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Congenital Lipodystrophy

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Body Shape Changes (Lipodystrophy)

No researcher has suggested that people with lipo should stop taking ART. What Causes Lipo? We do not know what causes lipo. There are different causes for fat loss and fat gain. Fat Loss Zidovudine (Retrovir, AZT) and stavudine (Zerit, d4T) are linked to fat loss. Efavirenz (Sustiva) may also contribute. Fat Gain One theory is that protease inhibitors interfere with the body's processing of fat. However, some patients who have never...
Ask the Experts

Lipodystrophy and Emery-Dreifuss muscular dystrophy

Dear Dr. Dieterich,I have Emery-Dreifuss muscular dystrophy and my condition is associated with a marked absence of subcutaneous body fat. However, I have not experienced any facial lipodystrophy. I have an autosomal dominant mutation within the...
Douglas T. Dieterich, M.D.

Response from Douglas T. Dieterich, M.D.

New York University, School of Medicine
Good question! I really have no information about that topic. Certainly there is no clinical data about it. It would be a good avenue for the basic scientists to investigate. Maybe someone will see it here and go for it! Thanks for a very... Read more »

Lipodystrophy (LIPODYSTROPHY)

I'm trying to find CURRENT information about lipo treatment options, but everything I find, including on this site, is over 2 years old. Can you point me to anything newer. I've been advanced/full-blown (technically) for 15 years, and...
Robert J. Frascino, M.D.

Response from Robert J. Frascino, M.D.

The Robert James Frascino AIDS Foundation
Hi,The best source for current information about lipodystrophy (lipoatrophy and lipohypertrophy) should be your HIV specialist physician. Treatment options depend on your specific case. There is current information on treatment options on this site... Read more »

congenital CMV

My daughter was diagnosed w/congenital CMV & has had complications since birth from hearing loss to paralysis to developmental delays & also she was low birth weight 3lbs 14 oz & still continues to be very small. Is there a possibility...
Judith Feinberg, M.D.

Response from Judith Feinberg, M.D.

University of Cincinnati, College of Medicine
Congenital CMV is like an opportunistic infection because fetuses and newborns have very immature immune systems, so the CMV 'takes advantage' of them. There are a range of unfortunate outcomes than can occur with congenital CMV, some of... Read more »

cytomegalovirus/ Congenital

My friend has had a son born with CMV. It was contracted whilst in the womb and has been born with CMV and has been diagnosed as being deaf in one ear, moderate learning disabilities, delayed speech etc. Do you have any information on long term...
Judith Feinberg, M.D.

Response from Judith Feinberg, M.D.

University of Cincinnati, College of Medicine
Congenital CMV causes exactly the kinds of problems that have already been diagnosed in this child. Children born with CMV may excrete the virus (in urine, for example) for months to years, and so can be a source of infection to others. Since I am... Read more »
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lipodystrophy

Posted by Anonymous, 1 Reply
anyone who will talk about this?

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exercise and PI lipodystrophy

Posted by Anonymous, 3 Replies
i have been on zerit, epivir and crix for more than one year.
i have lipodystrophy (no more buttocks, fat loss in face and a paunch). I have always been an avid exerciser -- my doc has told me to STOP exercising, that it worsens the situation.
i... Read more »

Lipodystrophy and relationships

Posted by capri75
Anyone out there who has experienced a feeling of neglect in a relationship because they have lipodystrophy even thought they have healthy blood counts and full of energy. Anyone who knows a dating sites for people with lipodystrophy? Read more »

Lipodystrophy and/or Neuropathy?

Posted by Anonymous, 2 Replies
Is it possible to experience lipodystrophy and neuropathy within 2-3 months of HIV exposure, or are these conditions generally symptomatic of long-term HIV status? I have noticed significant swelling under my arm/ beside my right breast. I'm not... Read more »