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Confidentiality Of Hiv-related Information Act

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Get the Facts
The Well Project

Understanding HIV-Related Clinical Trials

Table of Contents What Are Clinical Trials? The Basic Components of Clinical Trials The Stages of Treatment Trials Should I Participate in a Clinical Trial? Clinical Trials and HIV+ Women What Are Clinical Trials? The term clinical trial is used to describe many different types of researchstudies. There are five main types of clinical trials: Treatment trials Study new medications, new combinations...
Ask the Experts

Confidentiality of my information

how must my information on my hiv status be stored by service providers to maintain confidentiality ? such as by case management ?...
Nancy Breuer

Response from Nancy Breuer

WorkPositive, Inc.
Your question is vague, so I'm not sure I fully understand what you're asking. Service providers = health care providers? They store information about your HIV status in your regular file and send it out along with everything else when you... Read more »

Confidentiality for HIV testing through your general practitioner?

This may seem a really strange question. I remember reading somewhere that if you get tested for HIV through your general practitioner (or internal medicine doctor) then, regardless of the result, you may be refused mortgages, loans etc in the...
Robert J. Frascino, M.D.

Response from Robert J. Frascino, M.D.

The Robert James Frascino AIDS Foundation
Hi,The best way to get tested without it going on your medical record is by using an anonymous testing site; however, not all states have these sites, and even those that exist are reeling from ongoing budget cuts.Testing through your private... Read more »

Breech of Confidential information

I am a medical lab tech and have been hiv positive for 10 years. I get my labs done in the lab I work in by placing the test orders in myself as to not let my status be known to just anyone. My director is the only person in the lab that is allowed...
Jacques Chambers, C.L.U.

Response from Jacques Chambers, C.L.U.
That is really a legal question that you should ask one of the attorneys on this panel. However, while this does appear to violate at least the spirit of HIPAA, unless you can show that your information was leaked to someone, it may be difficult to... Read more »

Confidentiality? (NAMES BASED REPORTING, 2010)

Hi Robert,I suppose this isn't the correct forum for this question, but I hope that you can help me get the word out to anyone who cares about privacy.HIV Poz Names Gathered by the State of HawaiiWhen I go to the doctor, one of the forms that I...
Robert J. Frascino, M.D.

Response from Robert J. Frascino, M.D.

The Robert James Frascino AIDS Foundation
Hello,HIV surveillance data are now used to track the epidemic. It is indeed a federal law. Firing your doctor or insisting your records be kept under the name John Doe won't help. See below.Dr. BobPrevention? Apr 25, 2006Doc, First I would... Read more »
Connect With Others


Posted by Anonymous, 1 Reply

My name is Mary, and I am a Nurse Practitioner in pediatric HIV.
Because I frequently surf the net looking for AIDS and HIV
resources, I have been most curious about this site. Are you ever
concerned abou the confidentiality of your... Read more »


Posted by Anonymous
hi there!
we're two students from Israel seeking for some assitance:
we are writing a seminar about aids and confidentiality and we could use any information about the subject - from everyone: experts, doctors or patients that don't mind sharing their... Read more »

$100 Confidential Interviews, St Louis 4/29 or 5/2

Posted by HenneGroup
We need HIV+ Individuals for confidential interviews in St. Louis. Eligible participants will be invited to complete a 90 minute individual interview on either Friday, April 29th or Monday, May 2nd. Participants who complete the 90 minute interview... Read more »

Breach of Confidentiality at FL hospice

Posted by RonPanzer


The Hospice of the Florida Suncoast has been sued for, among other things, violating the
confidentiality of thousands of its patients, including those with... Read more »