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Pml Facts

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Progressive Multifocal Leukoencephalopathy (PML) Fact Sheet

What Are the Symptoms? How Do You Diagnose PML? How Do You Treat PML? Potent Anti-HIV Therapy Cytosine Arabinoside (Ara-C) Experimental Treatments Commentary The Bottom Line PML is a rare AIDS-related condition of the brain, caused by the JC virus. World wide, more than 4 in 5 adults are exposed to this virus, but it only causes disease in people with weakened immune systems. Before AIDS, PML was rarely seen except in people with...
Ask the Experts

PML of the brain (PML, 2009)

My best friend just started having seizures about 5 months ago, the first time, he was taken by ambulance to the ER and because he had smoked marijuana (with a written doctors recomendation in the state of California) the ER doc dismissed anything...
Robert J. Frascino, M.D.

Response from Robert J. Frascino, M.D.

The Robert James Frascino AIDS Foundation
Hello Patrick in Redding,I'm stunned that an ER physician would so readily dismiss an AIDS patient that had a seizure!!!! A very thorough evaluation was warranted. Assuming it was caused by smoking medical marijuana demonstrates very poor... Read more »

pml and exersice

I was diagnosed with hiv in march of 2012, I started Atripla in April. count was 159. I started having trouble walking, by august I was in a wheelchair..i have pt twice a week for the last couple months but I wonder if its helping? to people recover?...
Nelson Vergel, B.S.Ch.E., M.B.A.

Response from Nelson Vergel, B.S.Ch.E., M.B.A.

Program for Wellness Restoration
I would not exercise until your PML (Progressive Multifocal Leukoencephalopathy) is resolved. Improved CD4 cells and PML treatment protocols can improve outcome in PML. HIV-associated PML can occur patients with very low CD4 counts not on HIV... Read more »

PML

I was diagnosed with final stages of aids and pml in April of 2004. I have received treatment and follow my doctors advice to the letter as well as taking meds on time. I would like to know if the survival rate has increased for patients with pml...
Mark Holodniy, M.D., F.A.C.P., C.I.C.

Response from Mark Holodniy, M.D., F.A.C.P., C.I.C.

Stanford University, School of Medicine
There is not a lot of good detailed info about PML on the web. I am sure you have googled the topic. The Body website has some fact pages and links as well. The incidence of new cases of PML has gone done signficantly in the last several years with... Read more »

pml

I have been diagnosed with suspected pml, in the very early stages and am being treated with cidifor and sustiva, zerit, epiver. I seem to be improving with time and my doctor says I might be able to drive and go back to work, but would first like...
Judith A. Aberg, M.D.

Response from Judith A. Aberg, M.D.

Washington University, St. Louis School of Medicine
The best therapy for PML is antiretroviral therapy which you are on. You do not say how long you have been on therapy but the fact that your viral load is undetectable is great news. Hopefully your CD4+ T-cell count will continue to go... Read more »
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I'm trying not to scare anyone, but facts are fact

Posted by Anonymous, 6 Replies
In fact I'm not trying to scare anyone, and I don't want to make a kid's game out of the Bulletin Board. I'm just trying to make everyone realize that 99,9% of people doesn't cover all individuals, when talking about tests... I'm sure that 999 of... Read more »

Courtney's Story of PML YouTube

Posted by corkeesdad
PML..What is it...Google it....Courtney's Story of PML

When PML claimed my daughter Courtney's life, I began my personal quest to raise Worldwide Awareness! I thought to myself, how can one person could possibly accomplish such a huge task? That's... Read more »

PML - HEARD OF IT ?

Posted by Anonymous, 1 Reply
My partner is dying from PML & I am looking to get in touch with others who may be in or have been in this horrible situation. Or if anyone knows of any PML support groups.

Thanks

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PML

Posted by Anonymous, 1 Reply
NEED OPTIONS FOR TREATMENT PML HIV NEGATIVE PJM61559@AOL.COM

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