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Living With Neuropathy

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The Well Project

Peripheral Neuropathy and HIV/AIDS

Table of Contents What Is Peripheral Neuropathy? What Causes PN? Who Is at Risk of Developing PN? How Do You Know if You Have PN? PN Treatments AIMS for PN What Is Peripheral Neuropathy? Many people living with HIV (HIV+) develop problems that involve the nervoussystem. The nervous system controls thinking, movement, sensations, andfeelings. There are two parts of the nervous system: the brain and spinal cord(central...
Ask the Experts

Neuropathy and Pain

Do you have any recommendations for medication to ease the pain associated with neuropathy in my feet. The pain can be unbearable, especially at night. My Dr. perscribed Ultracet which does help but seems to make me very groggy the next day.I...
Keith Henry, M.D.

Response from Keith Henry, M.D.

University of Minnesota, School of Medicine
Can you provide some details regarding which HIV meds you are currently taking (and recently taken) and your overall HIV status? KH... Read more »

Early Neuropathy ? From QS - JB

Dr. Bartlett, I have looked everywhere for an answer to this , I have been positive for three years now with a viral load between 10k & 20K & 400-500 cell count. I was infected by giving my wife a shot ( she passed 5 mo.'s ago from...
John A. Bartlett, M.D.

Response from John A. Bartlett, M.D.

Duke University Medical Center
Peripheral neuropathy can be a real problem for people living with HIV. Your neuropathy could be due to a number of causes; it may be due to HIV itself, it may be due to the D4T and DDI, and it could be due to alcohol. In all likelihood there may... Read more »

Neuropathy recovery

I am a huge fan of this web site and appreciate all the wonderful advice from the Doctors! I have had severe neuropathy for the past three years and it is getting worse. I do not have any other factors that has been mentioned to worsen my condition....
Keith Henry, M.D.

Response from Keith Henry, M.D.

University of Minnesota, School of Medicine
Some neuropathy seems to not get better. There are some new developments in the treatment of neuropathy. N acetyl carnitine and prosaptide 0 A nerve growth factor) are being studied by the ACTG and a high potency form of capsaicin is being studied... Read more »

ankle pain neuropathy

I have been dealing with neuropathy in my feet and hands now for 3 years. I have been on neurotin, depatoke, topamax (I know I'm spelling these wrong), now have been on cymbalta at 60mg per day and it has helped so much. Now that the weather...
Gerald Pierone, M.D.

Response from Gerald Pierone, M.D.

AIDS Research and Treatment Center of the Treasure Coast
Sorry to hear about your situation, chronic pain is one of the most difficult challenges to face. The immediate question is whether your current medications are contributing to your chronic pain. The only way I know of to answer this question is to... Read more »
Connect With Others


Posted by tol85, 1 Reply
My question is, Has anyone had symptoms of neuropahty, then have tested negative and suddenly all symptoms are gone? I've been told that Neuropathy is something usually found in the latter part of HIV or AIDS. Usually cause by certain mediactions.... Read more »


Posted by Kipling, 2 Replies
I was diagnosed with Aids April 2000. I was very sick at
the time during the 8 and a 1/2 weeks I was hospitalized.
The virus attacked my spine and I am now living with a spinal disease called myelopathy which enables me to walk. I also developed... Read more »

Seroconversion and Peripheral Neuropathy

Posted by Anonymous, 5 Replies
This is a question for anyone who is living with HIV or who has recently been diagnosed as HIV positive:

Did any of you experience the numbness/tingling in the feet, legs, hands and arms during your seroconversion?

If so . . . for what period of time... Read more »


Posted by James1941, 1 Reply
I was just reading Scot on 'Fatigue' and know that I am lucky/unlucky to be living in Australia.

Lucky because HIV means a full disability pension - permanent, not much but enough to exist on. Lucky because I too suffer from fatigue but, because of... Read more »