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Lipodystrophy Diagnosis

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Mystery Diagnosis casting- Lipodystrophy Stories

Posted by mysteryd08
We are currently casting for the eighth season of Mystery Diagnosis. We profile stories of people dealing with rare medical conditions or diseases who have struggled to find a diagnosis, and have been misdiagnosed in some way. You must have a... Read more »


Posted by Anonymous, 5 Replies
I have been diagnosed with lipodystrophy, I have lost a lot of mass on my legs and arms and my stomach is very large in comparison. This seemed to happen overnight. My Dr. completely changed my drug regimen, thinking that my previous regimen was... Read more »


Posted by Anonymous, 1 Reply
anyone who will talk about this?

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exercise and PI lipodystrophy

Posted by Anonymous, 3 Replies
i have been on zerit, epivir and crix for more than one year.
i have lipodystrophy (no more buttocks, fat loss in face and a paunch). I have always been an avid exerciser -- my doc has told me to STOP exercising, that it worsens the situation.
i... Read more »

Lipodystrophy and relationships

Posted by capri75
Anyone out there who has experienced a feeling of neglect in a relationship because they have lipodystrophy even thought they have healthy blood counts and full of energy. Anyone who knows a dating sites for people with lipodystrophy? Read more »
Ask the Experts

Lipodystrophy (LIPODYSTROPHY)

I'm trying to find CURRENT information about lipo treatment options, but everything I find, including on this site, is over 2 years old. Can you point me to anything newer. I've been advanced/full-blown (technically) for 15 years, and...
Robert J. Frascino, M.D.

Response from Robert J. Frascino, M.D.

The Robert James Frascino AIDS Foundation
who are not diabetic because the evidence to date is insufficient to support its use for treating fat accumulation. ConclusionLipodystrophy diagnosis and management remains a major challenge in HIV clinical care. Growth hormone has been used... Read more »


I have a diagnosis of lipodystrophy in the area of the neck, back and abdomen. I would like to have liposuction done. Where i can find a surgeon to perform this procedure and do you recommendend this for HIV patients....
Cade Fields-Gardner M.S., R.D.

Response from Cade Fields-Gardner M.S., R.D.

The Cutting Edge
If your diagnosis of lipodystrophy includes fat pads on the back, neck, and abdomen, then you are looking at a different circumstance than is usually seen in liposuction clinics. The fat accumulation is not purely a calorie issue and people who... Read more »

Is it lipodystrophy or not

Hi, My stats are: positive for 10 years, never had an OI or AIDS diagnosis. On and off meds, currently off for 1 1/2 yrs. CD4 in the 500s and Viral Load around 380. It has never been over 1000. I am also 51, female and post menopausal. I have what...
Brian Conway, M.D.

Response from Brian Conway, M.D.

University of British Columbia
First, I am very pleased that your numbers are what they sounds as if you do not need treatment at this time...The area you describe in the front of the neck is not a common spot for lipodystrophy, especially without any other changes... Read more »

Is it lipodystrophy or not

Hi,My stats are: positive for 10 years, never had an OI or Aids diagnosis. On and off meds, currently off for 1 1/2 yrs. CD4 in the 500s and Viral Load around 380. It has never been over 1000. I am also 51, female and post menopausal. I have what...
Graeme Moyle, M.D.

Response from Graeme Moyle, M.D.

Chelsea and Westminster Hospital
Not really. Localised fat masses have been reported in persons taking therapy but supraclavicular ones are uncommon. The supraclavicular area is not an uncommon area for lipomas to develop so this is most likely the answer. I think if you are... Read more »
Canadian AIDS Treatment Information Exchange

Body Distortion -- Lipodystrophy

Lipodystrophy (lipid = fat; dystrophy = disorder) Lipodystrophy syndrome is the term used to describe a range of symptoms that include changes in body shape and metabolic changes (for the latter, see "Cardiac Concerns" and "Insulin Resistance and... Read more »


What Is Lipodystrophy? Lipodystrophy, also called fat redistribution, is a disturbance in the way your body produces, uses and stores fat. There are two different kinds of lipodystrophy. In fat wasting , also known as lipoatrophy , fat is lost... Read more »
San Francisco AIDS Foundation

Drug Watch: TH9507 -- An Experimental Treatment for Lipodystrophy

Introduction Lipodystrophy Treating Lipodystrophy with Growth Hormone Products TH9507: A New Treatment Option? Conclusion Selected Sources Introduction As the use of highly active antiretroviral therapy (HAART) became widespread, HIV... Read more »
HIV i-Base

High Prevalence of d4T-Associated Lipodystrophy Including Lipoatrophy in Children

Data describing lipodystrophy in children from sub-Saharan Africa are extremely limited. However use of d4T is widespread among children receiving ART in the region: in 2008 to 2009 approximately 90% of children on ART were taking d4T. Two posters... Read more »