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Natural Neuropathy Support

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The Well Project

Peripheral Neuropathy and HIV/AIDS

Table of Contents What Is Peripheral Neuropathy? What Causes PN? Who Is at Risk of Developing PN? How Do You Know if You Have PN? PN Treatments AIMS for PN What Is Peripheral Neuropathy? Many people living with HIV (HIV+) develop problems that involve the nervoussystem. The nervous system controls thinking, movement, sensations, andfeelings. There are two parts of the nervous system: the brain and spinal cord(central...
Ask the Experts

Wide Spread Pain and Neuropathy

Dear Dr.I am experiencing wide-spread pain (mostly neuropathy in my limbs and the base of my skull in the back of my head). It feels as though I was just hit in the back of the head with a baseball bat or something hard as it's numbing and...
Robert J. Frascino, M.D.

Response from Robert J. Frascino, M.D.

The Robert James Frascino AIDS Foundation
Hello BPS,It's unfortunate that you are not communicating well or able to work cooperatively with your PCP. Is there any option to switch to someone with whom you could work more closely? You should be under the care of an HIV specialist... Read more »

natural fusion inhibitors

Hello Carol,My brother is a person who follows and uses a wide variety of natural nad alternative therepies. He is HIV negitive I am HIV positive. (I have been on combo therapy for 8 yrs and have had the usually literny of complications and side...
Carol Salisbury, APRN-BC, MSN

Response from Carol Salisbury, APRN-BC, MSN

Michigan State University College of Nursing
Hi David in La, I am definitely supportive of alternative therapies such as massage, relexology, yoga, aroma and some herbals. I have little knowledge of silver suspensions for HIV treatment. I do not advocate drug holidays due to the NIH study... Read more »

neuropathy

My husband has neuropathy of the legs. Should he wear support stockings?...
Keith Henry, M.D.

Response from Keith Henry, M.D.

University of Minnesota, School of Medicine
Neuropathy in the setting of HIV treatment generally is managed most often by effective HIV treatment, switching off possibly offending drugs, and a range of analgesics and/or drugs for pain/neuropathy. Support hose are not usually effective in that... Read more »

Caffeinne: good for Fatigue, bad for Neuropathy?

Doc,First off, Thank You for supporting all of us through the rough times. About me, poz for a year, not on meds. Now, I've come to rely on caffeinne as my main ally in my constant battle with the fatigue that comes with our condition,...
Robert J. Frascino, M.D.

Response from Robert J. Frascino, M.D.

The Robert James Frascino AIDS Foundation
Hello,First off, I'm not aware of any information that indicates caffeine accelerates distal sensory polyneuropathy.Next, you've been poz for a year and I'm assuming your "numbers" are still decent enough that HAART... Read more »
Connect With Others

Natural remedies? Not on meds yet....

Posted by cassiusp, 8 Replies
Not yet on meds, still have a decent T cell count. Started taking Korean Ginseng. NAC, ST Johns Wort and Lysine (collagen, I am a little paranoid about wrinkles :) ) and a good multivit. Oh and plan to start breathing meditations with my BF (he... Read more »

HIV Support Ethnography - Talk with me about your experience seeking support!

Posted by SophiaRois, 1 Reply
My name is Sophia and I am a college student who is personally and academically interested in issues of HIV/AIDS and sexual health. I am currently in an Anthropological Research Methods course that asks us to conduct an ethnography, a project that... Read more »

HIV Support Ethnography - Talk with me about your process of seeking support!

Posted by SophiaRois, 2 Replies
My name is Sophia and I am a college student who is personally and academically interested in issues of HIV/AIDS and sexual health. I am currently in an Anthropological Research Methods course that asks us to conduct an ethnography, a project that... Read more »

Neuropathy

Posted by Anonymous
I had very painful neuropathy in my legs and my feet burned like I was walking on hot coals. I stopped taking the D4T and I read about a natural amino acid called Acetyl-L Carnitine (1,000mg per day) and to my surprise it worked right away. I... Read more »