NYC Children's Services Agency Asks Research Firm to Investigate Research Involving HIV-Positive Foster Children
April 25, 2005
The New York City Administration for Children's Services on Friday announced it has hired the independent not-for-profit research firm Vera Institute of Justice to review research it conducted between 1988 and 2001 involving about 465 HIV-positive foster children, the New York Post reports (Seifman, New York Post, 4/23). Three New York City Council members in February 2004 called for an investigation into the research after the Post reported that 50 HIV-positive foster children from Manhattan's Incarnation Children's Center were involved in 13 clinical trials that were funded by federal grants and pharmaceutical companies, some of which involved combination antiretroviral drug therapy. ACS, which sent the children to ICC, requires parental consent for children to be involved in medical studies; if a parent cannot be located, the decision is made by the ACS commissioner and the agency's medical and legal divisions. However, the studies were abruptly stopped in 2002, and officials from ACS and New York-Presbyterian Hospital -- which was involved in some of the studies -- did not disclose whether any children died or experienced illnesses during the studies (Kaiser Daily HIV/AIDS Report, 3/2/04). An ACS internal review of the trials found "no evidence that the agency acted wrongly" in conducting the trials, according to ACS Commissioner John Mattingly, who was not in office when the trials were conducted, the New York Times reports. Mattingly added that only two children involved in the studies were removed from foster parents who refused to give permission for their participation in the studies and that both of those children had serious medical conditions that required treatment (Kaufman, New York Times, 4/23).
Independent Review Details
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