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How Do I Take Care Of Pml

Here's a taste of what has to offer on this topic:
Get the Facts
AIDS InfoNet

Progressive Multifocal Leucoencephalopathy (PML)

What Is PML? Progressive multifocal leucoencephalopathy is a serious viral infection of the brain. "Encephalo" means brain. "Pathy" means disease. Encephalopathy is a disease of the brain. "Leuco-" (or "leuko") means pale or white. Leucoencephalopathy is a disease of the white matter of the brain. "Progressive" means that this disease gets worse in a short time. "Multifocal" means that it shows up in several places at the same time. Researchers...
Ask the Experts

PML of the brain (PML, 2009)

My best friend just started having seizures about 5 months ago, the first time, he was taken by ambulance to the ER and because he had smoked marijuana (with a written doctors recomendation in the state of California) the ER doc dismissed anything...
Robert J. Frascino, M.D.

Response from Robert J. Frascino, M.D.

The Robert James Frascino AIDS Foundation
Hello Patrick in Redding,I'm stunned that an ER physician would so readily dismiss an AIDS patient that had a seizure!!!! A very thorough evaluation was warranted. Assuming it was caused by smoking medical marijuana demonstrates very poor... Read more »

PML Support Group

Dr. Feinberg,Would you post my email address so that others that are dealing with PML may contact me? I have been caring for my brother for a year now and can not get out to any support groups so I thought that I would try and start my own. I have...
Judith Feinberg, M.D.

Response from Judith Feinberg, M.D.

University of Cincinnati, College of Medicine
Sounds like a lovely idea. By answering this request, your email address should appear in the Already Answered Questions.... Read more »

PML diagnosis, are Meds right

Hello Dr Pierone, I am currently caring for my brother who has been diagnosed with PML. Since he has virtually no income he is relying on treatment from a Dr that works with patients at a local Aids Clinic, free of charge. I want to make sure my...
Gerald Pierone, M.D.

Response from Gerald Pierone, M.D.

AIDS Research and Treatment Center of the Treasure Coast
Some patients with PML stabilize and improve with antiretroviral therapy alone. The regimen that your brother is on is aggressive and very good. One other approach that may help is to see if the doctor would consider treating him with Vistide.... Read more »

Further Studies on PML

Dear Dr. Feinberg,I first wrote to you in November, 1999 when my brother was diagnosed with AIDS/PML. No one thought he would pull through but he is doing very well today. It has taken him two years to get where he is today and still has a long way...
Judith Feinberg, M.D.

Response from Judith Feinberg, M.D.

University of Cincinnati, College of Medicine
There has been research on specific treatment for PML, but nothing has been positive so far. I am best acquainted with 2 negative studies done by the AIDS Clinical Trials Group which is funded by the National Institutes of Health. So at the... Read more »
Connect With Others

pml support

Posted by Anonymous
for pml caregivers or sufferers

Read more »


Posted by Anonymous, 3 Replies
Anyone out there dealt with, any positive feedback or helpful information. THe Doctors basically thought my husband was going to die within about two months when he was diagnosed in May (he's been pos for 12 years) They put him back on meds (he had... Read more »

Know someone who died of PML/Liver Failure?

Posted by ScotCharles, 2 Replies
Hey guys,

Just recently, a number of people I know who have been HIV+ for more than 20 years have died of Progressive Multifocal Leukoencephalopathy(PML) and liver failure. I wonder if anyone else had similiar experience?


ScotCharles Read more »

PML...What is it???? Your new book trailer has b

Posted by corkeesdad
PML Disease: What is it?
By harmonys
Ocala : FL : USA | Jun 25, 2010
2 0
Views: 2114

You may be asking yourself what exactly it is. PML stands for Progressive Multifocal Leukoencephalopathy. The majority of the population carries the Polyomavirus... Read more »