Sensory Ataxia Neuropathy Mitochondrial Disease

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Peripheral Neuropathy and HIV/AIDS

Table of Contents What Is Peripheral Neuropathy? What Causes PN? Who Is at Risk of Developing PN? How Do You Know if You Have PN? PN Treatments AIMS for PN What Is Peripheral Neuropathy? Many people living with HIV (HIV+) develop problems that involve the nervoussystem. The nervous system controls thinking, movement, sensations, andfeelings. There are two parts of the nervous system: the brain and spinal cord(central...

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causes of sensory neuropathy

although i have full-blown aids (cd4-134)my question is about my best friend who has been HIV+ for nearly 17 years, and his cd4 count is 851. he has been on a Combivir/Sustiva cocktail for 2 years. he is now experiencing pain and tingling from...

Response from Keith Henry, M.D.

University of Minnesota, School of Medicine

3TC (a component of Combivir) can cause peripheral neuropathy (drug related almost always involves the foot first-usually in a fairly symmetric manner). HIV can mimic that. Some vitamin deficiencies (i.e.vitamin B12) can cause neuropathy as can... Read more »

diagnosed with hiv and mitochondrial disease

I have been hiv for 14yrs. I am undetectable and my cd4 is 846. I do have lipodystrophy.I also have an undiagnosed muscle disease. My muscles have hypertrophyed and cause a great deal of pain. I recently (Oct.) finished a week of testing at NIH with...

Response from Keith Henry, M.D.

University of Minnesota, School of Medicine

Interesting situation (often dont want to hear that from clinician!!)-depending on past treatment history can consider stopping Truvada and perhaps add raltegravir. Maraviroc might be an option (if can test for CCR5 virus in cells or any stored... Read more »

ulnar neuropathy

hi, i suffer from ulnar neuropathy, i have on and off sensory loss in my 4th and 5th finger and on the side of my hand. Could this be due to a recent (4/5 weeks) infection?...

Response from Keith Henry, M.D.

University of Minnesota, School of Medicine

This site is for the exclusive discussion of side effects of HIV therapy in persons with known HIV infection. What is your HIV status and which HIV meds are you taking?... Read more »

mitochondrial damage

Epivir (lamivudine) has caused severe mitochondrial damage after six years of use. I knew this was happening,but my doctor refused to listen. Now, he wants to eliminate all NRTIs from my regimin. Is that possible? to get by with no NRTI. I want to...

Response from Robert J. Frascino, M.D.

The Robert James Frascino AIDS Foundation

Hello,If you feel you have a doctor who won't listen to or work with you, I agree it's time for a change.Without knowing more about your particular case, it's impossible for me to advise you on what the best options are for your next... Read more »

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NEUROPATHY

Posted by Anonymous, 5 Replies

JUST HAD A QUESTION. IS THIS SOMETHING U GET IN EARLY HIV INFECTION? I'VE FELT THIS PINS AND NEEDLES SENSATION ON BOTH ARMS AND BURNING FEET AND NOW IM SCARED I HAVE HIV. MY EXPOSURE WAS A FEW MONTHS AGO (VAGINAL) IM STRESSING OUT SO MUCH AND I... Read more »

Neuropathy above the knees

Posted by Anonymous, 1 Reply

Is anyone out there experiencing neuropathy above the knees? I am experiencing cutting sensations above the knees and also in the arms. My doctors have told me that they have never come across this before. I'd like to hear from anyone who has had... Read more »

neuropathy

Posted by Anonymous, 1 Reply

Peripheral neuropathy is a tingling sensation, pins and needles, that is very, very often quite painful. According
to Dr. Judith Feinberg, it affects the longest nerves first, therefore it always starts in the toes, may progress
upwards to involve the... Read more »

Peripheral Neuropathy

Posted by Anonymous, 1 Reply

dear jackie blue,
my doctor says that i have Peripheral Neuropathy,but my elizer test is still neg at 8-9months.
should i need to keep testing until one year....
as im very stressed out.i recently took dna pcr to try to end all of this... Read more »

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