Maria T. Mejia
Time to Show My Face and Take the Stigma Away
Does HIV Cause AIDS? Denialism vs. Pro-ARVs: A "Debate"
January 27, 2011
It started as a simple status on my Facebook page where I just put "FOR ME IT'S VERY HARD!!! TO TAKE HIV MEDS ... IT'S NOT SIMPLE! IT'S NOT EASY ... THEY DO SAVE OUR LIVES BUT HAVE VERY HARSH SIDE EFFECTS!" Well before I knew it, I had a scientist (a good friend), a doctor, a person that said he tested HIV positive and was showing me videos of all these other doctors and scientists that say HIV does not cause AIDS, and that the medication is killing us. I also had a very nice lady from the UK that is also positive along with her husband and also takes her meds.
Why I Want to Show My Face After 20 Years
January 26, 2011
I am ready to show my face for many reasons! After the cycles that we go through with HIV/AIDS ... the denial, realizing I was not dying after all ... came the shame and hiding. I also started with the lies ... that I believe came from my mother trying to protect me, saying tell everyone I have something else (another illness like lupus etc etc)! Well after so much hiding, lying, the SHAME! Something really deep happened before 2011 came. My partner's sister passed away from cancer and this was so terrible :(. I thought to myself, and asked myself, WHY can't I say I have HIV?? Why is it that anyone can say they have cancer or diabetes or any other health condition and I am so scared to disclose openly without having that fear?
HIV/AIDS, Neuropathy, Painkillers (My Personal Hell)
January 21, 2011
Well, where do I start!? I guess pain ... physical and mental. One of the situations that we face with HIV/AIDS is pain ... from neuropathy, aging, etc., etc. I myself was on pain medication -- exactly, Oxycodone. Well, 8 years ago when one of the doctors I saw prescribed it to me, he never told me how addictive it was!!! I wish I knew then what I know now!! I have suffered sometimes more with this little pill than with the HIV/AIDS virus ... that, by the way, I started with half a pill (5 mgs) and ended up with maybe taking 80 mgs a day! This is over an 8-year period as I said. You see, this pill comes in different forms. Names I know: Morphine, roxycodone, oxycodone, oxycontin, codeine, tramal, percodan, etc., etc.
The Good, the Bad and the Ugly
January 19, 2011
Yes, many may think there is nothing positive in being positive ... but as I have always been taught, and believe, even from something bad or tragic, we can find something good, something to learn from and something that makes us stronger. I am not going to sit here and write that i don't cry sometimes and feel hopeless. I just went through it this week when I got back from my vacation to Disney. I learned that a very close friend and founder of Red Hispana, an organization here in south Florida, had passed.:( Every time this happens, it really shakes me. I know that we are all going to die, but when someone dies from HIV that I have seen with my own eyes was doing well (well, at least the last time I saw them), it really scares me. I get very very scared. You see, having HIV/AIDS is a process. You go through different cycles. I can say I don't feel the same way as I did 10 years ago ... I was healthier and stronger than now. And it's not that I am sick, but I have neuropathy which hurts and it's caused by HIV meds ... one of the reasons also why I take coenzyme Q10 (I talk about it a little in one of my responses in my last blog and give some tips on natural medication).
January 13, 2011
I was just turning 18 when I found out I was HIV positive ... I was very young. Back in those days, this was a death sentence. It was around the same time Magic Johnson came out saying he was positive. I was studying in a program in Kentucky named Job Corp and they did HIV testings to all the students that came in new. I remember before all of us kids were getting tested I was answering all the questions correct about HIV (how ironic). To me, this was a disease for prostitutes, drug users or homosexuals so I never thought I would ever be positive. A month passed and I kept on getting slips from the clinic telling me to come in. As I started getting homesick, I went to the clinic, and boom, there I remember an Asian doctor looking at me with eyes of horror ... asking me, why didn't you come sooner? I answered like any teen would: "I don't know." Well he sat me down and he didn't even prepare me! He just said "You have AIDS."
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Time to Show My Face and Take the Stigma Away
Maria T. Mejia
I am a 37-year-old Colombian female who lives in Miami, Florida. I've been positive for 20 years. Although almost all my life I've been in long-term relationships with HIV-negative men, I am happily married to a woman who is wonderful and caring. We have been together almost three years and she is HIV negative. I have no children but we will look into having! I am an activist, a peer educator, a caregiver. I volunteered for the Red Cross in education for the Hispanic HIV community and also the American community. I was a pre- and post-test counselor. I have spoken in many conferences and done a lot of outreach in the community, especially in the schools for prevention and education. It is part of my everyday life to educate everyone I can on this subject. Being HIV positive is nothing to be ashamed about! We are strong women, and we will take away all the stigmas slowly but we have to open up.
Read more blogs by women living with HIV/AIDS at "A Girl Like Me"
The Well Project shares its content with TheBody.com to ensure all people have access to the highest quality treatment information available. The Well Project receives no advertising revenue from TheBody.com or the advertisers on this site. No advertiser on this site has any editorial input into The Well Project's content.
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