People With Lipodystrophy

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Ask the Experts

What percentage of people develops Lipodystrophy?

A simple and plai question:What percentage of people develops Lipodystrophy?Robert...

Response from Brian Boyle, M.D., J.D.

Cornell University, Weill Medical College

A simple question deserves a simple answer, but unfortunately that's not possible in this area. The studies show a wide range of incidence of lipodystrophy, from less than 10% all the way up to close to 80%. It depends a lot upon who is doing... Read more »

What percentage of people develops Lipodystrophy? II

What percentage of people (on HAARt - d4t, 3tc and Sustiva) develops Lipodystrophy?Robert... Read more »

Response from Keith Henry, M.D. »

Lipodystrophy (LIPODYSTROPHY)

I'm trying to find CURRENT information about lipo treatment options, but everything I find,... Read more »

Response from Robert J. Frascino, M.D. »

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Articles

FDA Approves Egrifta for Treatment of Lipodystrophy in People With HIV

On November 10, 2010, the Food and Drug Administration approved Egrifta (tesamorelin) to treat HIV patients with lipodystrophy, a condition in which excess fat develops in different areas of the body, most notably around the liver, stomach, and... Read more »

U.S. Centers for Disease Control and Prevention

Can a Mediterranean Diet Reduce the Effects of Lipodystrophy Syndrome in People Living With HIV? A Pilot Randomized Controlled Trial

HIV infection and the highly active antiretroviral therapies that fight it both are associated with changes in patients lipid profile and fat distribution (lipodystrophy). A pilot study was carried out for a randomized controlled trial to determine... Read more »

Medicare Expands Coverage for Treating Facial Lipodystrophy Syndrome in People Living With HIV

The Centers for Medicare & Medicaid Services (CMS) today announced its decision to cover facial injections for Medicare beneficiaries who experience symptoms of depression due to the stigmatizing appearance of severely hollowed cheeks resulting... Read more »

Body Shape Changes (Lipodystrophy)

What Is Lipodystrophy? Is Lipo Dangerous? What Causes Lipo? Can Lipo Be Treated? The Bottom Line What Is Lipodystrophy? Lipodystrophy, or "lipo" for short, is a collection of body shape changes in people taking antiretroviral... Read more »

Connect With Others

Lipodystrophy and relationships

Posted by capri75

Anyone out there who has experienced a feeling of neglect in a relationship because they have lipodystrophy even thought they have healthy blood counts and full of energy. Anyone who knows a dating sites for people with lipodystrophy? Read more »

Mystery Diagnosis casting- Lipodystrophy Stories

Posted by mysteryd08

We are currently casting for the eighth season of Mystery Diagnosis. We profile stories of people dealing with rare medical conditions or diseases who have struggled to find a diagnosis, and have been misdiagnosed in some way. You must have a... Read more »

Lipodystrophy and/or Neuropathy?

Posted by Anonymous, 2 Replies

Is it possible to experience lipodystrophy and neuropathy within 2-3 months of HIV exposure, or are these conditions generally symptomatic of long-term HIV status? I have noticed significant swelling under my arm/ beside my right breast. I'm not... Read more »

Lipodystrophy

Posted by Anonymous, 5 Replies

I have been diagnosed with lipodystrophy, I have lost a lot of mass on my legs and arms and my stomach is very large in comparison. This seemed to happen overnight. My Dr. completely changed my drug regimen, thinking that my previous regimen was... Read more »

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