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Test Positive Aware Network
Evelyn Hernandez Valentino -- No Longer Alone in the Desert
One Woman's Quest to Raise Awareness
March/April 2008
Evelyn Hernandez Valentino is humble enough to pick up the phone herself rather than let it go into voicemail, even though she founded and directs the non-profit agency Working Wonders in the desert land of Southern California. Besides, the agency's staff of three is down to two, plus volunteer speakers and educators. "Working Wonders" alludes to her strong faith in God. She turned to that faith and prayed for guidance, and Working Wonders was born. She loves the fact that her agency is located in Cathedral City. "This is my purpose in life," she said. That's a blessing for a woman who came to California not knowing if she was going to live or die. Evelyn Hernandez grew up in an impoverished Puerto Rican community on New York City's Lower East Side, raised by her mom and alcoholic father, who "managed to get well," she says in her bio. "[My] family struggled financially but always managed to make ends meet," she wrote. Later, as a young adult, she developed a passion for advocating for those who are less fortunate. Her advocacy career led her to a position on the staff of New York State Assembly Speaker Sheldon Silver. Two years into her state advocacy job she married her longtime boyfriend in 1993 and two weeks later, he learned he was HIV-positive. Hernandez Valentino expected her own test results to be just fine, but they weren't. She also tested positive. Worse, her husband quickly became ill and died later that year. She was a bride and a widow in the same year, at the age of 29. She continued to hold down her job, but her experience helps her to understand the needs of the positive women she serves today. Like herself, she said, women often don't recognize the HIV risks in their lives. (After her husband's diagnosis, he realized he was at risk by sharing needles for steroid use in his gym.) She came to Los Angeles in 1998 when her health was poor, and where she had family members who could help take care of her. Two brothers already there had urged her to move from New York. She spent a couple of years doing legal advocacy for Crystal Stairs, a non-profit child care resource and referral agency, but that time included a medical leave. After moving to the nearby Palm Springs area in 2000, she joined several committees where she could advocate on behalf of people living with HIV, but came to feel that there wasn't enough work being done on behalf of women, children, and families. It is also where she met the man she is still with today, in a "very loving relationship," she wrote, after expecting the worst when she disclosed her HIV status. A pharmaceutical representative in the area, a gay man, said that at first the gay community felt threatened by Hernandez Valentino and her quest to establish her own agency, which would compete for funding with existing work being done in the GLBT community, but came to accept her, including recognizing her by giving her a seat of honor in the local Pride parade. He urged Positively Aware to tell her story. Through Working Wonders, women and youth hear about HIV and risk. Speakers go out to schools and community forums and tell their story about living with HIV. If attending a forum or workshop at Working Wonders, women can leave their children in the agency's play room. Recently, the agency received the green light to talk to 7th graders in the public schools, kids who are 13. This is the first time that adolescents this young in this region have been allowed to hear a presentation on HIV, said Valentino Hernandez. She estimates that they have reached 3,500 individuals in the past 24 months. "We address issues that affect women: domestic violence, dating violence, survival sex," she said. "We see everyone as potentially at risk. We have an open discussion about forced sex, economic dependence, negotiating safer sex and other things women need to know."
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Comment by: Tad
Tue., Jul. 22, 2008 at 3:40 pm EDT Response to D. Anthony: A reason why seemingly "YOUNG AND HEALTHY MEN ONLY SURVIVE SUCH A SHORT TIME LIVING WITH HIV" may be becasue they were diagnosed late in the stage of the disease. Not everyone gets tested regularly, and some only are tested in the hospital when they are on their death beds. One of the many important things Evelyn's organization does is to educate people who may not think they are at risk for HIV and encourage them to get tested. It is important that everyone knows his/her status and to continue to be tested if needed.
Comment by: J Ybarra
Thu., Jul. 10, 2008 at 2:20 pm EDT Your faith is enourmous. I am deeply touched by your story of courage. Your drive and education is a blessing to all with HIV and/or without. I am truely blessed to have you a part of my life. You go girl ...
Comment by: Renee' Gagliano
Sun., Jul. 6, 2008 at 10:29 pm EDT Dear Evelyn, Your care and love has touched so many. God has placed an angel here on earth to reach out and help those in such tough times. You are an angel who is so special to all of us. It is such an honor to serve on our board for Working Wonders. I am always in awe when I hear you speak to the public. You reach out with such a warm embrace, you have such a passion for others with such compassion in what you believe in helping and educating others who are in the same situation as you. You have no fear, you have such a strength with in you that is so amazing. God has placed you on this earth for so many special reasons. Working Wonders is so important for the community for all who are in such need of support and care, most of all to educate and help so many out there in the world. It is so wonderful how you touch many in showing them they have life and for them do not give up. You share so much strength and give faith. Working Wonders is so important to have for the family, women and children that need so much support in every way. Education is so important to so many out in the world. We have so much to offer with so many other communites out there to help all those in need. Evelyn, you are a wonderful friend, my love and support is always there for you. Renee' Gagliano
Comment by: Rebecca Laut
Thu., Jul. 3, 2008 at 3:53 pm EDT Evy, I am so very proud to know you as my sister! May God continue to strengthen you as you go out and be His hands for others! Know I am always praying for you! You inspire me to be the best I can be! I love you
Comment by: D. ANTHONY
Wed., Jul. 2, 2008 at 4:01 pm EDT I WAS GREATLY SADDENED TO HEAR OF THE LOSS OF YOUR HUSBAND AND MANY OTHER'S SO SHORTLY AFTER YOUR MARRAGES. MAYBE SOMEONE WHO READS THIS CAN PROVIDE ME WITH SOME ANSWERS, THAT IN TODAYS DAY AND AGE OF MEDICINE AND TREATMENTS, WHY DID SUCH SEEMINLY YOUNG AND HEALTHY MEN ONLY SURVIVE SUCH A SHORT TIME LIVING WITH HIV? I AM NEWLY HIV POSITIVE AND NOT TAKING ANY MEDS YET, BUT EVERY PERSON I KNOW WHO IS HIV POSITIVE AND TAKING MEDS IS UNDETECTABLE AND LIVES A NORMAL HEALTHY LIFE.
Comment by: Evelyn
Wed., Jul. 2, 2008 at 3:14 pm EDT Thank you all for your generous comments. It certainly hasn't been a life without challenges. I wish each and every one of you a life of great health, hope, and deep faith. Never give up especially during your weakest moments. We all have a purpose in life... find that purpose and don't accept naysayers from telling you that you cannot do what your heart is telling you to do. Thank you for your kind words and support! Keep up the fight! May God bless each and everyone of you. Yours truly, Evelyn
Comment by: M. jones
Tue., Jul. 1, 2008 at 3:02 am EDT I am deeply touched by this story because I have more or less the same experience you has when you first discovered that you were HIV+. My husband and I went for testing on the 20th of May this year because he was a bit sick and after thet he fell so sick and died on the 12th of June. I am still so devastated but your story has really motivated me to live positively. Thank you.
Comment by: Seekyah
Mon., Jun. 30, 2008 at 11:20 pm EDT I really needed this, was in an accident, was going to the chiropracter on regular basis and after the staff found out they started spraying everything down..today I just broke down and cry.It's good to know that I'm not alone as a female who contracted from her husband..Many blessings...I hope and pray that I gain the strength to become as strong as her about my status one day..
Comment by: Tad
Mon., Jun. 30, 2008 at 3:53 pm EDT I have personally known Evy for almost 9 years. She is such a wonderful, loving, hard working woman! Even though her health would keep most people from even attempting work, she plugs away with such drive I can't begin to explain. I am in such awe by her. Evy and people like her that have come forward to put a face behind HIV/AIDS, who educate, advocate, inspire, and work tirelessly are our heros. WE NEED MORE!!! Please if you can, consider donating to this wonderful organization. With cuts in government funding Working Wonders could face closing shop, we can't afford to lose WORKING WONDERS. I love you Evy.
Comment by:
Mon., Jun. 30, 2008 at 1:31 pm EDT if u can can do this, then i know i can do same in my local community in Nigeria.
Comment by: Philipina
Fri., Jun. 27, 2008 at 3:06 am EDT May the Lord protect you day after day. I got married in 2002 while I was only 25yrs old, 2month later I found out that my husband was hiv+ and he has been positive for so many years, I went for a test and found out that I was also positive. It was so hard for me as we always used condom and we went to test before our wedding day. I came to know that the day we went to test to TMS Hospital he had spoken to the Laborory guys and they told me he was hiv negative. He died 5month after our wedding. I have been alone ever since. Thank you to your story I am now thinking of having a relationship. I wish I could read your story since 2002. Anyway its not too late for anything, I will start over. Please Keep educating and one day will win the attack to those guys whom knows that they are sick and they want to make others sick.
Comment by: D. Ross
Thu., Jun. 26, 2008 at 8:34 pm EDT thank you my sister just reading story i know that i will be able to sleep well tonight. we are all in this together.one day i really believe that our prayers will be answered and a cure will be found.
Comment by: Carleton
Thu., Jun. 26, 2008 at 12:38 pm EDT Evelyn you are truly a women of beauty and great courage and a represent for others to know there is hope, and also to take a stand for yourself and for others. May God continue to bless you.
Comment by: Jerry
Thu., Jun. 26, 2008 at 12:32 pm EDT Thank you Evelyn for your inspiring spirit. I too am in the desert area of S.Berdo Co. God has a plan for each of us. Our time here on earth is sooo short and our work is sooo great. Eternity with the Lord will be awesome. I am really going through the Fire right now, but God is bringing me through and I can hardly wait for the Victory! I am praying for you! God Bless You!
Comment by: Chinedum Olisaeloka
Thu., Jun. 26, 2008 at 12:23 pm EDT I AM A MEDICAL DOCTOR AND A COUNSELOR. I WORK IN THE AREA OF HIV AND REPRODUCTIVE HEALTH. I WANT TO COMMEND EVELYN FOR HER COURAGE AND DRIVE AND TO ENCOURAGE OTHERS THAT MIGHT FIND THEMSELVES IN SUCH SITUATION TO ACT LIKEWISE. JUST KNOW THAT ANY STUMBLING BLOCK PUTS IN GOD'S HANDS BECOMES A STEPPING STONE, EVERY BURDEN BECOMES A BLESSING. WITH GOD ALL SITUATIONS ARE COLORED BRIGHT FOR HIS THE LIGHT THAT DISPELS EVERY DARKNESS IN OUR LIVES. MANY POSITIVE PERSONS I HAVE WORKED WITH ARE TODAY CHANGE AGENTS AFTER THEY HAD SURRENDERED THEIR 'BURDEN' INTO GOD'S HANDS. I IMPLORE ANY PERSON WHO IS BURDENED TO DO AS EVELYN HAD DONE AND YOU WILL NEVER REGRET IT. WE WILL SURELY WIN THIS BATTLE AGAINST HIV AND AIDS. DR CHINEDUM OLISAELOKA
Comment by: J.McDonald
Thu., Jun. 26, 2008 at 1:19 am EDT My Sister, Evelyn May the Lord continue to shine his life on you. I was deeply touched by your story, you are a courageous women. You are overcomer. I know your testimony has open the eyes of many people who don't think they are at risk. Your testimony also give great hope to those who are HIV + or may test positive in the future.
Comment by: S. Troutman
Wed., Jun. 25, 2008 at 10:45 pm EDT Way to go!! That takes courage to openly announce what HIV has changed in your life. Keep educating and one day we will win the attack of this disease.
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