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How To Manage Cmv Retinitis When You Have Hiv

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AIDS InfoNet

Cytomegalovirus (CMV)

...blindness unless treated. CMV can spread throughout the body and infect several organs at once. The risk of CMV is highest when CD4 cell counts are below 50. It is rare in people with 100 or more T-cells. The first signs of CMV retinitis are vision problems such as moving black spots. These are called "floaters." They may indicate an inflammation of the retina. Patients may also notice light flashes, decreased or distorted vision, or blind...
Ask the Experts

Questions from your answer

Hi Dr. Franscino!In a previous answer given through the "ask the experts" - HIV and CMV (CMV)Oct 17, 2008 -, I read "...CMV disease most often affects people with HIV when their CD4+ cell counts are below 50. You may also be at risk if you have a...
Robert J. Frascino, M.D.

Response from Robert J. Frascino, M.D.

The Robert James Frascino AIDS Foundation
...The risk of CMV is highest when CD4 cell counts are below 50. It is rare in people with 100 or more T-cells.The first signs of CMV retinitis are vision problems such as moving black spots. These are called "floaters." They may indicate an... Read more »

CMV; to swallow or not to swallow,that is the question.

Dr. Frascino, I am a RN who happens to dance with HIV. Most of my patients dance with it too. My point, many of my friends come to me with questions,and the need for education, I do my best. My education is limited, for I have not attended medical...
Robert J. Frascino, M.D.

Response from Robert J. Frascino, M.D.

The Robert James Frascino AIDS Foundation
...risk of CMV is highest when CD4 cell counts are below 50. It is rare in people with 100 or more T-cells. The first signs of CMV retinitis are vision problems such as moving black spots. These are called "floaters." They may indicate an... Read more »

Disability and CMV retinitis

I am a 48-year old female working 30 hours a week as a special education teacher confultant. From 1995-1998 (pre-protease days), I was on total disability (through employer's LTD and SSDI) due to AIDS (T4 of 13) + bilateral CMV retinitis. I...
Lynn L. Franzoi

Response from Lynn L. Franzoi

Worldwide Benefits for Fox, Inc.
Work your doctors (internist, retina specailist, etc.) to complile the necessary medical back-up to apply for SSDI. It is not uncommon dfor Social Secuirty to deny the initial application. However, many times it is granted upon appeal. So if you... Read more »

retinitis during acute infection???

Dear Dr. Bob,About 6 weeks ago I had sex with a girl and have had symptoms like an acute hiv infection since the next day. I tested negative for ELISA and undetectable for hiv RNA-PCR after 17 days. I dont know if im hiv+ or not (will find out in a...
Robert J. Frascino, M.D.

Response from Robert J. Frascino, M.D.

The Robert James Frascino AIDS Foundation
...Hello,Is it possible to get CMV retinitis during acute HIV infection? No. It is not. CMV retinitis related to HIV is an opportunistic infection that occurs only when the Read more »
Articles
U.S. Centers for Disease Control and Prevention

Oral Valganciclovir as Effective as IV Ganciclovir in Treating CMV Retinitis in AIDS Patients

...progression of cytomegalovirus (CMV) retinitis in AIDS patients. Valcyte is the first orally administered therapy approved for CMV retinitis and is converted to ganciclovir in the body. CMV is a member of the herpesvirus family that in the... Read more »
San Francisco General Hospital

Improved Treatment of CMV Retinitis

...the most feared opportunistic pathogens. The daily intravenous infusions that were once required to slow the progression of CMV retinitis exacted a heavy toll, both in dollars and in quality of life, and patients were justly apprehensive about... Read more »
Henry J. Kaiser Family Foundation

MSF Calls on Roche to Reduce Cost of Oral Antibiotic to Prevent Blindness Among People With HIV/AIDS in Developing Countries

...of people with advanced AIDS in developing countries -- such as Cambodia, Myanmar and China -- MSF said. The group said that CMV retinitis easily is diagnosed and that valganciclovir -- sold under the brand name Valcyte -- is an effective... Read more »
San Francisco AIDS Foundation

Valganciclovir: A New Treatment for Cytomegalovirus Retinitis

...Food and Drug Administration (FDA) approved valganciclovir (Valcyte) as a new treatment for cytomegalovirus (CMV) retinitis. CMV retinitis is an inflammation of the retina, characterized by loss of visual acuity (sharpness) or "blind spots." A... Read more »
Connect With Others

cmv retinitis

Posted by Anonymous, 1 Reply
...Does anyone know if you could have CMV retinitus for years without showing any other signs of HIV or AIDS? I have read that it comes in the later stages, and I have had the symptoms for years but otherwise feel o.k Read more »

support groups for people with CMV and blindness?

Posted by Anonymous, 1 Reply
...Hey everybody, I'm living in Miami Beach in Florida, and have CMV Retinitis. I was wondering if anybody out there knows of, or might want to start, a support group or organizations for people with CMV Read more »

HIV / AIDS DOCS

Posted by Survivor, 1 Reply
...What kinds of AIDS complications do you see? Suprunenko: Tuberculosis is number one, toxoplasmosis, esophageal candidiasis, CMV retinitis and pneumocystis. With regard to antiretroviral therapy, we see peripheral neuropathy and lactic acidosis... Read more »

Life expectancy of 53m pos

Posted by Anonymous, 9 Replies
Does any body know how long a 53/m in fairly good health who just test pos. might live? Thanks for some answers Read more »