Neuropathy With Extreme Pain

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Peripheral Neuropathy and HIV/AIDS

Table of Contents What Is Peripheral Neuropathy? What Causes PN? Who Is at Risk of Developing PN? How Do You Know if You Have PN? PN Treatments AIMS for PN What Is Peripheral Neuropathy? Many people living with HIV (HIV+) develop problems that involve the nervoussystem. The nervous system controls thinking, movement, sensations, andfeelings. There are two parts of the nervous system: the brain and spinal cord(central...

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Wide Spread Pain and Neuropathy

Dear Dr.I am experiencing wide-spread pain (mostly neuropathy in my limbs and the base of my skull in the back of my head). It feels as though I was just hit in the back of the head with a baseball bat or something hard as it's numbing and...

Response from Robert J. Frascino, M.D.

The Robert James Frascino AIDS Foundation

Hello BPS,It's unfortunate that you are not communicating well or able to work cooperatively with your PCP. Is there any option to switch to someone with whom you could work more closely? You should be under the care of an HIV specialist... Read more »

Extreme Leg Pain for me too

I'm HIV positive and have been on Nevirapine, Epivir and Tenofovir for the past 3 years. For the past 3 months, I have had extreme, crippling leg pain. I have seen a neurologist who says the pain I describe is not typical for HIV related...

Response from Keith Henry, M.D.

University of Minnesota, School of Medicine

If you were having peripheral neuropathy from lamivudine (Epivir), switching to another dual NRTI combination with FTC may not result in any benefit. If your HIV drugs are involved then a switch off the NRTI class altogether might be worth a trial... Read more »

neuropathy: psych meds vs. pain management meds

I am an HIV Case Manager and am looking for some advice in a complex situation regarding neuropathy. My client who is sitting here with me has been experiencing "firery painful feeling from his feet up his legs to his extremities, up his arms,...

Response from Ewald Horwath, M.D.

University of Miami School of Medicine

There are some psychiatric medications that are used as adjunctive treatments for neuropathic pain. Those most commonly used in practice are antidepressants (amitriptyline,imipramine, desipramine, nortriptyline and doxepinand) and anticonvulsants,... Read more »

Extreme Tremors and Jerks, Abdominal Pain

I have been diagnosed with a hernitated disc and i have been on meds(Ziagen, Reyataz, Norvir, Truvada) for 3 years and hiv for 12. I have been on percocet for 3 months and on duragesic 12mcg and lidoderm patches for 10 days. Two days ago i started...

Response from Keith Henry, M.D.

University of Minnesota, School of Medicine

The timing of your tremors is suspicious that they were somehow triggered by Neurontin though in my experience that would be unusual but possible. I assume that you have had extensive neurologic and possibly neurosurgiccal evaluation about the... Read more »

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Seroconversion and Peripheral Neuropathy

Posted by Anonymous, 2 Replies

This is a question for anyone who is living with HIV or who has recently been diagnosed as HIV positive:

Did any of you experience the numbness/tingling in the feet, legs, hands and arms during your seroconversion?

If so . . . for what period of... Read more »

Seroconversion and Peripheral Neuropathy

Posted by Anonymous, 5 Replies

Neuropathy

Posted by James1941, 1 Reply

I was just reading Scot on 'Fatigue' and know that I am lucky/unlucky to be living in Australia.

Lucky because HIV means a full disability pension - permanent, not much but enough to exist on. Lucky because I too suffer from fatigue but, because of... Read more »

Lipodystrophy or Neuropathy?

Posted by Anonymous, 1 Reply

Is it possible to experience lipodystrophy and neuropathy within 2-3 months of HIV exposure, or are these conditions generally symptomatic of long-term HIV status? I have noticed significant swelling under my arm/ beside my right breast. I'm not... Read more »

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