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What Do You Think Is the Best Way to Fight HIV/AIDS Stigma?

November 15, 2010

Stigma: It comes in many forms and can have a profound effect on people's relationships, their careers, their health, their lives. In fact, because of the ways it creeps into and clouds judgment on other aspects of the epidemic, many who are living with HIV/AIDS and/or working in the field believe that stigma is the greatest barrier to fighting HIV/AIDS. So how do we to eliminate it -- within ourselves, in our communities and on a global level? We asked members of the worldwide HIV/AIDS community to offer their ideas.


Josephine Y. M. Kong

Josephine Y. M. Kong, Hong Kong AIDS Foundation, Hong Kong

I think that a fundamental message should be sent that everybody -- no matter if they have HIV or not -- has basic, equal human rights. Even if you have the virus, you still enjoy the rights. It's just basic human right to enjoy public health, to enjoy not being discriminated against because of their medical status. I think this is important.

Everybody can use the excuse oflimited resources, or whatever things, to expel you from public health, or from social service. So I think the advocacy for human rights is very fundamental in fighting against the stigma.


Patricia Shelton

Patricia Shelton, Peer Educator and Consultant, Bronx, N.Y.; Diagnosed in 1991

Number one: education. Families need to be educated. The schools need to have education, and also churches. Our community needs to educate each other, like we did when I was growing up in the '60s and '70s. But it starts from home first, school second, and church third.


Allen Kwabena Frimpong

Allen Kwabena Frimpong, Harm Reduction Coalition, Newark, N.J.

To fight HIV stigma? You know, I think people get into this debate. I've heard it since I've been in this movement, for about five years now; and it's always about individuals versus a community-level response. I feel like you need both. With each individual, there is a larger community that they have to deal with as a person. So you need to be able to deal with things on the community level, where communities can be empowered and have self-efficacy through the networks that they have built.

We talk about these social networks, and how that contributes to the spread of HIV. Those very same social networks can be transformed into ways in which we can use protective tactics to stop the epidemic. There are ways in which we have to learn how to deal with each other differently. It really requires practice. I think we've been conditioned as communities to deal with each other in ways that are inherently disrespectful, dishonest. There are ways that we deal with our own families that we wouldn't approve of with others; and even within our own families there are dysfunctions that we have to deal with, right?



Yvette Ogletree

Yvette Ogletree, Kemet Coalition, San Diego, Calif.; Diagnosed in 2003

I think the best way to fight HIV stigma is for more people who are HIV positive, their loved ones, and the affected community to put their faces out there and start talking about HIV; talking about sex; and talking about the things that cause HIV and how we can prevent it in our communities.


Buprenorphine Babe

"Buprenorphine Babe," International AIDS Conference, Vienna, Austria

I think you should start with telling people more about HIV from the beginning of school, so they grow up with knowing about it.


Marvelyn Brown

Marvelyn Brown, Author, The Naked Truth; Ambassador, Greater Than AIDS Campaign; Diagnosed in 2003

I think the best way to fight HIV stigma is through honesty and the truth, along with being real -- which really boils down to education. I do believe the more that people are educated about HIV, the less stigma there is. Once people are aware and they know what they are scared of, or fearful of, you know, they open their hearts.


Chivuli Ukwimi

Chivuli Ukwimi, International Gay and Lesbian Human Rights Commission, Cape Town, South Africa

How best should we fight stigma and discrimination? I think, reach one, teach one. Because when people are in a group, they tend to have this mob-psychology group thingy.

Even when I was working in Zambia, I was openly gay in Zambia. In my neighborhood, in my place of work, in the clubs that I went to, I used that. I gave people the time and opportunity to speak to me and to ask me even the most offending questions, because I realized people were ignorant. They just didn't have the information. I mean, homophobia, or any fear, it's just an irrational fear. People lack knowledge. People lack information.



Yolonda Reed

Yolonda Reed, Broward House, Fort Lauderdale, Fla.; Diagnosed in 1989

The best way to fight HIV stigma is education. Period. That's it.


Abraham Calleros

Abraham Calleros, Milwaukee, Wisc.; Diagnosed in 1986

Be open. Be truthful. Stop hiding. It took me a little while, but I decided if I don't do it now, how am I going to help other people to go through the same process?


Cyndee Clay

Cyndee Clay, HIPS (Helping Individual Prostitutes Survive), Washington, D.C.

I think the best way to fight HIV stigma is to make sure that you're involving the communities that are most affected by that stigma, in the forefront of putting together a response to stigma. So you need to do broad education with the general community; but that education needs to be led by the communities that are most affected.


Nikki Mawanda

Nikki Mawanda, Transgenders, Intersex and Transsexual Uganda, Kampala, Uganda

I think that, for us to really fight stigma, I think that we should try as much as we can to work around a human rights framework, or try as much as we can to adopt the international and local human rights instruments that we have in our different countries, which promote humanity and coexistence.

For us, in Africa, we have what we call Ubuntu. Ubuntu . . . it's like humanity. As humans, you know, we have this brother and sister; it doesn't matter whether you're HIV positive or you're not HIV positive. But the fact that you're a human being and you have red blood -- that should be really good enough. We shouldn't really look for what you do; where do you go; where do you sleep; what do you do in bed; or something. Because we are too different. We are very diverse. We won't find a uniform human being anywhere in this world.

That's why we have different hearts. That's why some of us are white and others are black. So we just find that uniform thing that is us, being human beings. And that's the best way to fight discrimination; and also try as much as we can to work around the human rights framework.


David Bond

David Bond, Project Awareness, Las Vegas, Nevada

I think one of the best ways to fight AIDS stigma is just making it public information, and letting people know that HIV exists, and letting people know that they have it, rather than being afraid of sharing that information. Because it's so frequent nowadays that it should be something that is expressed within families so that everybody knows just how connected you are to HIV. It's not disconnected anymore. It's just so very much in our society, to the point where you don't have to look that far for it.


Christopher Ervin

Christopher Ervin, Aniz, Inc., Atlanta, Ga.

There are a few ways to fight HIV stigma -- one directly related to HIV stigma is to stop emphasizing the different populations, i.e., all HIV and MSMs, or men having sex with men; or HIV and drug users; or HIV and poor black women. Let's just say, "HIV and people." And so that would help people understand that anyone can get HIV.

And also, let's eliminate the stigmas related to being a person of color, being a person of different gender identification. Eliminate the stigmas of being an addict. Eliminate the stigmas of having mental health diagnoses. Eliminate stigmas surrounding people's sexual practices. All this will help end the stigma around HIV.


Ian Hodgson

Ian Hodgson, European HIV Nursing Network, United Kingdom

Well, two things. Firstly, education, information, and making sure that people know how HIV spreads, because that's one of the causes of stigma. The second way is to empower people living with HIV to deal with stigma, in the sense that we'll never really get rid of stigma. So if we can help people living with HIV to be more confident about themselves, and to stop stigmatizing themselves, I think that will have a good impact against stigma.


Joe Hammoud

Joe Hammoud, Youth Coalition, Beirut, Lebanon

To fight HIV stigma: Basically, comprehensive sexuality education and comprehensive sex education -- that's very good to start with, especially starting from a young age. Because people will start growing with the fact of knowing what HIV is before judging it -- and learning that, for many people who are infected, it's not the end of their life. And they're not actually the enemy. They're not the ones that we should be fighting.

So I think if we learn that from an early age, we can overcome a lot of stigma and a lot of misconceptions and judgments on each other, and especially if sex education became universal -- everyone has the right to information, and to access comprehensive knowledge, nonjudgmental knowledge.


Liam Osbourne

Liam Osbourne, World AIDS Campaign, Leiden, The Netherlands

For me the best way to fight stigma is just having a lot of positive people out, open, and just being a positive face to HIV.


Devin T. Robinson X

Devin T. Robinson X, National AIDS Awareness Poets

One of the best ways, and most effective, is consistent education of anti-stigmas. When you consistently tell people that something is not accurate, that you just can't look at somebody and tell that they're HIV positive, or that people that have this particular sore or whatnot are HIV positive; if you consistently put that information out there in all avenues possible, it becomes reality.

What we feel, in many cases, is that we've lost the sting with the media. So we're not out there as much as we used to be. So a lot of the things that are facts have been mixed, because we're not out there telling people, "Hey, this is wrong." So I believe if we have consistent messages that are always being pushed out to the media, and to the masses, then we'll be able to effectively defeat the stigma.


Benoit Matsha-Carpentier

Benoit Matsha-Carpentier, International Federation of Red Cross and Red Crescent Societies, France

You have to have global policies, and you also have to have community work. Because you don't have two same countries. Every country is different. Every region in a country is different. So if you don't work with the community, then you can't touch people.

What do you think would be the best way to eliminate HIV stigma within the community that you know of, that you're familiar with?

Education. Yeah. I mean, education is the base of everything. When you have educated people, then they understand what you are talking about and they are more able to react, to take acts and to change mentalities.


Liam Osbourne

Michael Rivera, Latino Community Services, Hartford, Conn.

The best way to fight HIV stigma: I've been doing this for about 21 years and what I have come to realize is, there's really no such thing as HIV stigma, as strange as that may sound. It's really stigma towards people, toward ideas and beliefs about people, and types of people. HIV became associated with those people. It also adopted the stigma that those people have.

So when HIV was a gay thing, then it took with it the gay stigma. When it became a black thing, an intravenous drug user thing, and so forth -- an African thing, a Haitian thing, which was one of the very first ones -- then it adopted and incorporated into all of those stigmas. So there is no HIV stigma, per se; what there is are a bunch of stigmas about different people rolled up into one.



Patria Alguila

Patria Alguila, Miracle of Love, Orlando, Fla.

Being transparent. Talking about HIV within the family, starting from the youngest to the oldest.



Shannon, International Federation of Red Cross and Red Crescent Societies

I think it's just word of mouth and spreading the news, you know? Getting together with your friends and then expanding -- social networks, different conferences. But I think it works better when you work in the communities that you're in. So if you get the community involved and you teach them and educate them about HIV, it's more effective.


Sherri Smith

Sherri Smith, Ebony Sisters Campaigning for AIDS Prevention Education (ESCAPE), Columbus, Ohio

I think it's going to have to be like the Cancer Society. We have to kind of follow their model. And that is, trying to get everybody educated, and get everybody involved. They try and get everybody involved. And they have the best media coverage! Marketing! We really have to do that.

They all have pulled together, regardless of their differences, and they come with one message. You know, it's not like, "We're the black people over here"; or, "We're the white people over here"; or, "We're the breast cancer people over here"; or, "We're about colon cancer." They say, "It's cancer." I think that's what we have to do in this field. It's HIV, regardless of all the other things. It's still HIV; it's still AIDS.


Winston Clark, The Gathering Center, Orlando, Fla.

I think parents should really sit down and talk to their children about HIV. I've been living my life drug free and alcohol free, because my parents have always driven that -- never to do drugs or alcohol. And I'm still drug-free, and alcohol-free. I think parents should get involved with their kids.

World AIDS Day Blogs & Columns

Lola Adele-Oso What's Housing Got to Do With It?
By Lola Adele-Oso

As we approach Dec. 1, each of us is gearing up to carry a banner in support of HIV-related issues that are near and dear to our hearts, community, work, activism and advocacy efforts. Whether our focus is access to adequate health care and lifesaving medication, promoting research and the need for a cure, better HIV prevention messaging, resources for the Global Fund or ending stigma and discrimination against people living with HIV/AIDS, we must not forget one critical component in the fight to end the global epidemic of HIV/AIDS: HOUSING!

Read Other Blogs and Columns >>

Reader Comments:

Comment by: Krista Graham (AL) Thu., Oct. 20, 2016 at 7:32 pm UTC
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Comment by: Fikre B (Ethiopia, Debre Berhan) Wed., Dec. 25, 2013 at 9:41 am UTC
By giving awareness for the person's who have a such type of opinion. And also teaching in details openly, truthfully and frankly starting from individuals, families communities level...
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Comment by: Birshan (Tel Aviv, Isr) Tue., Feb. 5, 2013 at 5:20 am UTC
I think we have to talk about that more to prevente these sad cases of HIV,
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Comment by: jennifer c. (The Caribbean) Sat., Feb. 19, 2011 at 9:14 pm UTC
Aids is already worldwide. We however can take steps to lessen the spread. First acknowledge it is a killer, do you want to die? No, should be your answer, imagine this a plague slowing taking your life away. Wake up, if each of us decide to be honest and live a holy life this will be the first step to lessening this disease. No sexual activities with someone who is not rightfully yours., no needles, be open, state your status.
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Comment by: (raleigh, NC) Wed., Dec. 29, 2010 at 1:26 pm UTC
One way to fight this, especially, in most african countries, is to care and respect people such as prostitutes and drug addicts. Governments and NGO should find a way to make both male and female condoms available (for free) to prostitutes. There should also be a way for drug users to get free clean needles until the problems is tackled from the root. These are radical, but the problem we're dealing with is a radical one too
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Comment by: THOMAS M. (KAMPALA, UGANDA) Fri., Nov. 26, 2010 at 12:23 am UTC
STIGMA= Stop all forms of demeaning acts, Tolerate differences in all forms they appear to you, Involve everyone in addressing their needs, Gather and allocate resources to address the needs, Meaningful aspirations and the promise of benefiting from an intervention should be assured for all, Attitude should be improved and made positive in order to face life's realities and diversities.
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Comment by: Melva (Greensboro, NC) Thu., Nov. 25, 2010 at 4:01 pm UTC
The best way to fight Stigma is by being honest about how HIV is transmitted; honest about who remain at risk and honest about why certain populations continue to be at risk. The best way to fight Stigma is by empowering people to educate and empower each other. The best way to fight Stigma is by understanding there is no "one size fits all" solution. All life is priceless not valueless.

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Comment by: SEBASTIAN S. (pysco-socio counsellor with Zambia Revenue Authority.Lusaka Zambia) Thu., Nov. 25, 2010 at 3:32 am UTC
stigma is still prevalent in our socities.the real problem which we face is that of self stigmisation .to fight this we need more sensitization and information sharing.once we deal self stigmisation more HIV postive people will come out in the open and share information.
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Comment by: Adam N., Wellness Peer Educator (Witbank, Mpumalanga,South Africa) Thu., Nov. 25, 2010 at 2:35 am UTC
The way to fight the stigma is simple remove the confidentiallity attached to HIV/AIDS. If HIV/AIDS should be treated like any other chronic illnesses. Once it is made confidential it is regarded as a shamefull illness just like how they used to treat leprosy in those donkey years. Talking more about it, the stigma can be defeated.
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Comment by: Jay C. (San Diego, Ca) Wed., Nov. 24, 2010 at 1:55 pm UTC
I feel the way to stop the stigma is open communication. We have to talk about sex openly with our children, at home, and especially in the schools. The face of HIV has changed. We, infected and affected, have to "SHOUT IT FROM THE ROOFTOPS" any information we have to offer.
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Comment by: Jim Smith (New York, NY) Wed., Nov. 24, 2010 at 1:50 pm UTC
It would help reduce stigmas if celebrity personalities from sports, movies/TV, and the music industry gave a face to the virus and some how this could happen to you too.
More social networking groups like to give people infected with HIV a place to meet other people infected with HIV.
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