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I Have Pml Does That Mean I Have Aids

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Progressive Multifocal Leukoencephalopathy (PML) Fact Sheet

What Are the Symptoms? How Do You Diagnose PML? How Do You Treat PML? Potent Anti-HIV Therapy Cytosine Arabinoside (Ara-C) Experimental Treatments Commentary The Bottom Line PML is a rare AIDS-related condition of the brain, caused by the JC virus. World wide, more than 4 in 5 adults are exposed to this virus, but it only causes disease in people with weakened immune systems. Before AIDS, PML was rarely seen except in people with...
Ask the Experts

PML of the brain (PML, 2009)

My best friend just started having seizures about 5 months ago, the first time, he was taken by ambulance to the ER and because he had smoked marijuana (with a written doctors recomendation in the state of California) the ER doc dismissed anything...
Robert J. Frascino, M.D.

Response from Robert J. Frascino, M.D.

The Robert James Frascino AIDS Foundation
Hello Patrick in Redding,I'm stunned that an ER physician would so readily dismiss an AIDS patient that had a seizure!!!! A very thorough evaluation was warranted. Assuming it was caused by smoking medical marijuana demonstrates very poor... Read more »

PML??

Hello,First, excuse me for my uncomplete grammatical language.Last year me and my boyfriend heard about our hiv status.My boyfriend gets very ill, his CD4 count was 10.Soon after his diagnosis he got epilepsy and a half year later the doctors tell...
Gerald Pierone, M.D.

Response from Gerald Pierone, M.D.

AIDS Research and Treatment Center of the Treasure Coast
Hello and thanks for posting (your English is fine). It does not sound like your boyfriend has recurrent PML. The reason that I say this is because it is rare for PML to relapse in cases when the CD4+ lymphocyte count increases to a much higher... Read more »

PML, HIV-

Dear Dr. Feinberg,I was reading your response regarding HIV- people with PML. You said it is usually fatal. I have not been able to find any information on the few that do survive PML. My husband was diagnosed with PML after a brain biopsy. He...
Judith Feinberg, M.D.

Response from Judith Feinberg, M.D.

University of Cincinnati, College of Medicine
PML is pretty unusual in HIV- individuals, so I can't point you to a wealth of information about this. The problem is that there are not any specific treatments for it, which is why it usually progresses and is fatal. Interferon is a... Read more »

What is the prognosis of suriving PML?

I was diagnosed with HIV 3 years ago, and started taking Atripla in 2010 when my CD4 count had went down to 148, The doctors including my neurologist have told me that I have PML, however it is responding well to the Atripla (last report July 2011)....
Robert J. Frascino, M.D.

Response from Robert J. Frascino, M.D.

The Robert James Frascino AIDS Foundation
Hello.Progressive multifocal leukoencephalopathy (PML) is caused by infection with the "JC" virus. Treatment can be difficult. PML can be fatal in up to 50% of cases, but that also means 50% of PMLers are still surviving. I suggest you... Read more »
Connect With Others

PML

Posted by Anonymous
Hi...my name is austin from vancouver canada and my sister has hiv/pml/jc virus and is in latter stages of progression...will share stories and knowledge of progression and observation and will accept any info as to arresting progression/cures/ideas... Read more »

Know someone who died of PML/Liver Failure?

Posted by ScotCharles, 2 Replies
Hey guys,

Just recently, a number of people I know who have been HIV+ for more than 20 years have died of Progressive Multifocal Leukoencephalopathy(PML) and liver failure. I wonder if anyone else had similiar experience?

Cheers,

ScotCharles Read more »

PML (progressive multifocal leukoencephalopathy)

Posted by Ron31
Greetings! My name is Ron and I am living with HIV and PML. Myself and a fellow progressive multifocal leukoencephalopathy survivor wanted to test the viability and usefulness of an online support group for others affected by PML personally or with... Read more »

PML (progressive multifocal leukoencephalopathy)

Posted by Ron31
Greetings! My name is Ron and I am living with HIV and PML. Myself and a fellow progressive multifocal leukoencephalopathy survivor wanted to test the viability and usefulness of an online support group for others affected by PML personally or with... Read more »