Neuropathy: Basics

HIV and Neuropathy: How to Avoid Becoming a Nervous Wreck (Regularly Updated)
A blog by Dave R.
From TheBody.com
Neuropathy and HIV: Personal Experiences, Research, News and Notes (Regularly Updated)
An informational blog for people suffering from both neuropathy and HIV. An opportunity to exchange experiences, tips and opinions.
From Neuropathy & HIV
Peripheral Neuropathy (December 19, 2012)
To read PDF, click here.
From AIDS InfoNet
Monday Reflection: Living in the Right Now -- A Blog Entry by Rae Lewis-Thornton (October 29, 2012)
"Sometimes I feel like I'm between a rock and a hard place. ... On one level, I don't want to make people think you can't live with this disease. ... My honesty could have a negative effect on what they need to do to survive. Nor do I want people to think living with HIV is a one-pill wonder."
From TheBody.com
Tips for PHAs With Peripheral Neuropathy (July 31, 2012)
To read PDF, click here.
In The Positive Side, from Canadian AIDS Treatment Information Exchange
Can I Get A Witness! Authentic Voices Tell the Story of Neuropathy: A Blog Entry by Dave R. (April 11, 2012)
"Authors, scientists, doctors, journalists and bloggers can write about neuropathy until they're blue in the face but there's no substitute for hearing people tell their own stories."
From TheBody.com
Ask the Doctor: How Can You Prevent HIV-Related Peripheral Neuropathy? (February 22, 2012)
From Black AIDS Institute
I Hate to Be a Kicker, or How to Get Neuropathy Into the Glossies? A Blog Entry by Dave R. (February 17, 2012)
"Maybe we can remove the ignorance about this growing disease and stimulate action in treating it. [Neuropathy] may not carry a death sentence but for many, it is a life sentence and we owe it to ourselves to make sure we’re not ignored!"
From National Minority AIDS Council
Pain, Drugs and the Risks of Self-Medication (February 14, 2012)
"I share this experience to convey that I understand the disabling effects of severe pain and our complicated relationship with the medications that control it. We may need these drugs at times, but they can quickly and all too easily create other significant problems."
From TheBody.com
The Supplement Syndrome: "I'm Not Sure It's Helping but It May Get Worse If I Stop!" A Blog Entry by Dave R. (February 1, 2012)
"Ask questions, do your research and target it at the symptoms that are giving you the most trouble. Then make your choices accordingly and with a bit of luck you will find some relief. The key thing is not to press the neuropathy panic button and clear the shelves of your local health store."
From TheBody.com
The Self-Worth Analysis, or How Neuropathy Can Steal Your Social Self: A Blog Entry by Dave R. (January 20, 2012)
"People have lived through this before, with the doubt and fear that they would be excluded from society by HIV; but the advent of neuropathy can attack an already fragile ego like rust on metal."
From TheBody.com
The Lemming Compulsion, or How People With Neuropathy and HIV Will Grab at Straws: A Blog Entry by Dave R. (January 10, 2012)
"They're called 'self-care strategies' or 'unhealthy behaviours,' which patients use to manage or alleviate the symptoms brought on by HIV-related neuropathy. Recent studies have brought the problem to light but despite Google's search potential, you can count the number of scientific articles explaining why this happens and what is being done about it on one hand."
From TheBody.com
Why Do People With HIV Suffer From Neuropathy? A Blog Entry by Dave R. (December 22, 2011)
"It really does seem profoundly unfair: you've contracted HIV and have begun treatment ... Eventually, for most people the situation tends to settle down and you learn to live with HIV as an irritating but constant companion. ... Then, seemingly out of nowhere, you begin to feel strange, new and unpleasant symptoms."
From TheBody.com
What Is Neuropathy? A Growing Problem: A Blog Entry by Dave R. (December 17, 2011)
"This article is not meant to depress people but it is meant to be realistic. If you know what you're dealing with, then it's much easier to find a place for it in your life. Moreover, worst-case scenarios are just that: you will probably be able to find something to help your own neuropathy experience become more bearable."
From TheBody.com
Peripheral Neuropathy and HIV/AIDS (August 2011)
From The Well Project
HIV/AIDS, Neuropathy, Painkillers (My Personal Hell): A Blog Entry by Maria T. Mejia (January 21, 2011)
"WHY did this doc put me on a medication that seems like heroin but in pills??? That it’s highly addictive?? I get so angry with the hell I have been through."
From The Well Project
Understanding and Managing Peripheral Neuropathy (Winter/Spring 2010)
To read PDF, click here.
In Bulletin of Experimental Treatments for AIDS, from San Francisco AIDS Foundation
Manage Peripheral Neuropathy (Fall 2009)
To read PDF, click here.
In Being Alive Newsletter, from Being Alive
Peripheral Neuropathy (March 26, 2009)
In HIV and AIDS Treatment in Practice, from aidsmap.com
Peripheral Neuropathy (March 2008)
To read PDF, click here.
From Project Inform
Peripheral Neuropathy (August 15, 2006)
From AIDS Treatment Data Network

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