This statement, written in June 1983 by the advisory committee of the People with AIDS Coalition, launched the PWA self-empowerment movement. The document is a valuable reminder of AIDS history in this 20th year of the epidemic.
We condemn attempts to label us as "victims," a term which implies defeat, and we are only occasionally "patients," a term which implies passivity, helplessness, and dependence upon the care of others. We are "People With AIDS."
Recommendations for All People
- Support us in our struggle against those who would fire us from our jobs, evict us from our homes, refuse to touch us or separate us from our loved ones, our community or our peers, since available evidence does not support the view that AIDS can be spread by casual, social contact.
- Not scapegoat people with AIDS, blame us for the epidemic or generalize about our lifestyles.
Recommendations for People with AIDS
- Form caucuses to choose their own representatives, to deal with the media, to choose their own agenda and to plan their own strategies.
- Be involved at every level of decision-making and specifically serve on the boards of directors of provider organizations.
- Be included in all AIDS forums with equal credibility as other participants, to share their own experiences and knowledge.
- Substitute low-risk sexual behaviors for those which could endanger themselves or their partners; we feel people with AIDS have an ethical responsibility to inform their potential sexual partners of their health status.
Rights of People with AIDS
- To as full and satisfying sexual and emotional lives as anyone else.
- To quality medical treatment and quality social service provision without discrimination of any form including sexual orientation, gender, diagnosis, economic status or race.
- To full explanations of all medical procedures and risks, to choose or refuse their treatment modalities, to refuse to participate in research without jeopardizing their treatment and to make informed decisions about their lives.
- To privacy, to confidentiality of medical records, to human respect and to choose who their significant others are.
- To die -- and to LIVE -- in dignity.
Back to the July 2001
Issue of Body Positive