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Dealing With Pml And Hiv

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Progressive Multifocal Leukoencephalopathy (PML) Fact Sheet

What Are the Symptoms? How Do You Diagnose PML? How Do You Treat PML? Potent Anti-HIV Therapy Cytosine Arabinoside (Ara-C) Experimental Treatments Commentary The Bottom Line PML is a rare AIDS-related condition of the brain, caused by the JC virus. World wide, more than 4 in 5 adults are exposed to this virus, but it only causes disease in people with weakened immune systems. Before AIDS, PML was rarely seen except in people with...
Ask the Experts

PML of the brain (PML, 2009)

My best friend just started having seizures about 5 months ago, the first time, he was taken by ambulance to the ER and because he had smoked marijuana (with a written doctors recomendation in the state of California) the ER doc dismissed anything...
Robert J. Frascino, M.D.

Response from Robert J. Frascino, M.D.

The Robert James Frascino AIDS Foundation
Hello Patrick in Redding,I'm stunned that an ER physician would so readily dismiss an AIDS patient that had a seizure!!!! A very thorough evaluation was warranted. Assuming it was caused by smoking medical marijuana demonstrates very poor... Read more »

pml-hiv+

dear experts,may I have information about the blindness caused by PML and HIV? what are the percentages of HIV+ people having PML?...
Brian Conway, M.D.

Response from Brian Conway, M.D.

University of British Columbia
PML is a viral infection of the brain that is only seen in the setting of very advanced immune disease (CD4 count well below 100). Even in this population, it is not terribly common, occurring in 5% or less of these people who do not receive HAART.... Read more »

PML Outside HIV patients?

Dear Dr. Feinberg,My sister recently died. After much uncertainty during her treatment when she was diagnosed with ADEM, however, after her death post mortem tests diagnosed that she had died from PML. My sister was HIV negative, her symptoms...
Judith Feinberg, M.D.

Response from Judith Feinberg, M.D.

University of Cincinnati, College of Medicine
PML can occur in both HIV+ and HIV- people, but typically attacks people whose immune systems are not functioning properly, for whatever reason. It is pretty rare among HIV-s. Since there is no proven effective treatment for PML, it is usually a... Read more »

PML, HIV-

Dear Dr. Feinberg,I was reading your response regarding HIV- people with PML. You said it is usually fatal. I have not been able to find any information on the few that do survive PML. My husband was diagnosed with PML after a brain biopsy. He...
Judith Feinberg, M.D.

Response from Judith Feinberg, M.D.

University of Cincinnati, College of Medicine
PML is pretty unusual in HIV- individuals, so I can't point you to a wealth of information about this. The problem is that there are not any specific treatments for it, which is why it usually progresses and is fatal. Interferon is a... Read more »
Connect With Others

PML

Posted by Anonymous, 1 Reply
NEED OPTIONS FOR TREATMENT PML HIV NEGATIVE PJM61559@AOL.COM

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PML Survivors

Posted by Anonymous, 5 Replies
Hi! My name is Ron and I am living with HIV and PML. Myself and a fellow PML survivor wanted to test the viability and usefulness of an email support group for others affected by PML. Therefore I have started a Yahoo Group to facilitate this idea. I... Read more »

PML Survivors

Posted by Anonymous, 2 Replies
Hi! My name is Ron and I am living with HIV and PML. Myself and a fellow PML survivor wanted to test the viability and usefulness of an email support group for others affected by PML. Therefore I have started a Yahoo Group to facilitate this idea. I... Read more »

PML Survivors

Posted by Anonymous, 1 Reply
Hi! My name is Ron and I am living with HIV and PML. Myself and a fellow PML survivor wanted to test the viability and usefulness of an email support group for others affected by PML. Therefore I have started a Yahoo Group to facilitate this idea. I... Read more »