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Why Is Peripheral Neuropathy Worse At Night

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The Well Project

Peripheral Neuropathy and HIV/AIDS

Table of Contents What Is Peripheral Neuropathy? What Causes PN? Who Is at Risk of Developing PN? How Do You Know if You Have PN? PN Treatments AIMS for PN What Is Peripheral Neuropathy? Many people living with HIV (HIV+) develop problems that involve the nervoussystem. The nervous system controls thinking, movement, sensations, andfeelings. There are two parts of the nervous system: the brain and spinal cord(central...
Ask the Experts

Peripheral Neuropathy, it is getting worse!

I am a long term survivor (positive in 86 and AIDS diagnosis in 1991.) I had problems with peripheral neuropathy back when I was taking ddI, d4T, ddc and hydroxy urea. It went away about a year after going off of the hydroxy urea and the D drugs....
Keith Henry, M.D.

Response from Keith Henry, M.D.

University of Minnesota, School of Medicine
Peripheral neuropathy remains a frustrating problems for many patients.I assume you have seen a neurologist and /or pain clinic to try to optimize pain control and look for any complicating factors? In some cases I have tried (if possible) to switch... Read more »

Peripheral Neuropathy AGAIN after starting meds

Hi there,I have been HIV positive since October 2007. I am healthy and I have been doing well. In November 2011, I decided to start meds because my CD4 count went down to 480 and my viral load was 6,000. So on November 8th, I started complera. After...
Keith Henry, M.D.

Response from Keith Henry, M.D.

University of Minnesota, School of Medicine
True HIV drug related peripheral neuropathy would rarely start in the finger tips so I would suspect some other factor or cause. If develops further a consultation with a HIV experienced neurologist might be helpful. KH... Read more »

Are there any meds that do NOT cause Peripheral Neuropathy?

Hi there,I have been HIV positive since October 2007. I am healthy and I have been doing well. In November 2011, I decided to start meds because my CD4 count went down to 480 and my viral load was 6,000. So on November 8th, I started complera. After...
Benjamin Young, M.D., Ph.D.

Response from Benjamin Young, M.D., Ph.D.

Rocky Mountain CARES
Hello from one first-born Asian American to another.Sorry for the delayed reply.In thinking about your case, I'd have to conclude that the neuropathic pain that you're experiencing isn't necessarily directly related to your HIV... Read more »

Not Gulliene-Barre-Diagnosed as Peripheral Neuropathy! Donation to follow tomorrow!

ER last night with what I thought was Guillene-Barre Syndrom. Turns out its Peripheral Neuropathy. Not sure if this is any better in the case of HIV. I was told PN occurs later in hiv not during ars. Is this true? I am pretty much having these...
Robert J. Frascino, M.D.

Response from Robert J. Frascino, M.D.

The Robert James Frascino AIDS Foundation
Hi,Peripheral neuropathy is usually seen in later-stage disease and often associated with certain antiretroviral drugs, such as Zerit (d4T) and Videx (ddI). I do not believe your symptoms are HIV related. If my reassurance is not sufficient for you... Read more »
Connect With Others

Peripheral Neuropathy

Posted by Anonymous, 1 Reply
dear jackie blue,
my doctor says that i have Peripheral Neuropathy,but my elizer test is still neg at 8-9months.
should i need to keep testing until one year....
as im very stressed out.i recently took dna pcr to try to end all of this... Read more »

Desperate.dry mouth,dry eyes,peripheral neuropathy

Posted by paranoiafreak, 1 Reply
have been worried of contracting HIV.
I have had unprotected receptive anal sex last August 12, 2011 and i also had protected anal sex on October 12,2011.
On the last week of October, i started to feel chills everyday at night and i have stuffy nose... Read more »

Seroconversion and Peripheral Neuropathy

Posted by Anonymous, 2 Replies
This is a question for anyone who is living with HIV or who has recently been diagnosed as HIV positive:

Did any of you experience the numbness/tingling in the feet, legs, hands and arms during your seroconversion?

If so . . . for what period of... Read more »

Peripheral Neuropathy - L-Carnetine

Posted by Anonymous, 3 Replies
Greetings! Just thought I would post the following info, it is based strictly on my personal experience and is not a recommendation.

I am a long-term survivor(21 years) and in general good health. Last year I successfully complete a course of Chemo... Read more »