Objective Three:
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The orphans left behindIn KwaZulu Natal, South Africa, 25% of those aged between 15 and 49 are HIV-positive. Most are parents who, unless a cure is found, will leave orphans when they die. With such high rates of parental death, extended family members find it increasingly difficult to absorb orphaned children into their own households. Orphans often end up having to earn a living, and care for themselves and younger siblings. CINDI, Children in Distress, works with these children so that they can grow up without having to resort to the streets for sustenance. CINDI arranges short-term stays in special homes, artificial extended families, foster care, adoption and also helps relatives to raise money for childcare. CINDI also works with schools to allow orphans to attend regardless of whether or not they can pay the school fees and assists those children who head families to be economically self-sufficient. Source: http://www.togan.co.za/cindi
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Even when they test HIV-positive men are less likely than women
are to seek help because they are expected to be self-reliant.
However, except in countries where sex between men is the
primary route of transmission, there is a general lack of support for
both women and men who are HIV-positive. This can lead to
further HIV transmission because good-quality care, support and
counselling has been shown to help people with HIV protect their
partners.
Many women who test positive for HIV face the twin prospects of coping with their diagnosis and finding a way of informing their husband or male partner. In such situations, men and other family members may accuse the woman of bringing HIV into the household -- even though it is much more likely that the man is responsible. In extreme cases, women with HIV may be ejected from their home by their husband or by their husband's family after his death.
To reduce the fear and stigma associated with HIV, governments need to work together with people with HIV, and provide them with care and support. Experience has shown that as the climate of fear around HIV changes, people are encouraged to access voluntary testing and counselling services, if these are provided. Over time, the HIV test may become commonplace and widely accepted, and further strengthen community support for those infected with HIV.
Positive livesIncreasingly, HIV-positive people and their organizations are refuting widespread public misconceptions about AIDS. One powerful way of doing this is by showing people living with HIV/AIDS as they really are: human beings from every walk of life, who are learning to live with their diagnosis as well as their hopes and dreams. For example, the AIDS Access Foundation (ACCESS), Thailand, has produced a photo exhibition "My Positive Life -- a photo album about living with HIV/AIDS", the Malaysian AIDS Council Project has recently produced "Hidden Voices: True Malaysian Experiences of AIDS". In Switzerland "Dammed Positive" by Ruedi Weber -- a pictorial essay of the lives of HIV positive gay men has recently been published (ISBN 3-909164-64-1).
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Post-test clubsIn 1992, when the voluntary counselling and testing (VCT) programme first started in Zambia's Kara Counselling and Training Trust (KCTT), it was realized that a need existed for ongoing support to VCT recipients. Apart from individual person-to-person ongoing counselling, a more interactive form of support was needed. A club for individuals who had undergone HIV testing was set up. Since the first club was formed in 1992 at Hope House, four clubs in Lusaka and one in Choma have been set up. The Post-Test Clubs aim to provide support to people or members who are distressed by their HIV test result and help those who are negative to maintain their status; educate on HIV/AIDS; distribute information (brochures, flyers) on HIV/AIDS; educate on the importance of voluntary HIV counselling and testing by sharing personal experiences in a supportive environment without fear of being discriminated against; and provide members with relevant and updated information on HIV/AIDS and other related issues. The Clubs use drama and performances as part of HIV/AIDS education. Weekend information seminars and workshops are also provided as well as individual community outreach through one-to-one talks with community members. Apart from the stable demand for voluntary counselling and testing, the Clubs create a sense of community. Club members have provided both emotional and material support for the funerals of other club and family members. The positive, free interaction among members has significantly contributed to reduction of stigma and discrimination against HIV-positive people. Source: Stanley Chama, Hope House Programmes Manager, Kara Counselling and Training Trust, Zambia.
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Poverty can render entire communities especially vulnerable to HIV. Both men and women may be forced to leave their homes in search of work; prostitution may become a survival strategy for young men, women and children; and lack of hope or future may lead to the apparent solace of drugs.
While both women and men should have full and equal access to education, vocational training and employment, men are traditionally seen as the providers in most societies. Therefore, when such opportunities are available, men generally access them, since such privileges are often seen as the prerogative of men.
Hence, it is perhaps not surprising that many men react negatively if they cannot find work or if they are unable to provide for their family. Their sense of anger or disempowerment may lead to alcohol or drug abuse, or violent behaviour. Men may also seek comfort in casual sex. Due to their overall unstable situation many men are less likely to practise safer sex.
Employment opportunities for men may, in some cases,restore their self-esteem and reduce their tendency towards unsafe sex. However, these very opportunities for employment often mean that many couples live apart, since men must migrate for work. Due to loneliness, and the availability of money and opportunity, many men have unprotected sex with other women, sometimes prostitutes, and become HIV-infected. When they return to the village, they may infect their spouse.
Empowerment of women and protecting both women and men from HIV requires that both women's and men's needs be taken into account. In some cases, employment of men may increase women's economic dependence on their male partners. Policy-makers and aid organizations need to explore ways of increasing employment opportunities for both men and women.
Employment opportunities may mean that couples live apart. Policy-makers and aid organizations need to explore better employment practices that do not require the man to move away from the family or that the family moves as a unit.
Many people have little or no access to reproductive health services, such as diagnosis and treatment of sexually transmitted infections, antenatal and obstetric care or contraception. Where such services do exist, they often appear more friendly to women, particularly married women, than men.
Are parallel health services available for men and boys? When these health services exist, how can men be encouraged to use them and seek support when they need it? When asked what they want from health centres, men often mention the same things as women: high-quality service at an accessible price; privacy; confidentiality; staff who are sensitive to their needs of men, including those of men who have sex with men; and clinic hours that are compatible with work schedules. Some men also prefer male doctors and nurses.
Reproductive health services that cater to the specific needs of boys and men have a special role to play in encouraging men to protect themselves and their partners against sexually transmitted infections. In such settings, staff can also address other health issues of concern to young men, such as male-to-male violence and the dangers of behaviours such as drug use.
All sectors of society, including government ministries, religious bodies, nongovernmental organizations, the media, the commercial sector and village councils need to be engaged in the task of raising awareness of men's role in the HIV/AIDS epidemic and encouraging men to adopt safer sexual behaviours.
Policy-makers, religious and community leaders, most of whom are men, may face challenges in recommending policies which may seemingly destabalize their own authority. However, convincing leaders that the interests of their communities and nations can be better served by promoting safer behavioural norms among men, remains a priority.
National policies on HIV/AIDS need to be formulated jointly by women and men and include strategies that recognize men's position in sexual decision-making and the right of both women and men to protection. Such policies should include the rights of men and women to education, health care services, voluntary counselling and testing, and protection from HIV-related stigma and discrimination.
Effecting policy changeIn Nicaragua, violence against women has only been widely recognized as a significant social problem in recent years. The National Network of Women Against Violence, (NNWAV) founded in 1992 brings together over 150 different groups throughout Nicaragua. Their most ambitious initiative was a campaign in 1996 for the adoption of a new Domestic Violence Law by the Nicaraguan National Assembly. Efforts to challenge domestic violence in Nicaragua had been hampered by the lack of reliable data regarding the magnitude and characteristics of the problem. In an effort to provide useful information to decision-makers, research on the prevalence and characteristics of wife abuse in Leon, Nicaragua was undertaken. This was a collaborative effort by the NNWAV, the Department of Epidemiology and Public Health, Umeä University and the Department of Preventative Medicine, UNAN/Leon. The preliminary results of this research contributed to public debate around the need to reform the existing penal code. In November 1995, the NNWAV presented a reform bill to the National Assembly that included harsher sentences for offenders, as well as providing restraining orders to protect victims. The Preamble of the new law cited the Leon research on domestic violence. The NNWAV lobbied for 8 months in support of the Domestic Violence Law, using a variety of strategies to gain public support. With the technical assistance of UNAN/Leon, focus group research was carried out to assess the attitudes of different sectors of the population towards the law, including urban and rural women and men, youth, battered women, mental health professionals, forensic doctors, police and judges. The results of the study were submitted to legislators to convince them of the political and technical viability of establishing restraining orders and criminalizing psychological injuries. At this time, national elections were only a few months away and the NNWAV decided to use electoral pressure as a strategy. A massive letter-writing campaign presented over 40,000 signatures and 21,000 letters in support of the law. Newspaper advertisements were published in major papers and television and radio announcements were presented during the most popular programmes citing the major results of the prevalence study, inviting parliamentarians to do their part to end domestic violence. Community women from around the country visited the National Assembly during the debates on a daily basis, holding banners and distributing leaflets. Briefing packets were produced and direct lobbying was carried out in the corridors of the National Assembly by a team of well-known lawyers and psychologists. By the time of the vote, public support was evident for the bill. So much so, that to vote against it would have given the impression of being in favour of violence against women. In August 1996, the law was unanimously passed and took effect on 9 October 1996, just 11 days before the national elections. The Nicaraguan experience shows that partnership between decision-makers, researchers, professionals from the legal and health sectors, and community groups is a very powerful and successful strategy for legislative change. Involving well-known professionals in consultations surrounding a law not only contributes to the legitimacy of the initiative in the eyes of legislators and the public, but also helps create ownership of the law, thereby encouraging professionals' cooperation in the law's application. Source: Dr Mary Ellsberg, Women Catalysing Policy Change around Domestic Violence in Nicaragua. Elimination of Violence Against Women: In search of solutions. WHO/FIGO Pre-congress Workshop,30-31 July 1997, WHO/HSC/PVI/99.2.
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This article was provided by UNAIDS. It is a part of the publication Objectives and Ideas for Action, 2000 World AIDS Campaign.|
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