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Does Having Progressive Multifocal Leukoencephalopathy Mean I Have Hiv

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Progressive Multifocal Leukoencephalopathy (PML) Fact Sheet

What Are the Symptoms? How Do You Diagnose PML? How Do You Treat PML? Potent Anti-HIV Therapy Cytosine Arabinoside (Ara-C) Experimental Treatments Commentary The Bottom Line PML is a rare AIDS-related condition of the brain, caused by the JC virus. World wide, more than 4 in 5 adults are exposed to this virus, but it only causes disease in people with weakened immune systems. Before AIDS, PML was rarely seen except in people with...
Ask the Experts

Progressive Multifocal Leukoencephalopathy (PML)

I have a problem.I am very interested in being involved in a study of the treatment with Interleukin - 2 (IL2) to boost my T-cell count.The first time that I have contracted this virus (PML). Was in Sept. 1994.I was admitted to the Hospital, and...
Judith Feinberg, M.D.

Response from Judith Feinberg, M.D.

University of Cincinnati, College of Medicine
There is no clearcut answer to your question-- you may experience a flare of the PML if your CD4 cells increase significantly (the "immune reconstitution syndrome"), or your T cells may increase without this happening. Flares seen with... Read more »

Progressive Multifocal Leukoencephalopathy

Dr.Currier,I was recently told by a client of their dx of PML. In the early days I remember clients who died within 6 months. Although their is no effective treatment, at least nothing that wouldn't cause other deadly side effects, are we...
Judith Feinberg, M.D.

Response from Judith Feinberg, M.D.

University of Cincinnati, College of Medicine
Some patients have had remarkable responses to HAART alone, and that should be the first approach. Cidofovir (approved for CMV) is being used on an experimental basis as well.... Read more »

Progressive Multifocal Leucoencephalopathy

I was diagnoised with PML Dec. 1999. Is there any research currently being conducted?...
Judith Feinberg, M.D.

Response from Judith Feinberg, M.D.

University of Cincinnati, College of Medicine
There is not a lot of treatment research going on right now that I am aware of, but you can check the HIVATIS website which is a government resource that lists ongoing trials. The fact that you were diagnosed in 1999 and are sending questions in... Read more »

Progressive Multifocal Leucoencephalopathy

I was diagnoised with PML Dec. 1999. Is there any research currently being conducted? ...
Judith Feinberg, M.D.

Response from Judith Feinberg, M.D.

University of Cincinnati, College of Medicine
There is not a lot of treatment research going on right now that I am aware of, but you can check the HIVATIS website which is a government resource that lists ongoing trials. The fact that you were diagnosed in 1999 and are sending questions in... Read more »
Connect With Others

PML (progressive multifocal leukoencephalopathy)

Posted by Ron31, 1 Reply
Greetings! My name is Ron and I am living with HIV and PML. Myself and a fellow progressive multifocal leukoencephalopathy survivor wanted to test the viability and usefulness of an online support group for others affected by PML personally or with... Read more »

PML (progressive multifocal leukoencephalopathy)

Posted by Ron31
Greetings! My name is Ron and I am living with HIV and PML. Myself and a fellow progressive multifocal leukoencephalopathy survivor wanted to test the viability and usefulness of an online support group for others affected by PML personally or with... Read more »

PML (progressive multifocal leukoencephalopathy)

Posted by Ron31
Greetings! My name is Ron and I am living with HIV and PML. Myself and a fellow progressive multifocal leukoencephalopathy survivor wanted to test the viability and usefulness of an online support group for others affected by PML personally or with... Read more »

PML (progressive multifocal leukoencephalopathy)

Posted by Ron31
Greetings! My name is Ron and I am living with HIV and PML. Myself and a fellow progressive multifocal leukoencephalopathy survivor wanted to test the viability and usefulness of an online support group for others affected by PML personally or with... Read more »