Can Progressive Multifocal Leukoencephalopathy Kill You

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Progressive Multifocal Leukoencephalopathy (PML) Fact Sheet

What Are the Symptoms? How Do You Diagnose PML? How Do You Treat PML? Potent Anti-HIV Therapy Cytosine Arabinoside (Ara-C) Experimental Treatments Commentary The Bottom Line PML is a rare AIDS-related condition of the brain, caused by the JC virus. World wide, more than 4 in 5 adults are exposed to this virus, but it only causes disease in people with weakened immune systems. Before AIDS, PML was rarely seen except in people...

Ask the Experts

Progressive Multifocal Leukoencephalopathy

Dr.Currier,I was recently told by a client of their dx of PML. In the early days I remember clients who died within 6 months. Although their is no effective treatment, at least nothing that wouldn't cause other deadly side effects, are we...

Response from Judith Feinberg, M.D.

University of Cincinnati, College of Medicine

Some patients have had remarkable responses to HAART alone, and that should be the first approach. Cidofovir (approved for CMV) is being used on an experimental basis as well.... Read more »

Progressive Multifocal Leukoencephalopathy (PML)

I have a problem.I am very interested in being involved in a study of the treatment with Interleukin - 2 (IL2) to boost my T-cell count.The first time that I have contracted this virus (PML). Was in Sept. 1994.I was admitted to the Hospital, and...

Response from Judith Feinberg, M.D.

University of Cincinnati, College of Medicine

There is no clearcut answer to your question-- you may experience a flare of the PML if your CD4 cells increase significantly (the "immune reconstitution syndrome"), or your T cells may increase without this happening. Flares seen with increases... Read more »

Progressive Multifocal Leucoencephalopathy

I was diagnoised with PML Dec. 1999. Is there any research currently being conducted? Progressive Multifocal Leucoencephalopathy There is not a lot of treatment research going on right now that I am aware of, but you can check the HIVATIS website...

Response from Judith Feinberg, M.D.

University of Cincinnati, College of Medicine

There is not a lot of treatment research going on right now that I am aware of, but you can check the HIVATIS website which is a government resource that lists ongoing trials. The fact that you were diagnosed in 1999 and are sending questions in... Read more »

Progressive Multifocal Leucoencephalopathy

Response from Judith Feinberg, M.D.

University of Cincinnati, College of Medicine

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Articles

Progressive Multifocal Leucoencephalopathy (PML)

What Is PML? How Can PML Be Detected? How Is PML Treated? The Bottom Line What Is PML? Progressive multifocal leucoencephalopathy is a serious viral infection of the brain. "Encephalo" means brain. "Pathy" means disease. Encephalopathy... Read more »

Leucoencefalopatía Multifocal Progresiva (LMP)

¿Qué Es la PML? ¿Cómo Se Detecta? ¿Cuál Es el Tratamiento Para la PML? En Pocas Palabras ¿Qué Es la PML? La leucoencefalopatía multifocal progresiva (PML por sus siglas en inglés) es una infección viral grave que afecta el... Read more »

International Association of Physicians in AIDS Care

Why People With HIV Still Die -- And Why They Don't Have To ...

Introduction What Kills People With HIV Today? Hepatitis Outranks Other Death Threats Can Liver Deaths Be Prevented? Bad Adherence Can Kill Fateful Impact of a Late Diagnosis AIDS Cancers and Non-AIDS Cancers How Big Is the Threat From... Read more »

U.S. Centers for Disease Control and Prevention

Die Quietly: How AIDS Kills Africa's Battered Women

Of the 29.4 million HIV-positive people in sub-Saharan Africa, roughly 58 percent are women and girls, according to UN estimates. A new report by Human Rights Watch says that domestic violence needs to be addressed as an issue that contributes to... Read more »

Connect With Others

PML (progressive multifocal leukoencephalopathy)

Posted by Ron31, 1 Reply

Greetings! My name is Ron and I am living with HIV and PML. Myself and a fellow progressive multifocal leukoencephalopathy survivor wanted to test the viability and usefulness of an online support group for others affected by PML personally or with... Read more »

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