Neuropathy & HIV/AIDS
The Basics
HIV and Neuropathy: How to Avoid Becoming a Nervous Wreck (Regularly Updated)
A blog by Dave R.
From TheBody.com
- Neuropathy and HIV: Personal Experiences, Research, News and Notes (Regularly Updated)
An informational blog for people suffering from both neuropathy and HIV. An opportunity to exchange experiences, tips and opinions.
From Neuropathy & HIV
- Peripheral Neuropathy (December 19, 2012)
To read PDF, click here.
From AIDS InfoNet
Monday Reflection: Living in the Right Now -- A Blog Entry by Rae Lewis-Thornton (October 29, 2012)
"Sometimes I feel like I'm between a rock and a hard place. ... On one level, I don't want to make people think you can't live with this disease. ... My honesty could have a negative effect on what they need to do to survive. Nor do I want people to think living with HIV is a one-pill wonder."
From TheBody.com
Tips for PHAs With Peripheral Neuropathy (July 31, 2012)
To read PDF, click here.
In The Positive Side, from Canadian AIDS Treatment Information Exchange
Can I Get A Witness! Authentic Voices Tell the Story of Neuropathy: A Blog Entry by Dave R. (April 11, 2012)
"Authors, scientists, doctors, journalists and bloggers can write about neuropathy until they're blue in the face but there's no substitute for hearing people tell their own stories."
From TheBody.com
- Ask the Doctor: How Can You Prevent HIV-Related Peripheral Neuropathy? (February 22, 2012)
From Black AIDS Institute
I Hate to Be a Kicker, or How to Get Neuropathy Into the Glossies? A Blog Entry by Dave R. (February 17, 2012)
"Maybe we can remove the ignorance about this growing disease and stimulate action in treating it. [Neuropathy] may not carry a death sentence but for many, it is a life sentence and we owe it to ourselves to make sure we’re not ignored!"
From National Minority AIDS Council
Pain, Drugs and the Risks of Self-Medication (February 14, 2012)
"I share this experience to convey that I understand the disabling effects of severe pain and our complicated relationship with the medications that control it. We may need these drugs at times, but they can quickly and all too easily create other significant problems."
From TheBody.com
The Supplement Syndrome: "I'm Not Sure It's Helping but It May Get Worse If I Stop!" A Blog Entry by Dave R. (February 1, 2012)
"Ask questions, do your research and target it at the symptoms that are giving you the most trouble. Then make your choices accordingly and with a bit of luck you will find some relief. The key thing is not to press the neuropathy panic button and clear the shelves of your local health store."
From TheBody.com
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