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Self-Advocacy: Getting Ready to Start
Part Three of Three in Project Inform's "Considering Treatment and Your Health Care" Booklet

January 2013

Getting Your Health Care Covered

You may never need to file for disability, but for simplicity we present these options in terms of pre- and post-disability. Disability is a formal claim that must be made with your doctor and approved by Social Security. To find programs you may be eligible for, it's important to consult local resources such as benefits counselors, case managers, social workers or attorneys as programs differ greatly from state to state.


If You Haven't Filed for Disability


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If You Have an Approved Disability Claim


Other Possible Sources of Help


Helpful Resources


Is Your Doctor Experienced in Treating HIV?

You will need to find a doctor who's able and willing to treat HIV, ideally one who already has experience with HIV. Depending on how and where you get health care, you may not have many choices.

Experienced doctors usually keep up with recent developments in treating HIV. They also have a better sense of preventive health care. If you can, it's also important to find other doctors like gynecologists, eye doctors and dentists who have HIV experience.

Doctors with less or no HIV experience may need to consult resources that can help them provide the best medical care for you. Resources are available that can help you and your doctor make informed decisions.

The WarmLine (National HIV/AIDS Clinicians' Consultation Center) provides expert clinical advice to medical professionals. It's available Monday-Friday, 8am-8pm, Eastern Time. (See below.)


Helpful Resources


Important Questions

For Your Doctor


For Others


Checklist for Getting Started


Previous: Health -- Your Ability To Start And Maintain
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