The following was posted by Project Inform's public policy department on a listserv for treatment advocates. It contains suggestions for how individuals can get involved in public policy advocacy at the federal level. For more information, contact Ryan Clary, 415-558-8669 x215 or email@example.com.
There are many national, regional, and local organizations and coalitions that advocate at the federal level. One coalition that pulls together a broad spectrum of organizations is the National Organizations Responding to AIDS. NORA is a coalition of national and local organizations that creates the appropriations agenda each year, determines the amount needed for each HIV/AIDS program and advocates for those funding figures throughout the year. There are some very active subcommittees in this coalition (including research, international issues, and overall appropriations) that are doing very substantive work. AIDS Action in Washington, D.C. coordinates NORA. Anyone who might be interested in that group should check out their website, www.aidsaction.org.
For those interested in researching a variety of opportunities to get involved in policy advocacy, a resource list of national organizations doing public policy advocacy is available. Please call or email firstname.lastname@example.org for a copy. It will soon be available on Project Inform's website, www.projectinform.org/fs/resources.html#policy.
This list provides descriptions of the type of policy work these groups are doing, along with websites and phone numbers. We encourage anyone interested in getting involved with policy advocacy to check out the information on that resource list. There are many groups that focus on particular programs or issues. For a copy of this resource list, contact Ryan Clary at 415-558-8669 x215 or email@example.com.
There is great interest in advocacy around the AIDS Drug Assistance Program (ADAP). ADAPs around the country are having trouble meeting the needs of those who rely on them for drug access. ADAP has received an insufficient increase in federal funding the last two years, and President Bush's proposed budget for the next fiscal year calls for no increase. We must advocate strongly with Congress for adequate funding as the process unfolds this year. There are of course other factors contributing to the ADAP crisis, including drug price increases, insufficient contributions by state legislatures, increase in demand, and the wonderful fact that many people are living longer, thus relying on the program for more time. The ADAP Working Group is a coalition of pharmaceutical industry representatives and community organizations with a focused mission of securing adequate ADAP funding at the federal level. We are also trying to address some of the other factors listed. More community organizations are needed in this group, and individuals are needed to help advocate with their own representatives. If you are interested in getting involved with ADAP advocacy as an organization or an individual, contact Ryan Clary at Project Inform.
People can also get involved by joining Project Inform's grassroots network, the Treatment Action Network (TAN). We send action alerts via email on a fairly regular basis on federal legislative and budget issues, with a focus on treatment and healthcare access issues. We always include contact information and a sample letter. It's based on the philosophy that those most affected by the epidemic should be aware of what their elected officials are doing and how they can make sure their voice is heard. It is not the only grassroots network out there, and we suggest joining as many as possible. If you want to join the TAN email list, either sign up through our webpage at projinf.fauldhouse.com/tanlist/tanlist.php4 or send an email to firstname.lastname@example.org.
Finally, individuals can participate in advocacy by attending AIDSWATCH 2002. This is a three day event in Washington, D.C., organized by the National Association of People With AIDS in conjunction with other national, regional, and local organizations. The purpose of AIDSWATCH is for people living with HIV and their advocates to meet directly with their federal representatives and/or their legislative aides to talk about the need for adequate funding for all care/treatment, research, prevention, housing, and international programs. This year, AIDSWATCH will be held on June 9-11. The 9th is a briefing on the issues and tips on how to have an effective legislative meeting. On the 10th and 11th, participants will go with others from their state or region to meet with their U.S. Representative and two Senators (or their staff, who are very important to meet with), as well as others who may represent districts close to them. It is not important to be an expert on the issues. There will be a facilitator for the meeting who will be familiar with the specific funding requests. The point is to bring personal stories so that your elected officials understand how their actions affect you and other people they represent.