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The Body

Thembi Ngubane, Courageous African HIV-Positive Activist, Dies at 24

June 11, 2009

Thembi Ngubane

Every day, we learn more about HIV and how to fight it. But every day, more than five thousand people still die from AIDS, most of them in the developing world. Many more die from malaria, tuberculosis and other diseases that are virtually non-existent in wealthy countries, such as the U.S. and most of Western Europe.

There may be no starker example of this tragic fact than that of Thembi Ngubane, an inspiring and outspoken HIV-positive activist from South Africa. Although she was one of the fortunate people in South Africa to be taking HIV medications, she lost her life on June 4, shortly after she was diagnosed with drug-resistant tuberculosis, which is on the rise in Africa. She was only 24 years old.

Thembi's story, though it's dozens of years shorter than she deserved, is still a remarkable one. She was diagnosed with HIV when she was only 16 and South Africa was ruled by officials who were reluctant to acknowledge that HIV was a problem that warranted tackling on a massive scale, even as infection numbers skyrocketed and people died by the tens of thousands.

Three years after her diagnosis, National Public Radio handed Thembi a tape recorder, and everything changed. During 2004 and 2005, she recorded a now-famous diary of what it was like to live with HIV in South Africa, which is currently home to an estimated 5.7 million HIV-positive people. After her diary was broadcast on National Public Radio in 2006, Thembi became one of the few South African women to speak openly about living with HIV. That year, she traveled to the U.S. to speak to high-school students, and in 2008 she co-chaired a major session at the International AIDS Conference in Mexico City. While she was there, TheBody.com was fortunate enough to talk to her about her diagnosis, her daughter, her initial struggles with disclosure and her newfound life in HIV activism.

Thembi leaves behind a legion of admirers, her partner Melikhaya and her 3-year-old daughter Onwabo, who is HIV negative.

Thembi's death isn't just a tragic loss for the global HIV community or for women in South Africa. It's also an incredibly painful reminder that, for all that we in the United States and other rich nations still have to deal with in our fight against HIV, it's nothing compared to what's happening in places like Africa. Thembi had HIV, but HIV didn't kill her. Tuberculosis killed her -- and it still kills 1.3 million people per year throughout the world, many of whom were HIV positive and living in developing nations. (It's also a disease that's actually becoming harder to treat due to the spread of drug-resistant strains.)

If your life was touched by Thembi, either directly or by example, we hope you'll leave your thoughts in the comment section on this page. You may also want to listen to or read this eulogy of Thembi by Joe Richman for National Public Radio's All Things Considered.


This article was provided by The Body.
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See Also
HIV/AIDS Policy & Activism
Read More About HIV/AIDS Activist Profiles & Personal Accounts
Read More HIV/AIDS Activist Obituaries

Reader Comments:

Comment by: keresea (caribbean) Mon., Jun. 22, 2009 at 12:06 pm EDT
God grant us Serenity.... Rip Thembi knowing that her life impacted so many others makes the journey worthwhile.....

Comment by: luisa (uk) Thu., Jun. 18, 2009 at 5:15 am EDT
u insipired rest in peace

Comment by: Sonya (South Africa) Mon., Jun. 15, 2009 at 4:12 pm EDT
Rest in peace girl. u will always be in our hearts. u r an inspiration to us. HOPING THAT WE WILL ALL DISCLOSE OUR STATUS ESPECIALLY TO OUR PARTNERS AS U HAD DONE TO MELIKAYA AND TO THE WHOLE WORLD. SISTERS AND BROTHERS LET US FIGHT THIS TOGETHER, LET US NOT INFECT EACH OTHER DELIBERATELY. TOGETHER WE CAN. GOOD BYE SISI

Comment by: Thuli (Durban) Mon., Jun. 15, 2009 at 4:05 am EDT
fact is because we are hiv+ we are prone to deadly diseases and we are dying, may her soul rest in peace.

Comment by: Matt Moovas (Tanzania) Sun., Jun. 14, 2009 at 10:19 pm EDT
I was shocked when I heard of the news. The radio diary and commentaries, her appearance last year or was it in 2007 with Bill Clinton and other personalities in HIV/AIDS work gave a lot of us hope that she was going to be with us for a long time. Her death increases my fear and reminds me of the fact that I have always known, that when you are HIV infected you cannot start a day, a week, a month, a year, a decade and say that you are gonna see the end of it. The HIV infected drops out of this life any second, minute or day. Despite of this bad picture, let us try our best to leave a legacy. Let us come out in the open to help those uninfected to know about our condition ad how it should be avoided. let us go out when we still have some strength in us to help those infected like ourselves by sharing our sufferings. Let us help those that are affected, those that are living with the infected to know how how we suffer and how much we need them. Her diary reached out to these three groups- the uninfected, infected and affected. Themi's diary inspired me to have my journal pub lished. I have just published the first book 'HIV/AIDS Memoir-I am Dying From AIDS Book 1' and hope to publish book 2 and 3.....but then maybe I will maybe I will not as for the HIV infected death is just around the corner(s) though one does not know which one. The first, second , third which one? We did not know that Themi's death was just around the first corner. May she rest in peace indeed.

Comment by: goodman (dublin, ireland) Sat., Jun. 13, 2009 at 8:21 pm EDT
hiv or no hiv, every thing that has life including human must die one day. to me what matters most is not how long i live but how well i live even if it's short. people die in plane crash, in suicide bombings and in many other ways, just think about it. why panic?

Comment by: Naledi (South Africa. Limpopo) Sat., Jun. 13, 2009 at 2:16 am EDT
It's unfair 4 death 2 claim such a young productive soul. may her soul rest in peace

Comment by: samanyika (birmingham) Fri., Jun. 12, 2009 at 7:54 pm EDT
REST IN PEACE THEMBIE

Comment by: Fri., Jun. 12, 2009 at 6:07 am EDT
she never dies........

Comment by: Lindiwe (South Africa) Fri., Jun. 12, 2009 at 2:45 am EDT
This is such a shock, I never thought she would die of an AIDS related infection. I followed her story and was very inspired. Well she lived her life to the fullest young as she was and have positively touched so many lives. My deepest condolences to Melikhaya, Onwabo and the her whole family.

Comment by: Teddow (DD) Fri., Jun. 12, 2009 at 1:35 am EDT
The world lost a wonderful woman. Her story really touched me. Thanks to HIV for not kiling her. We will remember her always. May she rest in Peace.

Comment by: Africanprincess (Canada) Thu., Jun. 11, 2009 at 9:37 pm EDT
I know her story. She inspired me to fight to live because we around the same age. Hamba kahle

Comment by: gracy (nigeria) Thu., Jun. 11, 2009 at 8:25 pm EDT
if people that gave us hope to fight on with this disease are dying then what is left again???

Comment by: SHYLA (CANADA) Thu., Jun. 11, 2009 at 6:55 pm EDT
What a wonderful women she was. Rest in peace.

Comment by: Kirk (Dallas, TX) Thu., Jun. 11, 2009 at 2:37 pm EDT
The word "courageous" really is a great word that describes this wonderful lady. May she rest in peace.

Comment by: m (Spain ) Thu., Jun. 11, 2009 at 2:20 pm EDT
Love

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