How Many People Suffer From Cmv Retinitis

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support groups for people with CMV and blindness?

Posted by Anonymous, 1 Reply

Hey everybody,

I'm living in Miami Beach in Florida, and have CMV Retinitis. I was wondering if anybody out there knows of, or might want to start, a support group or organizations for people with CMV Retinitis who suffered blindness as a result of... Read more »

cmv retinitis

Posted by Anonymous, 1 Reply

Does anyone know if you could have CMV retinitus for years without showing any other signs of HIV or AIDS?
I have read that it comes in the later stages, and I have had the symptoms for years but otherwise feel o.k

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cmv, rd detach,loosing my vision

Posted by Anonymous, 1 Reply

HI
DOES ANYONE KNOW WHAT TO DO IN MY SITUATION, I HAD MY RETINA RE-ATTACHED, HOWEVER EVERYTHING IS DARK, DUE TO TISSUE GROWING AFTER SURGERY, I NEED SOME ADVISED, THANK YOU

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HPV CMV

Posted by Anonymous, 1 Reply

When do these show up in HIV infection

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implant for cmv

Posted by princealbert

Has anyone had a vitrasert implant for cmv retinitis? I'm concerned because it's now 2 1/2 weeks after surgery, and my vision is still very cloudy, like someone smeared vaseline over my right lens. I've been examined 3 times thoroughly, and doctors... Read more »

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Ask the Experts

support for people with CMV/blindness

Hello,I would like to know if there is a group or organization for people with CMV Retinitis who suffered blindness as a result of complications from HIV. Can you help point me toward any specific types of support that you would recommend? I live in...

Response from Keith Henry, M.D.

University of Minnesota, School of Medicine

I am unaware of any specific organization/support group in Miami for persons with CMV retinitis. Your ophthalmologist or HIV specialist or local HIV community organization might have some ideas for you. Any ideas from readers of this site would also... Read more »

how to diagnose CMV retinitis?

dear doctor ,,,I have symptoms in my eyes ,,but if I go to eye doctor how he will diagnose that I have CMV retinitis?is it by blood test only ? I mean if I did blood test for CMV ,,,if both IgG and IgM CMV test came positive ,,does this mean that I...

Response from Judith Feinberg, M.D.

University of Cincinnati, College of Medicine

The only way to diagnose CMV retinitis is to have an exam by an eye doctor experienced in treating HIV+s. The blood tests merely tell whether you have been exposed to CMV recently (IgM) or in the past (IgG). People who are IgG+ are at risk for... Read more »

HIV and CMV (CMV)

Hi...My dad has been HIV+ for about 9 years now. He was diagnosed with ALL last year (which at this moment is currently in remission). He is currently taking maintence chemo pills and Atripla for his HIV. He was just told he has CMV. Is he in the...

Response from Robert J. Frascino, M.D.

The Robert James Frascino AIDS Foundation

Hello,Because your dad is HIV positive and now has CMV (cytomegalovirus), he meets the definition for AIDS. I'll reprint below some information about CMV from the archives. I encourage you to review the wealth of information on this site. It... Read more »

multiple drug resistance, poor response, cmv retinitis returns

I've been off antivirals now for 5 months, after genotype and phenotype show no viable combinations for me. Been through almost everything, resistant to most.CD4 is 34, vl is 433,000, and now CMV retinitis is reactivated. I'd like to avoid...

Response from Judith Feinberg, M.D.

University of Cincinnati, College of Medicine

No. CMV is a systemic disease, which means that virus can be found throughout the body, not just in the eye. Studies of the ganciclovir implant have demonstrated a real risk of disease elsewhere-- including the untreated eye-- because the only... Read more »

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Articles

The Cost of Prevention and Treatment of CMV Retinitis

The past several years have seen a greatly expanded arsenal of treatments approved by the Food and Drug Administration for the treatment of CMV retinitis.In addition to intravenous foscarnet (Foscavir, Astra) and intravenous ganciclovir (Cytovene... Read more »

U.S. National Institute of Allergy and Infectious Diseases

Important STDS

Chancroid Cytomegalovirus Infections Molluscum Contagiosum Pubic ("Crab") Lice Scabies HTLV-I and II As medical science has become more precise in diagnosing infectious diseases, the list of known sexually transmitted... Read more »

Ophthalmology

The best news for patients with CMV retinitis came shortly before the XIInternational Conference on AIDS, when the FDA gave full approval to the use ofcidofovir (Vistide), a nucleotide analogue made by Gilead. Because of its longhalf-life,... Read more »

U.S. Centers for Disease Control and Prevention

Usted Puede Prevenir el CMV

La infección de CMV es muy común. Entre el 50 y el 85 por ciento de todos los estadounidenses contraen el CMV antes de llegar a los 40 años. El CMV puede causar retinitis (re-ti-ní-tis) en personas con el VIH, lo cual puede resultar en ceguera.... Read more »

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