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I have KS and am HIV negative, I now use Panretin Gel

...have KS with HHV-8 and I am HIV negative. I have a lesion on my left foot below my abkle and the MD at a Cancer Center gave me Panretin Gel to use. It sticks out and is abou the size of a nickle. It bleeds and it seems that the gel works but I...
Robert J. Frascino, M.D.

Response from Robert J. Frascino, M.D.

The Robert James Frascino AIDS Foundation
...Hello Mr. B.,Unfortunately without examining you and monitoring the response to the Panretin gel, I really can't provide an answer to your question. I encourage you to follow up with your oncologist. There are a number Read more »

Panretin Gel use. Stop or Continue?

...improvement. Since April 26, 2010, I have been using Panretin Gel and have seen a dramatic... Read more »

Panretin gel

...Is Panretin gel enough on its own to treat KS? Read more »
The Body PRO

The 4th International AIDS Malignancy Conference

...of Gene Therapy. Authors: Zaia, Krishnan, Rossi, et al. Abstract 31: Efficacy and Safety of Long-Term Alitretinoin Gel (Panretin®) for Cutaneous AIDS-Related Kaposi's Sarcoma. Authors: Tompkins C., Kean Y., Yocum R., and the Panretin®... Read more »
AIDS InfoNet

Kaposi's Sarcoma (KS)

...liquid nitrogen, Treated with radiation, Cut out surgically, Injected with anti-cancer drugs or interferon alpha, Treated with Panretin gel (retinoic acid). These treatments only deal with the skin lesions, not with KS overall. Skin lesions may... Read more »
The Well Project


... Treatment HIV drug therapy alone may make tumor shrink or disappear (remission) Local treatment with cryotherapy or Panretin (alitretinoin gel) if there are only a few isolated lesions Radiation therapy, especially if tumor is bulky and... Read more »
Treatment Action Group

TAG at Ten: The Year 1999

...presents on the HIV-1's chimp origins; Joe Sodroski shows how HIV binds to CD4/CCR5. February: FDA approves alitretinoin gel (Panretin) for KS. March: FDA approves ultra-sensitive Roche Amplicor HIV-1 RNA PCR test. Sally Morrison joins TAG... Read more »
Connect With Others

Pen Pals, anyone?

Posted by Anonymous, 4 Replies
...and it has really affected my body in unexpected ways. I am currently on DOXIL and taxol systemically. I also started using PanRetin gel. The disease continues to move forward, in spite of best efforts. I live with my partner in Western North... Read more »

Late presenter......

Posted by Anonymous, 15 Replies
Hi. I have just been diagnosed in the last week. I had been feeling fairly rough the last few years, but I put it down to being severly overworked and having a few issues in my personal life. When I got my first set of meds, I was astonished. It... Read more »