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Women Organized to Respond to Life-Threatening Diseases

Alba: "I Think I'm the Oldest Woman Living With HIV!"

June 2008

At first I was scared to death about HIV. I was trying to get my life back again, plus, I had an emotional rupture with my boyfriend. It was so hard for both of us to accept HIV. I got to acceptance, but he did not. He left me and said I was the person who infected him. I was alone to be with the emotional difficulty. My family supported me well, and my human family of friends also supported me. In the beginning, I did not want western medicine and I stuck with eastern care for 10 years. Later someone convinced me to follow both, but it was so hard. My stomach was so delicate with the meds. I had no appetite and was vomiting from them. I am still healthy but I got sick in October and decided to go off meds. I want to live my last years relaxing with a good stomach, enjoying my life -- I want to be me. I went back to eastern treatment -- herbs and vitamins, and I am okay. Doctors could not tell me what was wrong. They tested everything on my body and I'm healthy everywhere. My family was so worried. My t-cells have come back up after my sickness and I am getting better.

In the beginning, I did not see the full picture of my life with HIV. But life has not changed with HIV. I am the same person with the same essence -- it does not change. I have the same values and the same strong faith in the Creator. My message is that your essence, your spirit has to be really together and strong. If you are strong inside, you are strong from the outside. I don't think anything will help you if you do not have faith, not medicine or anything. I believe in the Creator, the metaphysical. We are here for some reason. In the beginning, I tried to help so many people. I worked on the WORLD newsletter, a Spanish newsletter, and helped people with HIV in a group and at clinics. All my life I was very involved. About five years ago I stopped and said I will now dedicate more of my energy to myself. I am still happy to talk with people and share my knowledge. This is the meaning of life, whether you have HIV or not.

For 10 years I tried to help my expartner with his sickness but he was in denial. He got very sick and toward the end of living here he had dementia. I tried to help him to get back to Chile since he wanted that. I told him it would be best to stay here but he did not listen. Now he is back there but does not have help. It was a heavy load for me to carry. I carried him for 10 years, every time he was sick he called me. I would get him appointments with specialists and he would not go. I finally said " I don't want to help anymore," I did not want to push him anymore. I stayed close to him until he called me from Chile with collect phone calls. I stopped accepting the calls. I made connections for him in Chile and said goodbye last year. I feel so relaxed now because I did for him what I needed to do. You cannot carry the destiny of another one. It's enough to carry your own. People need to learn for themselves. Some people never learn. He never saw me in the world as I am; he never loved me as I am.

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HIV stigma has not changed in my country. I love my country but I do not like parts of the culture -- the prejudiced part of it. My country is a beautiful country but there is not enough trying to help each other. My children and grandchildren born here know about my HIV, they love me so much, they don't worry about it and they don't care. My friends also know and nobody cares about it! I have had no bad experiences. The people I got close to saw my inside, not outside. Everything is a gift from heaven. I am blessed. I do not care about my HIV, if I do not care, who else should? HIV has been a chance to learn things in a hard way. People with HIV are more open souls -- they understand life better. They have to learn to live with it. It is one more thing to carry in your life, it is part of you. You can help and teach people about this. I am grateful to be alive and have life as it is, full of people who love me.

No one wants to believe that I have HIV. People say, "That's not possible!" I think I'm the oldest woman in the world with HIV! I never feel my age and only began to realize how old I am when I got into my 80s. I feel what it is in my body to be old. Before this, I did not feel it. I never had older people around me, I always had young people, and I did not understand about being old. I did not fear it; I was just in my life. People look at me like I am a miracle. I feel I am not better than anyone else. For some reason I am alive, the Creator has some reason to keep me alive. My sick time has not been about HIV. When I got sick recently I saw a doctor and I told him I have HIV. He asked how long and I told him. He could not believe it! I do not feel the HIV, but I do know I'm getting older. Older people I know have the same symptoms I have. It's aging. My friends were always younger than me. Inside I am young. Being old is new -- I have to accept it. My physical body is getting old, but not the rest of my body.

With the rest of my life, I will help myself and others who need my help. I have always been taken care of by someone in my family and my family of friends. My faith has helped me be alive and also help others. I'm getting old because I'm supposed to. Now I take no more than the vitamins and herbs. What really helped me for years was the breathing and movement of yoga. Moving still helps me -- everyday I go down and up my stairs. I love going outdoors and being alive. I will see how my body works and I will not push life. Your life is like a river, you have to let go to the current to get where you are going. You swim against the current and you get hurt.


This article was provided by Women Organized to Respond to Life-Threatening Diseases. It is a part of the publication WORLD Newsletter.
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Read More About Older People & HIV/AIDS: Personal Accounts

Reader Comments:

Comment by: blessed (Aruba) Sat., Oct. 24, 2009 at 7:47 am EDT
When I was 19 I was tested positive when I was pregnant I was devastated but in time I healed and my son was born negative. I'm still living today, sometimes I even forget that I am HIV+ but that doesn't stop be from doing anythiny. I'm 24 now and still going strong. It's all about your way of thinking. It's not easy sometimes, but still you keep going you have to, what else?? I enjoy my life because it's not promised tomorrow.

Comment by: Michael (SOUTH AFRICA) Sun., Sep. 27, 2009 at 7:02 am EDT
this is very amazing, please can you tell us when exactly you contracted this disease and how long you have lived with, how old you were when you were diagnose, what are the symptoms that you have endured

Comment by: ADR4Lva (Roanoke, VA) Sun., Sep. 20, 2009 at 2:43 pm EDT
I am really inspired by your story, you give me hope, because for the past 3 or so monthz ive been devastated, i can't live life happy anymore because in the back of my mind I'm always thinking about being HIV positive. I haven't been diagnosed, but I feel strongly that I do have it because I have a lot of symptoms pointing towards HIV, and I don't want to miss out on life because I am only 16 years old, and I would like to get married and have kidz someday, but I'm scared to get tested, I'm scared of the truth, I don't know if I could deal with all of the bad feelings if I was found positive, my world would be shot down. I don't think i would be accepted in society. Can someone please give me any tips or advise...thank you

Comment by: tiny (south africa) Thu., Sep. 10, 2009 at 9:00 am EDT
i am 50 years old diagnose positive tod ,pos h i v and pos to live long ,,check on me ,thanks for your story

Comment by: Peter (Newcastle,England) Sun., Aug. 9, 2009 at 6:36 pm EDT
i admire you, although i have not tested positive for HIV from my original blood test i still seem to think that i have it and have my final blood test tommorrow which i am really worried about. i am only 17 and will be devastated if i miss out on the best parts of my life... i.e family, kids etc.. i have read so many different stories on the internet to try and find my chances of having it but none of them seem to convince me either way.. my mind is a mess and i don't know what i will do if the worst happens. i don't know how the family will react, my girlfriend and so on. i don't have any idea on what life will be like with HIV. i hear that with the treatment we have now most people will live a perfectly healthy life is this true i don't no what to believe?

Comment by: terry hill (sydney) Mon., Aug. 3, 2009 at 1:45 am EDT
My wife has been positive for 11 years she is now 33....Times are tough in the beginning. Just take it day to day people do what the docs say and u will live Forever!! May the force be with you! Terry.

Comment by: soso ( south africa) Thu., Jul. 16, 2009 at 9:45 am EDT
Your story is inpirational,it gives hope to all those who are hiv+ve including my self.thanks a lot

Comment by: simon (New york,NY) Mon., Apr. 27, 2009 at 2:17 pm EDT
i'm doing a brochure on hiv for my health class. wow first time i figured someone could live so old till 80s + with hiv.

Comment by: Brenny (south Africa) Tue., Apr. 7, 2009 at 2:07 am EDT
I am 24 years old. I have diagnosed hiv 2009 march. I felt like am lost but when i read you stories it gives me hope that living with HIV does not mean the end of the world

Comment by: hopeful (Egypt) Mon., Mar. 23, 2009 at 11:41 pm EDT
You are realy a miracle from the God coz i felt my life was ending last 1 week ago coz i knew myself HIV+ and i started to Die.... but god helps us and ur story teaching me how to change my life and my heart and my soul to help others too. Thanks for your support.

Comment by: Jessica (Wilton Maine) Fri., Jan. 16, 2009 at 11:04 am EST
WOW your story is amazing. i'm doing a report on hiv in my health class. this article is very helpful!!!

Comment by: Angel (Portland OR ) Fri., Dec. 19, 2008 at 5:19 am EST
Your story gives hope to others, what a wonderful gift to give. May God bless and keep you

Comment by: vera (usa) Sat., Nov. 15, 2008 at 1:38 am EST
That gives me hope to continue my education knowing that i might be able to use. Very inspirational!

Comment by: guoxia (China) Wed., Nov. 12, 2008 at 5:02 am EST
oh! you are good. your life is beautiful. I give you my best wishs.

Comment by: Marcos (Brazil) Thu., Oct. 23, 2008 at 9:26 am EDT
Congratulations Alba (and Yan from South Africa too)! Both for your ages and your attitudes! You are examples of how we can overcome this disease with the force of faith and self-steem. Thank you very very much both.

Comment by: Derrick (Mexico) Sat., Oct. 18, 2008 at 12:45 am EDT
Thank you!!! You are a great role model for both young and old HIV+ people. God bless you.

Comment by: Seeker (Las Vegas) Thu., Oct. 16, 2008 at 1:58 am EDT
May God Bless You! You are truly an inspiration, an angel and a great gift. Thanks for sharing your story and "Our Story" . When we keep the faith and believe that all things are possible with GOD!

Comment by: B Mon., Oct. 13, 2008 at 10:48 am EDT
I WAS MOVED TO KNOW THAT AT 80 YOU ARE STILL LIVING POSITIVELY.GOD BLESS YOU WITH SMILES FOR ALL YOU SHARED WITH ME.IT'S TRUE YOU CAN'T CARRY SOMEONE ELSE'S DESTINY-BOTSWANA

Comment by: A True born Marino of (Long Island, NY) Thu., Oct. 9, 2008 at 10:51 am EDT
Your story is truly powerful. It is really too bad that my family has gone the other way with their way of thinking. I really love & miss most of them, except the molester that started to say bad things about me. He is just good as gold though he tried to molest me when I was 13. (Sicko Billy, I hope you read this one day. Thank God your poor lil' wife wasn't cursed with a spawn from you. It's gross just imagining what you would do to your own baby.) Anyway, back to your beautiful story, a lot of it I truly felt it in my heart and soul and I want to thank you for writing it. I have been positive 10 years this month with no meds. so far a long term non- progresser. So far! My VL almost always stays near the undetectable point on its own. Pretty awesome, huh? I hope to live to be older as well, maybe not 82 but old enough to see some grandkids will suffice. Bless you all and sorry for jumping all over the place as you all may know this can be very emotional and confusing for some of us .... Sending love and hugs to you all from my home to all of yours XOXOXOXOXOXOXOXOXOXO

Comment by: Jose Davila (Colchester Vt) Mon., Oct. 6, 2008 at 8:53 am EDT
Life is truly what you make of it. I HAVE BEEN POZ FOR 20 YRS AND OTHER THAN LOSING THE FAT ON MY LEGS AND BUTT, i DON'T FEEL DIFFERENT IN ANYWAY. I am blessed that this illness has made me aware of things I used to take for granted, it also helps to get past 21. Young people do feel invincible, but it is a myth. Vigilence is the word and life will be good to you. J

Comment by: lyssa (malaysia) Sat., Oct. 4, 2008 at 11:14 am EDT
I wish that I had a great spirit like u... although i had HIV since i was 19 yrs old (now 24), i still don't have any trauma yet. i still want to marry in spite of having this...

Comment by: Brazilian (Brazil) Fri., Oct. 3, 2008 at 9:40 pm EDT
I have been diagnosed with HIV since 2006, on meds since then. I am 41 now. I Know I am not as old as you are, but I have the same thoughts you have.I expect to live up to my 80's or more, just like you.Very nice way of thinking and mannaging about different situations that are put just as challanges in our lives. I never blame HIV for anything, I just have to face the same health difficulties everybody else would have,even being negative. I would also like to read that FAITH in God (our creator) is the key word. May God bless you more and more.

Comment by: Annette (Germany) Fri., Oct. 3, 2008 at 6:44 am EDT
"I have had no bad experiences" is the key sentence in your report. It is so much easier to be positive about life if you haven't had these. I did and I feel betrayed -- from life, the world and the people. Still laugh a lot but I can also feel myself closing in. I wish I had your life instead of mine. 'Cause it is not always that "easy" to keep on going. And yes, I'm planning on getting into my 70-80's myself. But who's to say?

Comment by: Jan (Durban South Africa) Fri., Oct. 3, 2008 at 5:59 am EDT
I was interested in your attitude to the 'illness' by an older person. I am 83 (male) and have been HIV+ for about 19 years and am on ARV after contracting TB in 2001. Treating HIV as a chronic illness is the best way of handling stigma & discrimination. To be on ARV is essential, although alternative medication can be helpfull. My children and grandchildren have accepted the fact that Grandpa is HIV + and their attitude meant a lot in accepting my status. It was (is) also important that one's believe in a higher power accompanies one on the way forward.

Comment by: Suzy (Seattle WA) Fri., Oct. 3, 2008 at 4:39 am EDT
Wow! I am glad to hear your story. You are such an encouragement! I was just curious to ask when were you diagnosed & how long have you lived with the disease? Did you start medications right away? How long have you been taking HAART?

Comment by: Anonymous (SA) Fri., Oct. 3, 2008 at 3:37 am EDT
Wow! Thank you for such an inspirational story. I love your quote: "HIV has been a chance to learn things in a hard way. People with HIV are more open souls -- they understand life better." Indeed, while it brings a lot of anxiety and side effects, it allows you to understand and appreciate life better. You have my love and I wish you the best :)

Comment by: kaizer (Cape Town) Fri., Oct. 3, 2008 at 2:36 am EDT
We really need people like you in this world. If everyone would be so accepting and believe in God anything is possible. HIV does not kill, people kill themselves. I've learned a lot from this story and it gives me courage to read stories like these. Stay strong and may God bless you.

Comment by: nameste (nyc) Thu., Oct. 2, 2008 at 11:44 pm EDT
Wow! Truly inspiring. Thank you so much for your powerful thoughts.

Comment by: arthur (brazil) Thu., Oct. 2, 2008 at 8:24 pm EDT
Thanks for sharing with us your story! I loved reading it, you seem to be such a good person, and thatīs what life is all about... loving and caring about each other and ourselves. You are very lucky to see things that way and to love and appreciate life the way you do. I wish you all the best.

Comment by: subconsciente (germany) Thu., Oct. 2, 2008 at 6:28 pm EDT
Wow! I really enjoyed reading your story and I found myself in your tellings. You are a great spirit and the people around must be very glad. Thanks for writing, tonio

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