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Treating Pml

Here's a taste of what TheBody.com has to offer on this topic:
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Progressive Multifocal Leukoencephalopathy (PML) Fact Sheet

What Are the Symptoms? How Do You Diagnose PML? How Do You Treat PML? Potent Anti-HIV Therapy Cytosine Arabinoside (Ara-C) Experimental Treatments Commentary The Bottom Line PML is a rare AIDS-related condition of the brain, caused by the JC virus. World wide, more than 4 in 5 adults are exposed to this virus, but it only causes disease in people with weakened immune systems. Before AIDS, PML was rarely seen except in people with...
Ask the Experts

PML of the brain (PML, 2009)

My best friend just started having seizures about 5 months ago, the first time, he was taken by ambulance to the ER and because he had smoked marijuana (with a written doctors recomendation in the state of California) the ER doc dismissed anything...
Robert J. Frascino, M.D.

Response from Robert J. Frascino, M.D.

The Robert James Frascino AIDS Foundation
in people with CD4+ cell counts above 200. The unpredictable nature of this issue presents a perplexing challenge to doctors treating PML. Potent Anti-HIV Therapy Several groups have reported symptom-free survival after a PML diagnosis of over ten... Read more »

Cidofovir as Treatment for PML

I have heard that Cidofovir is being used as a treatment for PML. Is this true? Are there any other new meds. for treating PML, other than agressive "HAART" therapy....
Judith Feinberg, M.D.

Response from Judith Feinberg, M.D.

University of Cincinnati, College of Medicine
Cidofovir is experimental for treating PML. A recent non-randomized study did not find significant benefit, but good responses have been reported in some cases. At this... Read more »

PML With seizures

i am diagnosed of HIV a year back. 6months later i developed pml. i started experiancing seizures as soon as pml started. i am having leucoencephalopaty in right cerebellum and midrib. i am on ART . I Developed left side haemipligia, because of...
Keith Henry, M.D.

Response from Keith Henry, M.D.

University of Minnesota, School of Medicine
Treating PML is difficult-the best outcomes are seen when the HIV is being effectively managed with good CD4 recovery but if key areas of... Read more »

PML Question on Recovery

Hi Dr. Young,I know that you have treated some PML patients so I wanted to ask if you have ever seen recovery AFTER a year. I got PML a year ago but only started HAART 6 months ago -- went from 24 dd4 to 171 and have been undet. for 5-1/2 months....
Benjamin Young, M.D., Ph.D.

Response from Benjamin Young, M.D., Ph.D.

Rocky Mountain CARES
Thanks for your post.It's difficult to predict the rate and extent of improvment after PML-- some improve quickly, others (more commonly) take many months to see the maximum recovery. Given that I'd expect your CD4 count to continue to... Read more »
Connect With Others

PML - HEARD OF IT ?

Posted by Anonymous, 1 Reply
My partner is dying from PML & I am looking to get in touch with others who may be in or have been in this horrible situation. Or if anyone knows of any PML support groups.

Thanks

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Other PML sufferers

Posted by Anonymous, 1 Reply
I WOULD LIKE TO CORRISPOND WITH OTHERS WHO SUFFER FROM PML....IWAS DIAGNOSEDIN4/99 AND AM SLOWLY GETTING STRONGER.I WOULD LIKE TO SHARE EXPERIENCES..............


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PML

Posted by Anonymous, 3 Replies
Anyone out there dealt with, any positive feedback or helpful information. THe Doctors basically thought my husband was going to die within about two months when he was diagnosed in May (he's been pos for 12 years) They put him back on meds (he had... Read more »

Courtney's Story of PML YouTube

Posted by corkeesdad
PML..What is it...Google it....Courtney's Story of PML

When PML claimed my daughter Courtney's life, I began my personal quest to raise Worldwide Awareness! I thought to myself, how can one person could possibly accomplish such a huge task? That's... Read more »