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Progressive Multifocal Leukoencephalopathy Prevention

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AIDS InfoNet

Progressive Multifocal Leucoencephalopathy (PML)

... What Is PML? How Can PML Be Detected? How Is PML Treated? Where Can I Get More Information? The Bottom Line What Is PML? Progressive multifocal leucoencephalopathy is a serious viral infection of the brain. "Encephalo" means brain. "Pathy" means disease. Encephalopathy is a disease of the brain. "Leuco-" (or "leuko") means pale or white. Leucoencephalopathy is a disease of the white matter
Ask the Experts

Progressive Multifocal Leukoencephalopathy (PML)

I have a problem.I am very interested in being involved in a study of the treatment with Interleukin - 2 (IL2) to boost my T-cell count.The first time that I have contracted this virus (PML). Was in Sept. 1994.I was admitted to the Hospital, and...
Judith Feinberg, M.D.

Response from Judith Feinberg, M.D.

University of Cincinnati, College of Medicine
...There is no clearcut answer to your question-- you may experience a flare of the PML if your CD4 cells increase significantly (the "immune reconstitution syndrome"), or your T cells may increase without this happening. Read more »

Progressive Multifocal Leucoencephalopathy

I was diagnoised with PML Dec. 1999. Is there any research currently being conducted?
Judith Feinberg, M.D.

Response from Judith Feinberg, M.D.

University of Cincinnati, College of Medicine
...diagnosed in 1999 and are sending questions in march 2001 is in itself a hopeful sign, because survival after a diagnosis of PML in the pre-HAART era was usually on the order of months. Most HIV+ people who develop PML now are living longer and... Read more »

Progressive Multifocal Leucoencephalopathy

I was diagnoised with PML Dec. 1999. Is there any research currently being conducted?
Judith Feinberg, M.D.

Response from Judith Feinberg, M.D.

University of Cincinnati, College of Medicine
...diagnosed in 1999 and are sending questions in march 2001 is in itself a hopeful sign, because survival after a diagnosis of PML in the pre-HAART era was usually on the order of months. Most HIV+ people who develop PML now are living longer and... Read more »

Progressive Multifocal Leukoencephalopathy

Dr.Currier,I was recently told by a client of their dx of PML. In the early days I remember clients who died within 6 months. Although their is no effective treatment, at least nothing that wouldn't cause other deadly side effects, are we talking...
Judith Feinberg, M.D.

Response from Judith Feinberg, M.D.

University of Cincinnati, College of Medicine
Some patients have had remarkable responses to HAART alone, and that should be the first approach. Cidofovir (approved for CMV) is being used on an experimental basis as well. Read more »
Articles
Project Inform

Progressive Multifocal Leukoencephalopathy (PML) Fact Sheet

... What Are the Symptoms? How Do You Diagnose PML? How Do You Treat PML? Potent Anti-HIV Therapy Cytosine Arabinoside (Ara-C) Experimental Treatments Commentary The Read more »
Johns Hopkins AIDS Service

Update on Progressive Multifocal Leukoencephalopathy

... Progressive multifocal leukoencephalopathy (PML) is an opportunistic viral infection of the central nervous system that occurs in 2-7% of individuals with AIDS. PML is Read more »
InfoRed SIDA

Leucoencefalopatía Multifocal Progresiva (PML)

...http://books.google.com ): It is More Than a Wheelchair, More than HIV: Overcoming PML por Ron Kudrako. Parece que el libro Progressive Multifocal Leucoencephalopathy (PML): Case Studies and Potential Treatments por Peter y Lisa Brosnan, ya... Read more »
The Well Project

AIDS Defining Conditions

...or unidentified species, disseminated or extrapulmonary Pneumocystis carinii pneumonia Pneumonia, recurrent Progressive multifocal leukoencephalopathy Salmonella septicemia, recurrent Toxoplasmosis of brain Wasting syndrome due to HIV... Read more »
Connect With Others

PML (progressive multifocal leukoencephalopathy)

Posted by Ron31, 1 Reply
...Greetings! My name is Ron and I am living with HIV and PML. Myself and a fellow progressive multifocal leukoencephalopathy survivor wanted to test the viability and usefulness of an online support group for others affected by PML personally or... Read more »

PML (progressive multifocal leukoencephalopathy)

Posted by Ron31
...Greetings! My name is Ron and I am living with HIV and PML. Myself and a fellow progressive multifocal leukoencephalopathy survivor wanted to test the viability and usefulness of an online support group for others affected by PML personally or... Read more »

PML (progressive multifocal leukoencephalopathy)

Posted by Ron31
...Greetings! My name is Ron and I am living with HIV and PML. Myself and a fellow progressive multifocal leukoencephalopathy survivor wanted to test the viability and usefulness of an online support group for others affected by PML personally or... Read more »

PML (progressive multifocal leukoencephalopathy)

Posted by Ron31
...Greetings! My name is Ron and I am living with HIV and PML. Myself and a fellow progressive multifocal leukoencephalopathy survivor wanted to test the viability and usefulness of an online support group for others affected by PML personally or... Read more »