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Fact Sheet

How Do I Start?

March 27, 2013


Did You Just Learn That You're HIV-Positive?

It can be very scary to learn that your HIV blood test came back positive, but it's not a death sentence. The test means that you are infected with the virus that causes AIDS, the human immunodeficiency virus (HIV). There is no cure for HIV disease, but there are treatments that help keep the disease under control. Many people with HIV infection live a long and healthy life. No one can predict how long it may take to develop any symptoms of HIV disease.

When you first find out that you have HIV, you'll need to adjust to this change in your life. Family members or friends might be able to help you, or you could talk with a counselor or social worker. Take your time and don't feel that you have to tell everyone right away about your HIV status. Fact Sheet 204 has more information on telling others. Then start taking the next steps:

  • Learn more about HIV disease
  • Keep track of your immune system
  • Decide how you want to deal with HIV


Learn More About HIV

HIV is a virus that can multiply rapidly in your body. Without treatment, HIV can make your immune system very weak. If this happens, you might get an "opportunistic infection" (see Fact Sheet 500). Common germs cause these diseases. People with healthy immune systems can be exposed to these germs and not get sick. The same germs can cause serious illnesses in people with weak immune systems.

The first medication for HIV was approved in 1987. Now there are many different drugs that can be used to slow down the HIV virus. Most people with HIV disease can now expect to live healthy lives for many years.

You will probably have a lot of questions about HIV disease. There are many good sources of information, including:

  • your local public health department
  • your HIV case manager or health care provider;
  • the AIDS InfoNet website

Be careful about the information you're getting -- check it out with your health care provider or other sources to make sure it's accurate.


Keep Track of Your Immune System

In addition to your regular medical exams, there are two special blood tests to keep track of HIV disease. They are the viral load test and the CD4 cell test.

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The viral load test (see Fact Sheet 125) helps show how strong the HIV virus is in your body. It measures the amount of HIV in your blood. Lower levels are better. This test is used to help decide when it's time to start using antiretroviral medications (ARVs), to see if the drugs are working, and to know when to change medications.

The CD4 cell test (see Fact Sheet 124) helps show how strong your immune system is. It counts how many infection-fighting white blood cells you have. These cells are also called T-4, T-cell or T-helper cells. If your CD4 cell count gets too low, you might develop an opportunistic infection. This test is used to help decide when it's time to start using medicines to prevent opportunistic infections.

Your health care provider will probably want to do these tests every three to six months. Talk to your health care provider about when to start treatment.


Decide How You Want to Deal With HIV

HIV may not be the only health issue you are dealing with. The better your health is overall, the better you can deal with HIV. Be sure to get regular medical and dental checkups, and get treatment for conditions like diabetes, high blood pressure, or high cholesterol. If you can avoid smoking, drinking too much alcohol, recreational drug use and sexually transmitted diseases, you will probably find your HIV easier to control.

Using HIV Medications to Fight HIV

Current guidelines (see Fact Sheet 404) recommend treatment for all HIV-positive people. You will need to get information and work with your health care provider to decide what kind of treatments fit best with your beliefs, desires, and life style. You will need to get information and work with your health care provider to decide what kind of treatments fit best with your beliefs, desires, and life style.

Using Complementary and Alternative Therapies

Some people believe they have stayed healthier because they use traditional healing practices, massage, acupuncture, herbs, or other therapies. Fact Sheet 700 has more information on these therapies.

It is difficult to get information on how well these therapies work for HIV disease. Most of them are not studied the same way as western medicines. That doesn't mean they don't work, but you may have to find other ways to check them out. Remember, there are no "miracle" cures. If it sounds too good to be true, be very careful.


Getting Help

You can get help from a case manager at a local AIDS service organization. Check with your local health department. A case manager will give you confidential help to find out about and receive HIV/AIDS services.

You can also check on the Internet for HIV/AIDS information and services.


The Bottom Line

There are things you can do to stay healthier with HIV disease. You can learn more about the disease, monitor the health of your immune system, and decide how you want to deal with your health.

Remember, you are in charge of your own health care. You will decide which health care provider to work with, and whom else you want to consult about your treatments. You will decide which treatments you want to use and when you want to use them. Take your time and learn about your options.


For More Information

The AIDS InfoNet has many fact sheets that can help you. These include fact sheets on antiretroviral therapies, CD4 and viral load tests, opportunistic infections, and living with HIV.

You can also search for organizations at the web site of the National Prevention Information Network.



This article was provided by AIDS InfoNet. Visit AIDS InfoNet's website to find out more about their activities and publications.
 
See Also
Day One With HIV: Finding Out Your Status, in Your Own Words
TheBody.com's HIV/AIDS Resource Center for the Newly Diagnosed
More "Just Diagnosed" Info

Reader Comments:

Comment by: mysak (East Coast) Wed., Jul. 21, 2010 at 9:46 pm EDT
I got my result today and to my disbelief, I am positive. I am still shocked and it is hard for me to accept the reality. I am lost and don't know what to do, except getting on the treatment and fight the disease.
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Comment by: Trina (Maryland) Thu., Jan. 21, 2010 at 9:12 pm EST
I found out a loved one has HIV. I just want to grab him and hug him, but he is so distant right now it hurts me. How do I show him i am here for him with out bugging him. I here so many people say they feel like they are alone, and i never want him to feel like that. But with him being so distant to me i feel alone. help
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Comment by: (PHILADELPHIA ) Sat., Jan. 16, 2010 at 3:03 am EST
JUST FOUND OUT TUESDAY I'M SO NUMB, SCARED, FRIGHTENED, AND SO SO SCARED I MAY HAVE INFECTED SOMEONE WHEN I DID'NT KNOW I WAS POSITIVE, GOD BLESS THEM AND ME, MY CD4 IS >700 DONT KNOW VIARL LOAD YET, BUT WHEN DO I DECIDE TO DO MEDS
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Comment by: lt (harare, zimbabwe) Thu., Jan. 7, 2010 at 4:04 am EST
just found out, and its all i think about. but clinton you speak truth. i am just thinking bout all i want to do and might not be able to do etc. but at least i have support from my partner who is also positive and we are working it out.
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Comment by: samanthaa (brazil) Thu., Jul. 16, 2009 at 5:22 pm EDT
I just found out today i'm poz. i'm 18 in brazil and already getting used to the idea... we're all gonna die one day, i mean look at all those innocent people who die in car crashes, plane crashes, at least having HIV is not that bad because it opened my eyes and makes me want to live my life because time is short.. so live your life..
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Comment by: Ricky Joe Derringer Jr. (douglasville ga) Sun., May. 17, 2009 at 11:20 pm EDT
I just found out I am poz. What steps should I take first?
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Comment by: Kakcece (Abuja, Nigeria) Thu., Mar. 19, 2009 at 11:16 am EDT
You are right Clinton. The initial phase is the most frightening because you start to hear about a lot of things that never existed in YOUR dictionary! But after a while, it does get a little bit better. You learn to manage it and continue living life. I am doing the same here!
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Comment by: Clinton (California) Thu., Mar. 19, 2009 at 2:09 am EDT
Along with all of the advice given above, it's important to learn to accept that you have HIV...and relax. It's devastating at first. But it gets better. You'll think about it all the time at first. There won't be a day that you don't think about it. But after awhile, you won't be thinking about it all the time.

For most, the worst things about having HIV are the regrets of the past and the fears of the future. If you think about how you're feeling RIGHT NOW, you'll realize that, hopefully, you're not in bad shape.
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