Ways To Treat Pml

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Get the Facts

Progressive Multifocal Leukoencephalopathy (PML) Fact Sheet

What Are the Symptoms? How Do You Diagnose PML? How Do You Treat PML? Potent Anti-HIV Therapy Cytosine Arabinoside (Ara-C) Experimental Treatments Commentary The Bottom Line PML is a rare AIDS-related condition of the brain, caused by the JC virus. World wide, more than 4 in 5 adults are exposed to this virus, but it only causes disease in people with weakened immune systems. Before AIDS, PML was rarely seen except in people with...

Ask the Experts

PML of the brain (PML, 2009)

My best friend just started having seizures about 5 months ago, the first time, he was taken by ambulance to the ER and because he had smoked marijuana (with a written doctors recomendation in the state of California) the ER doc dismissed anything...

Response from Robert J. Frascino, M.D.

The Robert James Frascino AIDS Foundation

Hello Patrick in Redding,I'm stunned that an ER physician would so readily dismiss an AIDS patient that had a seizure!!!! A very thorough evaluation was warranted. Assuming it was caused by smoking medical marijuana demonstrates very poor... Read more »

PML?

hi there,Last year I came down with "HIV encephalitis? which among other problems caused me to have dysgraphia.My treating doctor who is very experienced in this area says that making a final diagnosis on my OI is extremely difficult and that...

Response from Judith Currier, M.D.

University of CA, LA School of Medicine

There is a test that can be done on spinal fluid obtained from a spinal tap called a "JC PCR", which detects the JC virus that causes PML. It would be worthwhile to see if PML can be diagnosed this way before going ahead (bad pun) with a... Read more »

PML?

Response from Judith Currier, M.D.

University of CA, LA School of Medicine

Further Studies on PML

Dear Dr. Feinberg,I first wrote to you in November, 1999 when my brother was diagnosed with AIDS/PML. No one thought he would pull through but he is doing very well today. It has taken him two years to get where he is today and still has a long way...

Response from Judith Feinberg, M.D.

University of Cincinnati, College of Medicine

There has been research on specific treatment for PML, but nothing has been positive so far. I am best acquainted with 2 negative studies done by the AIDS Clinical Trials Group which is funded by the National Institutes of Health. So at the... Read more »

Go to Ask the Experts »

Connect With Others

PML - HEARD OF IT ?

Posted by Anonymous, 1 Reply

My partner is dying from PML & I am looking to get in touch with others who may be in or have been in this horrible situation. Or if anyone knows of any PML support groups.

Thanks

Read more »

Other PML sufferers

Posted by Anonymous, 1 Reply

I WOULD LIKE TO CORRISPOND WITH OTHERS WHO SUFFER FROM PML....IWAS DIAGNOSEDIN4/99 AND AM SLOWLY GETTING STRONGER.I WOULD LIKE TO SHARE EXPERIENCES..............

Read more »

PML (progressive multifocal leukoencephalopathy)

Posted by Ron31

Greetings! My name is Ron and I am living with HIV and PML. Myself and a fellow progressive multifocal leukoencephalopathy survivor wanted to test the viability and usefulness of an online support group for others affected by PML personally or with... Read more »

PML (progressive multifocal leukoencephalopathy)

Posted by Ron31

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