Getting Neuropathy When You Have Hiv

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Peripheral Neuropathy

Introduction What Is Peripheral Neuropathy? What Causes It? Who Is at Risk? What Are the Symptoms? How Is It Diagnosed? How Do You Prevent It? How Do You Treat It? Concerns for People Over 50 What Can Help to Ask About at a Doctor's Visit? Access to Meds Research The Bottom Line Introduction Some people living with HIV will develop a disease of the nerves called peripheral neuropathy , or PN. It's a common ...

Ask the Experts

Peripheral Neuropathy, it is getting worse!

I am a long term survivor (positive in 86 and AIDS diagnosis in 1991.) I had problems with peripheral neuropathy back when I was taking ddI, d4T, ddc and hydroxy urea. It went away about a year after going off of the hydroxy urea and the D drugs....

Response from Keith Henry, M.D.

University of Minnesota, School of Medicine

Peripheral neuropathy remains a frustrating problems for many patients.I assume you have seen a neurologist and /or pain clinic to try to optimize pain control and look for any complicating factors? In some cases I have tried (if possible) to switch... Read more »

HIV infection and Peripheral Neuropathy in Women

Hi, I have had two sexual partners this year (2011). One of my partners, we have practiced safe vaginal sex (using a condom) everytime and unprotected oral sex twice (I was the receptor or "giver". The second time ejaculate in my mouth, of...

Response from Robert J. Frascino, M.D.

The Robert James Frascino AIDS Foundation

Hi.The symptoms you describe are not consistent with HIV-related peripheral neuropathy. Rather they are quite consistent with anxiety.Your HIV-acquisition risk is relatively low. I would advise getting a single HIV-antibody test three months after... Read more »

Is this HIV-related neuropathy?

I've been to three neurologist regarding neurological pain, itching and burning and still don't think I'm getting the correct assessment.I tested positive two plus years ago. My viral load is 30,000 and T-Cells are 455. I...

Response from Keith Henry, M.D.

University of Minnesota, School of Medicine

From your description I doubt you have standard HIV related or drug related peripheral neuropathy. Perhaps you would benefit from seeing a good dermatologist with some HIV experience. Seeing a good dermatologist may ultimately provide some relief... Read more »

HIV optic nerve neuropathy

It's been 10 (or more)months since I was diagnosed with HIV optic-nerve neuropathy. The recommended treatment is a regimen being used for idiopathic or demyelinative optic neuritis. This involves 1.5 grams of methyl-prednisolone given...

Response from Rick Stryker, M.D., M.P.H.

University of California Los Angeles School of Medicine

It does sound as though you are receiving the proper treatment for this difficult condition. This is a highly specialized area, so it is good that you have a specialist managing the situation. You are right that steroids present some risks,... Read more »

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NEUROPATHY

Posted by Anonymous, 5 Replies

JUST HAD A QUESTION. IS THIS SOMETHING U GET IN EARLY HIV INFECTION? I'VE FELT THIS PINS AND NEEDLES SENSATION ON BOTH ARMS AND BURNING FEET AND NOW IM SCARED I HAVE HIV. MY EXPOSURE WAS A FEW MONTHS AGO (VAGINAL) IM STRESSING OUT SO MUCH AND I... Read more »

Neuropathy

Posted by tol85, 1 Reply

My question is, Has anyone had symptoms of neuropahty, then have tested negative and suddenly all symptoms are gone? I've been told that Neuropathy is something usually found in the latter part of HIV or AIDS. Usually cause by certain mediactions.... Read more »

MYELOPATHY/NEUROPATHY

Posted by Kipling, 2 Replies

I was diagnosed with Aids April 2000. I was very sick at
the time during the 8 and a 1/2 weeks I was hospitalized.
The virus attacked my spine and I am now living with a spinal disease called myelopathy which enables me to walk. I also developed... Read more »

Neuropathy

Posted by James1941, 1 Reply

I was just reading Scot on 'Fatigue' and know that I am lucky/unlucky to be living in Australia.

Lucky because HIV means a full disability pension - permanent, not much but enough to exist on. Lucky because I too suffer from fatigue but, because of... Read more »

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