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Kaposi's Sarcoma Support Groups

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Kaposi's Sarcoma (KS)

These treatments only deal with the skin lesions, not with KS overall. Skin lesions may come back after treatment. If KS has spread into internal organs, systemic (whole-body) drug treatment is used. If ART is not enough, the drugs doxorubicin (Doxil) daunorubicin (DaunoXome) or paclitaxel (Taxol) may be added. Doxil and DaunoXome are anti-cancer drugs in "liposomal" form. "Liposomal" means that tiny amounts of drug are encased in small fat...
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Kaposi's Sarcoma @ 10 weeks??

Thank you for answering my question regarding hepatitis testing... Is it possible to show signs of Kaposi's Sarcoma 10 weeks after a potential exposure? I have purple/red painful spots on my hard palate that my doctors cant figure out.. My...
Barbara McGovern, M.D.

Response from Barbara McGovern, M.D.

Tufts University School of Medicine
I think in light of your night sweats and fatigue and new rash that you should definitely be seen by your primary medical doctor who will probably order some appropriate blood tests. Then it would probably be helpful to see a dermatologist for a... Read more »

kidney failure + kaposi sarcoma

I have an aunt in her mid 60's and she has been positive for some time now. She was diagnosed with kaposi's sarcoma a month ago and had been treated with Cosmegen. After 3 weeks of treatment, her kidney results came in and treatment was...
Joseph McGowan, M.D., F.A.C.P.

Response from Joseph McGowan, M.D., F.A.C.P.

North Shore University Hospital
I am sorry to hear about your aunt.Acute renal failure has been reported with use of Cosmegen. If she has no underlying kidney disease (from diabetes, hypertension or from HIV), it may be too soon to know how much recovery she may have of her... Read more »

Non Hodgkins Lymphoma and Kaposi's sarcoma- a double whammy

My father 76, Greek, living in Athens was diagnosed with NHL in May 2002. He had 7 CHOP (a type of chemotherapy) and 1 chemo for Hodgkins (the second one because they errownesly thought it was Hodgkins) . The last CHOP was 2-3 months ago. 25 days...
Bruce Dezube, M.D.

Response from Bruce Dezube, M.D.

Harvard Medical School
I'm sorry to hear about your Dad. It's hard enough having lymphoma or Kaposi's sarcoma, but to have both is even more difficult. It turns out that this combination of cancers is not all that uncommon. The lymphoma is more worrisome... Read more »

Kaposis Sarcoma-Urgent query about spots

Normally, how long will it take from infected by HIV to have KS appeared in your skin? I had an oral sex with an HIV + people almost 5 month ago (she is in very high risk group). I had condomn on. This is the first that I have sex. I have not...
Bruce Dezube, M.D.

Response from Bruce Dezube, M.D.

Harvard Medical School
From your questions, I can't tell if you even know if you're HIV positive or not. I would recommend that you get tested. It typically takes YEARS after the initial HIV infection to develop enough defects in your immune system to allow KS... Read more »
Connect With Others

Any women out there with Kaposi's Sarcoma?

Posted by Anonymous, 1 Reply
I really need to talk with someone about KS. Heard that it is rare in women. Are there any ladies out there with Kaposi's sarcoma who could answer some questions/offer some support? I'll respond as soon as I see a reply to this post. Thanks!

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Kaposi's sarcoma

Posted by Anonymous, 2 Replies
Anyone out there who has KS or has knowledge about it?
I need to communicate with you if you are that person. Please respond-I would be so very grateful. Thanks.

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kaposi's sarcoma

Posted by Anonymous, 2 Replies
does anyone here have KS? Read more »

Kaposi's Sarcoma - after four weeks?

Posted by Sprite1, 1 Reply
How quickly does Kaposi's Sarcoma manifest? In addition to what I believe are new moles, I also have a couple of flat red spots on my shoulder now. Read more »