Personal Accounts of Facial Wasting (Lipoatrophy)
Mark King has lived with HIV for more than 25 years. After he began developing "the look" of a long-term survivor -- facial lipoatrophy, he decided to go for treatment. Read and watch his story.
Prevention of Fat Loss and Lipoatrophy of the Face: A Video Blog Entry by Maria T. Mejia (October 3, 2011)
"Many people feel very depressed because they lose fat in their face and become stigmatized by it! Although medication is better today as it was 20 years ago, I use Sculptra to prevent fat loss in my face."
From The Well Project
I'm Gonna Wipe That AIDS Right Off of My Face: A Video Blog by Mark S. King (July 26, 2011)
"In this video episode of My Fabulous Disease, I revisit Dr. Pierone for a new treatment with the facial filler products Sculptra and Radiesse. While I'm there, I learn enough about Artefill ... to make me strongly consider the product the next time my face needs fluffing."
From The Body
- Mask, or, Losing Face: A Blog Entry by fogcityjohn (July 19, 2010)
"While [lipoatrophy] treatment has masked my illness, it can't restore to me the thing I've lost -- my image of myself. Simply put, I no longer look like me to me."
From The Body
- A Facial Wasting Update: A Video Blog Entry by Mark S. King (February 2, 2010)
From Mark King
- Body Shape Changes Dramatically Impact the Self-Esteem of HIV-Positive People (April 15, 2009)
Nelson Vergel, a longtime HIV activist and 26-year survivor of HIV, created an anonymous Internet survey that asks people with HIV to detail the impact of body shape changes on their quality of life and self esteem.
From The Body
- The Pain and Glory of Getting New Cheeks: Mark King's Video Blog (March 25, 2009)
Tag along with Mark as he visits an HIV physician who specializes in facial wasting treatment, gets tips on what to look for in a facial treatment doctor, and receives his first Radiesse and Sculptra injections.
From The Body
- How I Learned to Stop Worrying and Live With Lipoatrophy (June 21, 2006)
For Jeff Berry, watching the "death" of his face has involved a long grieving process -- one that he's still working through.
From The Body's Lipoatrophy Resource Center
- Living and Learning With Lipoatrophy: Interviews With HIVers (June 21, 2006)
From The Body's Lipoatrophy Resource Center
- Doing Everything Right (Summer 2005)
[Archived Article]
This anonymous HIVer took all the right steps to improve his mental and physical health -- but he still couldn't avoid lipodystrophy and facial wasting.
To read PDF, click here.
In ACRIA Update, from AIDS Community Research Initiative of America
- My Body and My Mind (Summer 2005)
For James Laub, HIV treatment has meant an almost nonstop string of painful body changes -- and a host of potential solutions.
To read PDF, click here.
In ACRIA Update, from AIDS Community Research Initiative of America
- Facing Up to It: Bio-Alcamid as a Facial Filler to Treat Lipoatrophy (November/December 2004)
[Archived Article]
Matt Sharp recounts his trip to Tijuana to receive this experimental therapy.
To read PDF, click here.
In Positively Aware, from Test Positive Aware Network
- Disturbing Metabolic Disturbances: It's Disturbing (July 9, 2002)
Jon Willis' moving personal account of dealing with HIV medication side effects.
In The XIV International AIDS Conference, from The Body PRO
- What You Lookin' At? (May 2001)
[Archived Article]
In GMHC Treatment Issues, from Gay Men's Health Crisis
- Who Moved My Cheeks? (November/December 2000)
[Archived Article]
To read PDF, click here.
In Positively Aware, from Test Positive Aware Network
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