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Does The Pain Of Neuropathy Ever End

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AIDS InfoNet

Peripheral Neuropathy

Magnets : A recent study found that socks containing magnets relieved diabetic neuropathy in most cases. However, they were less effective for foot pain due to other causes. Other Resources More information on PN is available from The NeuropathyAssociation at www.neuropathy.org and in the book Numb Toes and Aching Soles: Coping With PeripheralNeuropathy , by John A. Senneff. The Bottom Line Peripheral neuropathy is a disease of the...
Ask the Experts

Wide Spread Pain and Neuropathy

Dear Dr.I am experiencing wide-spread pain (mostly neuropathy in my limbs and the base of my skull in the back of my head). It feels as though I was just hit in the back of the head with a baseball bat or something hard as it's numbing and...
Robert J. Frascino, M.D.

Response from Robert J. Frascino, M.D.

The Robert James Frascino AIDS Foundation
Hello BPS,It's unfortunate that you are not communicating well or able to work cooperatively with your PCP. Is there any option to switch to someone with whom you could work more closely? You should be under the care of an HIV specialist... Read more »

Painful feet (PERIPHERAL NEUROPATHY, 2011)

Hi My name is Patricia from South Africa. I have been HIV posetive for 14 year and i am 30 years old, married with two beautiful HIV neg kids and husband who is also neg. I have started experiencing an unexplainable pain on my feet. If feels like i...
Robert J. Frascino, M.D.

Response from Robert J. Frascino, M.D.

The Robert James Frascino AIDS Foundation
Hello Patricia,You may be experiencing peripheral neuropathy (distal painful peripheral neuropathy). It may be exacerbated by certain HIV medicaments. I'll reprint below some information from the archives that I hope will be helpful.Good... Read more »

Is it bad for me to want all of this to end?

I'm tired...I'm tired of taking medicine, I'm tired of not feeling well, I'm tired of the pain of neuropathy that never goes away. I'm not overtly suicidal but is it wrong to consider ways to stop all of this suffering? ...
Ewald Horwath, M.D.

Response from Ewald Horwath, M.D.

University of Miami School of Medicine
The feelings you describe are part of the difficulty of dealing with a chronic illness like HIV/AIDS. Many people with a chronic disease become tired of taking medicine, tired of not feeling well, and tired of pain.However, the idea of stopping all... Read more »

CD4 15, WBC 2.5. Is the end near?

Thanks for that crumb of comfort, Doc. In your experience does Neurontin alleviate neuropathy, and if a person has Aids related neuropathy, do they eventually end up in a wheelchair or bedbound and lastly, do those vitamin based treatments for...
Mark Holodniy, M.D., F.A.C.P., C.I.C.

Response from Mark Holodniy, M.D., F.A.C.P., C.I.C.

Stanford University, School of Medicine
Yes, neurontin can be helpful, but not in everybody, and we can't predict who will respond effectively and at what dose. How significant the disability could become is again dependent on what all is going on with the person. Are there other... Read more »
Connect With Others

to confused re:neuropathy

Posted by uhohblita, 2 Replies
confused,
my feet started tingling from about 1 month after the "incident". this continued for a long time and kept getting worse and worse. my feet only stopped tingling if i tied my shoes really tight. i had in the back of my head it was from... Read more »

Peripheral Neuropathy - L-Carnetine

Posted by Anonymous, 3 Replies
Greetings! Just thought I would post the following info, it is based strictly on my personal experience and is not a recommendation.

I am a long-term survivor(21 years) and in general good health. Last year I successfully complete a course of Chemo... Read more »

What is neuropathy pain?

Posted by bura, 3 Replies
Can someone describe what is neuropathy pain? Read more »

Neuropathy

Posted by Anonymous
I had very painful neuropathy in my legs and my feet burned like I was walking on hot coals. I stopped taking the D4T and I read about a natural amino acid called Acetyl-L Carnitine (1,000mg per day) and to my surprise it worked right away. I... Read more »