This report is a first step to ensure that Project Inform's National HIV/AIDS Treatment Hotline is responsive to all callers. In particular, Project Inform wanted to know if women calling the hotline had significantly different concerns than men. How had they been referred to us? Were African American callers more or less likely to ask about antiretroviral treatment than Caucasians? If someone lived in a rural part of Nebraska, were they likely to ask about complementary therapies as someone in an urban setting? The answers to all of these questions are key not only to improving Project Inform's Hotline, but also its information, outreach and advocacy services.
Callers to the Project Inform Hotline were surveyed during the first half of 1998 to determine the range of treatment concerns facing them and to ascertain the roles that gender, ethnicity, age or geographic location of the callers might play in their concerns. Also, if demographic characteristics of callers were related to their treatment questions, then Project Inform wanted to know if outreach, education and advocacy efforts could address the concerns.
One of the most interesting conclusions discussed in the final TIAP report was that -- aside from some expected gender differences regarding pregnancy and pediatric issues -- gender, ethnicity, age and geographic location did not determine treatment questions and concerns of callers to the Hotline. The primary drives for discussion were length of time a person was infected with HIV and HIV treatment experience.
The report also recommends avenues that healthcare providers, treatment educators, treatment advocates and other organizations involved in HIV-related service might consider as they look to serve more fully those affected by HIV. It is hoped the information contained in the report will influence programs within AIDS service organizations and healthcare systems serving people with HIV.
Anyone who is interested in receiving a copy of the full report of the Treatment Information Assessment Project should call David Evans at 415-558-8669 or email him at firstname.lastname@example.org with their name, title, organization name, address and phone number.
Back to the Project Inform Perspective April 1999 contents page.