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Lipodystrophy Solutions

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The Well Project

Lipodystrophy, Body Changes and HIV/AIDS

Table of Contents What Is Lipodystrophy? Body Shape Changes Metabolic Complications What Causes Lipodystrophy? Can Lipodystrophy Be Treated? Caring for Yourself What Is Lipodystrophy? Lipodystrophy means abnormal fat changes. It is used to describe a number ofchanges in body fat that are experienced by many people living with HIV (HIV+).Lipodystrophy can also include changes in fat and sugar levels in the blood ofHIV+...
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Suggestion & Lipodystrophy

Dearest Gerald,Since 1997 I have been diagnosed. Started with Crixivan/Epivir/Retrovir, then exchanged Crixivan to Viracept due to ill feelings. In 2002 I developed resistance to epivir and viracept so switched to Ziagen/Viramune/Retrovir which...
Gerald Pierone, M.D.

Response from Gerald Pierone, M.D.

AIDS Research and Treatment Center of the Treasure Coast
Hello and thanks for posting. It sounds like you need to change therapy, but a switch from Viramune to Sustiva would not be a logical choice since cholesterol levels tend to run a bit higher with Sustiva. But there are data which demonstrate... Read more »

Lipodystrophy

Hello,I am a 43 woman, hiv + since 1988, on treatment since 1996. My general health status has been always very good. But lipodistrophy (legs and bottom skinniness) is worse each year. When I ask my doctor, the only solution he gives me is taking no...
Keith Henry, M.D.

Response from Keith Henry, M.D.

University of Minnesota, School of Medicine
I am not sure that stopping HIV medicatios will improve fat loss problems over 1-6 month period. I would also be concerned that a treatment interruption could adversely impact your general and HIV health status. Uridine supplements (NucleoMax) and... Read more »

High Cholestrol, Lipodystrophy, and Buffalo Hump

I was diagnosed as HIV+ in 1991. I have been a vegan for over 5 years. I had been on Norvir, Fortovase, Epivir, and Sustiva for ~3 years. Before that, I was on a Crixivan cocktail. About 5-6 years ago, I developed Lipodystrophy and "Buffalo...
Keith Henry, M.D.

Response from Keith Henry, M.D.

University of Minnesota, School of Medicine
Sounds like a challenging situation. There will probably be no easy solution. I assume you need to be on HIV therapy (history of CD4 count < 250-350 or AIDS) so stopping therapy is not a good option. I am not sure that further switching of... Read more »

Lipodystrophy help!

dear nelson, I do not know what to do anymore. This is coming from a young man who was once full of hope and now feels helpless. I have battled hiv for six years, I was started on treatment right away as my immune system had shown moderate...
Nelson Vergel, B.S.Ch.E., M.B.A.

Response from Nelson Vergel, B.S.Ch.E., M.B.A.

Program for Wellness Restoration
We do not have the whole picture yet when it comes to solutions to lipodystrohy, but I would suggest the following :1- Wait til we hear more about Sculptra's patient assistance program to get something done about facial wasting, if you have it.... Read more »
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lipodystrophy

Posted by Anonymous, 1 Reply
anyone who will talk about this?

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exercise and PI lipodystrophy

Posted by Anonymous, 3 Replies
i have been on zerit, epivir and crix for more than one year.
i have lipodystrophy (no more buttocks, fat loss in face and a paunch). I have always been an avid exerciser -- my doc has told me to STOP exercising, that it worsens the situation.
i... Read more »

Lipodystrophy and relationships

Posted by capri75
Anyone out there who has experienced a feeling of neglect in a relationship because they have lipodystrophy even thought they have healthy blood counts and full of energy. Anyone who knows a dating sites for people with lipodystrophy? Read more »

Lipodystrophy and/or Neuropathy?

Posted by Anonymous, 2 Replies
Is it possible to experience lipodystrophy and neuropathy within 2-3 months of HIV exposure, or are these conditions generally symptomatic of long-term HIV status? I have noticed significant swelling under my arm/ beside my right breast. I'm not... Read more »

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