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Congenital Generalized Lipodystrophy

Here's a taste of what TheBody.com has to offer on this topic:
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AIDS InfoNet

Body Shape Changes (Lipodystrophy)

No researcher has suggested that people with lipo should stop taking ART. What Causes Lipo? We do not know what causes lipo. There are different causes for fat loss and fat gain. Fat Loss Zidovudine (Retrovir, AZT) and stavudine (Zerit, d4T) are linked to fat loss. Efavirenz (Sustiva) may also contribute. Fat Gain One theory is that protease inhibitors interfere with the body's processing of fat. However, some patients who have never...
Ask the Experts

Facial lipoatrophy, and general lipodystrophy

Dear Nelson Vergel:Has the FDA and US Doctors gotten off their duff and begun trials using New-Fill for facial wasting? Whats the word? Additionally I have been prescribed serostim whos side effects I cant seem to tolerate and this week Avandia**My...
Nelson Vergel, B.S.Ch.E., M.B.A.

Response from Nelson Vergel, B.S.Ch.E., M.B.A.

Program for Wellness Restoration
Dale:Dermik, an American company, bought the rights of NewFill in the US and is getting ready to launch a multi center study (no details yet). Richard-James, the owners of an ultrapure silicone called Silskin, and Polymekon-USA, the owners of... Read more »

Lipodystrophy (LIPODYSTROPHY)

I'm trying to find CURRENT information about lipo treatment options, but everything I find, including on this site, is over 2 years old. Can you point me to anything newer. I've been advanced/full-blown (technically) for 15 years, and...
Robert J. Frascino, M.D.

Response from Robert J. Frascino, M.D.

The Robert James Frascino AIDS Foundation
Hi,The best source for current information about lipodystrophy (lipoatrophy and lipohypertrophy) should be your HIV specialist physician. Treatment options depend on your specific case. There is current information on treatment options on this site... Read more »

Lipodystrophy and Emery-Dreifuss muscular dystrophy

Dear Dr. Dieterich,I have Emery-Dreifuss muscular dystrophy and my condition is associated with a marked absence of subcutaneous body fat. However, I have not experienced any facial lipodystrophy. I have an autosomal dominant mutation within the...
Douglas T. Dieterich, M.D.

Response from Douglas T. Dieterich, M.D.

New York University, School of Medicine
Good question! I really have no information about that topic. Certainly there is no clinical data about it. It would be a good avenue for the basic scientists to investigate. Maybe someone will see it here and go for it! Thanks for a very... Read more »

Lipodystrophy

Hello,I am a 43 woman, hiv + since 1988, on treatment since 1996. My general health status has been always very good. But lipodistrophy (legs and bottom skinniness) is worse each year. When I ask my doctor, the only solution he gives me is taking no...
Keith Henry, M.D.

Response from Keith Henry, M.D.

University of Minnesota, School of Medicine
I am not sure that stopping HIV medicatios will improve fat loss problems over 1-6 month period. I would also be concerned that a treatment interruption could adversely impact your general and HIV health status. Uridine supplements (NucleoMax) and... Read more »
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Lipodystrophy and/or Neuropathy?

Posted by Anonymous, 2 Replies
Is it possible to experience lipodystrophy and neuropathy within 2-3 months of HIV exposure, or are these conditions generally symptomatic of long-term HIV status? I have noticed significant swelling under my arm/ beside my right breast. I'm not... Read more »

Lipodystrophy or Neuropathy?

Posted by Anonymous, 1 Reply
Is it possible to experience lipodystrophy and neuropathy within 2-3 months of HIV exposure, or are these conditions generally symptomatic of long-term HIV status? I have noticed significant swelling under my arm/ beside my right breast. I'm not... Read more »

HIV Positive Volunteers with Lipodystrophy Needed

Posted by Anonymous
HIV Positive Volunteers with Lipodystrophy Needed

HIV positive subjects age 18-65 with changes in body fat distribution
are needed for a three-year research study investigating treatment
with growth hormone. Participants will self-inject growth hormone
f... Read more »

HIV Positive Volunteers with Lipodystrophy Needed

Posted by Anonymous, 2 Replies
HIV Positive Volunteers with Lipodystrophy Needed

HIV positive subjects age 18-65 with changes in body fat distribution
are needed for a three-year research study investigating treatment
with growth hormone. Participants will self-inject growth... Read more »