So you'd like to see people stop pointing the blame and start focusing on what? Themselves?
Not so much themselves. I think we all have a vested interest. But just start focusing on the solution. What are solutions? Solutions are: the funding needs to be allocated the right way. I think the main issue is housing. We don't have housing. We have HOPWA. But you know, in Atlanta, we're talking about: What is HOPWA doing? There are people still on the streets, people are still struggling. They have to go to three quarter houses, and stuff like that.
Focus on becoming a part of a community advisory board, or CAB. Get to know the science about the medication and how they developed, the phases, the clinical trials. Some are still stuck on the Tuskegee incident. That was then. That's why we need CAB members -- because that's a platform where we can say, "Oh, no, this is not right." Or we can monitor, and stuff like that.
Folks do have other issues, compounded with living with HIV and AIDS. They might need therapy. They need somebody that they can go talk to.
Focus on drug addiction. Drug addiction is another disease. Say, drug addiction -- again, we're looking at the stereotype -- drugs are not just in the African-American community; they are everywhere. They might be different kinds of concoctions, but it's still drugs. Let's focus on how to get folks help. And the real deal is, you can't help them till they want to help themselves. But at least we need to let them know.
Having 11 years clean and sober, I'm a fan of harm reduction. Harm reduction works. It works. It stops you from harming yourself, and it stops you from harming your community and it gives some people the opportunity to network. Every time you engage, every time you get with somebody, every time you stop into a center, that's engaging. That's when you start building trust.
A slow way of detoxing now is by letting them know:
(1) I'm here for you;
(2) let's look at different ways of how you can safely use.
The big controversy in Atlanta is harm reduction. I am one of the few that do a workshop on harm reduction.
Can you define harm reduction for our listeners?
I think, in a nutshell, harm reduction is: continuing to use, and at the same time, accepting where they are as they are using, but encouraging them to lessen the harm to themselves, and to lessen the harm to the community.
It's not about, "Stop using," that's where it gets twisted. It's not the endpoint of, "You're in recovery." Methadone is one of the successes -- I might get hit in the head with that -- as far as harm reduction.
We practice harm reduction every day. When you get in your automobile, what's the first thing you do? Put on a seatbelt. That's harm reduction. When you get a hot cup of coffee from McDonald's, what's the first thing you do? You blow on it. You don't want to burn your mouth. That's harm reduction. We practice it. So why can't we look at it in a bigger scale? Just allowing folks to be where they are.
Being in recovery and working with a good program -- people are not ready until they are ready. You can beat yourself. But again: It's allowing them to come into a center. Just giving them a cup of coffee and talking to them every day. It cuts down on them going in the streets, creating havoc. The more you engage them, the less emergency rooms that they would have to go through.
Just because we're addicts doesn't mean that we're not intelligent. We just need for somebody to turn the switch on. So once you get a moment of clarity, you'll make that decision, whether you want to completely stop or do what you need to do.
I think I could probably talk to you about your activism work and your views on this pretty much all day, but let's move back to your personal life. How has your health been since your HIV diagnosis?
My health has been up and down. I think my biggest concern with my health is my weight. I lose weight, and then I gain it back, and then I lose weight.
That's another thing of being empowered. I had to really take the necessary steps to get a nutritionist. I talk to the nutritionist. Doing simple workouts that I can live with. I am not going to go to the gym and try to look like Arnold Schwarzenegger or Lee Haney. I'm just going to work out and just tone my body.
I'm actually on my second regimen, which is really good.
What drugs are you on?
Right now I'm on Kaletra [lopinavir/ritonavir], Epivir [lamivudine, 3TC] and Truvada [tenofovir/FTC]. My first regimen was Crixivan [indinavir], AZT [zidovudine, Retrovir], and 3TC. After 11 years, I'm just on my second regimen. I am a strong believer in medication. I believe they work. I do know that people get some severe side effects. Some people get minor side effects. I haven't experienced any real bad side effects other than diarrhea, from Kaletra. That's going back to one of the things that I do -- I'm involved with the clinical trials, and understand the medications and how they are working and stuff like that. Overall, my health is good. I work on my mind, body and spirit. I think recovery has really helped me to get a really good balance.
Why did you switch regimens?
The reason why I switched regimens was, again: Being a treatment educator and understanding medications and stuff like that, when I started losing weight I knew it was from -- well, me and my doctor came to a decision; it was from the Zerit [stavudine, d4t].
Again, side effects, lipodystrophy or lipoatrophy; you can have different side effects. But I was losing a lot of body mass, muscle mass. On top of that, I was losing weight anyway. So we tried to eliminate some of the things that we thought could be the cause of me losing weight. Once I stopped that, once I changed the regimen ... my weight is steady. So it was a good decision to change.
See? That's, again, the challenge. Medications don't work; medications do fail. You can take your medication 96 percent of the time that you're supposed to take it, and it could fail. But the thing is to have a game plan and look at what you can go to next. Early on, we used to talk about sequencing, where you can look at where you want to take your medication.
Molly, my doctor, and I knew what I was going to go on next. Right now, we're looking on what we can go on later on. So that's why I changed. But some people do change because they can't tolerate it anymore.
Yes. I am talking to a nutritionist, and everything. I had to really change the way I ate. I love fried foods and I am still going to eat fried foods, but I'm going to do it in moderation.
One of the things that we don't talk about a lot in Atlanta is quality of life. I strongly believe in quality of life, so I'm not going to completely stop something that I really like. I love some fried foods. But I do it in moderation. I drink more water. I eat breakfast now. My breakfast is really simple. I have two slices of peanut butter toast with honey and some green tea and that carries me.
Before, I would wait till 11 o'clock. Also I wouldn't eat everything. I have learned how to eat the pastas. That pyramid, that nutrition pyramid; it's lightened up to me now. I understand what to eat and what not to eat. So I think that has helped.
Without the meds, has having hepatitis C changed your treatment and health regimens in any way?
Again, when we're talking about sequence, and looking at medications, you try to look at what's harsher on the liver. I try not to do anything to jeopardize it. Again, one of the good things is that I don't drink or anything like that. I just know that being coinfected, I have to work -- not work extra hard -- I just have to be a little more careful.
I really believe one day I would start hepatitis medications. More people now are dying from hepatitis C than HIV and AIDS. Because of the medications and stuff like that we are living longer. We have become senior citizens in this disease. We're living longer, which lets the hepatitis C start ... you start seeing signs maybe 10 years into the hepatitis C. So we're almost at that point.
I understand that there are different types of hepatitis C. Do you know what type of hepatitis C you have?
I have Hep-2, if I understand the question. I think Hep-2 is predominantly in African Americans and because of that, the regimens are challenging, in that a lot of them do fail. That's another thing I looked at prior to what we were just talking about. Do I want to start a regimen and stuff like that?
Just two more final questions. How has your sex life changed since you were diagnosed? Have you had any sexual partners?
My sex life is good. My sex life is really good. I've counseled people who have said, "Oh, I'm not going to have sex anymore." Why? Or, "I'm not going to have children anymore," which is a different kind of decision. But why?
Do not let this disease stop you from doing things that you have the human right, and the right, to do. I try not to box myself in. I don't try to just be with ladies that are in recovery or are HIV infected. If you are, you are; if you're not, you're not.
We were talking about disclosure. I have learned how to tweak that a little bit. Because, again, I was like a poster boy: "Hey, my name is George and I'm positive. I have AIDS. Do you want to get together?"
They were like, "Wait a minute. What's your name?"
So I'm glad I've learned. I counsel people how to disclose. It's on a need-to-know basis and dating is fun. For me, just because I'm dating you doesn't mean that I want to sleep with you, so I don't have to disclose then. If it gets to that situation, I'll disclose.
But two weeks into dating, people always ask. These are surveys. It's an assessment. "What kind of job do you do?" So it always comes out. "Well, I do this." "Well, why do you do that?" "This is why I do that."
Any final thoughts? Because we are almost out of time.
No. I just hope that this information, would help somebody. Again, I don't want to ever say this is rhetoric. This is not a death sentence. We can live and learn with HIV and AIDS.
I think, again, we need to just be supportive with one another and always remember that quality of life is the most important thing. We are either in-fected or af-fected. But in order to be ef-fective, enjoy your life, educate other folks. I think one of my greatest quotes is from Martin Luther King, and it says, "The beginning of the end of life is when you remain silent about the things that matter."
HIV and AIDS still matter, so keep lifting your voice.
George, that's a great way to end this interview. Thank you so much for coming in and meeting with me.
Click here to e-mail George Burgess.