from San Francisco AIDS Foundation
- Neuropathy (Spring 1999)
[Archived Article]
In Women Alive Newsletter, from Women Alive
- An Interview With John Senneff (1999)
[Archived Article]
The Body talks with the author of Numb Toes and Aching Soles: Coping With Peripheral Neuropathy.
From The Body
Resources
|
Advertisement
|
Email
Glossary
