How Quickly Does KS Progress

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Progressive Multifocal Leucoencephalopathy (PML)

What Is PML? Progressive multifocal leucoencephalopathy is a serious viral infection of the brain. "Encephalo" means brain. "Pathy" means disease. Encephalopathy is a disease of the brain. "Leuco-" (or "leuko") means pale or white. Leucoencephalopathy is a disease of the white matter of the brain. "Progressive" means that this disease gets worse in a short time. "Multifocal" means that it shows up in several places at the same time. Researchers...

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Neuropathy Progression

Dear Dr.:What is the typical progression of neuropathy? Can the symptoms appear,then resolve, then reappear?Thank you...

Response from Judith Feinberg, M.D.

University of Cincinnati, College of Medicine

Usually, when peripheral neuropathy appears in association with one of the HIV medications, the symtpoms may resolve if the drug is stopped quickly enough. If that doesn't happen, or if the neuropathy is due to HIV itself, then the symptoms... Read more »

Progressive Multifocal Leucoencephalopathy

I was diagnoised with PML Dec. 1999. Is there any research currently being conducted?...

Response from Judith Feinberg, M.D.

University of Cincinnati, College of Medicine

There is not a lot of treatment research going on right now that I am aware of, but you can check the HIVATIS website which is a government resource that lists ongoing trials. The fact that you were diagnosed in 1999 and are sending questions in... Read more »

Progressive Multifocal Leucoencephalopathy

I was diagnoised with PML Dec. 1999. Is there any research currently being conducted? ...

Response from Judith Feinberg, M.D.

University of Cincinnati, College of Medicine

disease progression

Dr. Young,I'm trying to get a grip on my increasing lipo and am losing the battle badly.I see where you refer to disease progression frequently as a causative agent.Do you mean total time infected regardless of immune reconstition or does...

Response from Benjamin Young, M.D., Ph.D.

Rocky Mountain CARES

Thanks for your question.It isn't disease progression, per se that seems to be the risk factor, but length and severity of disease. We recently saw in the HOPS study, a very compelling analysis that looked at the risk of developing... Read more »

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Non-Progressive HIV?

Posted by Carrie, 1 Reply

My boyfriend was told by his dr today that he has a type called Non-Progressive HIV. He didn't get alot of info on it right now though.

Is anyone else familiar with this? Read more »

PML (progressive multifocal leukoencephalopathy)

Posted by Ron31, 1 Reply

Greetings! My name is Ron and I am living with HIV and PML. Myself and a fellow progressive multifocal leukoencephalopathy survivor wanted to test the viability and usefulness of an online support group for others affected by PML personally or with... Read more »

PML (progressive multifocal leukoencephalopathy)

Posted by Ron31

PML (progressive multifocal leukoencephalopathy)

Posted by Ron31

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