About This Issue
Quality of Life
The Winter 2000/2001 CRIA Update
is devoted to quality of life issues in HIV research and care. While antiretroviral therapy has made a great difference in longevity for thousands of people in the United States, most people living with HIV must make major compromises in order to participate in recent medical advances. Many use challenging side effect management techniques in order to stay on treatment. Others continue to have seriously impaired and deteriorating immune systems even as they religiously adhere to their regimens. Still others, like our Board member, Gary Bonasorte, face diminished quality of life as a result of an impaired immune system, and tragically die much too young.
In light of these realities, we took a look at how researchers examine the effects of life-threatening disease and medical treatment on quality of life. Bruce Rapkin, Ph.D. discusses the methods researchers use to measure quality of life and the challenges of creating and understanding such measurements given the highly subjective nature of the issue. Michael Shernoff, M.S.W. describes some common quality of life concerns faced by people with HIV. We thought it particularly valuable to include personal perspectives; four incredibly courageous men and women describe the impact of HIV and current treatment on their daily lives.
We hope that you find this to be an interesting issue of CRIA Update
. For us, it serves as a reminder that our work to improve treatment options for people living with HIV remains of critical importance.
J. Daniel Stricker, Editor-in-Chief
CRIA co-sponsors monthly educational forums on AIDS research and treatment issues. Upcoming forums:
Wednesday, January 10
Entry & Integrase Inhibitors: The Next Class of Drugs
Wednesday, February 14
Reports back from the 8th Conference on Retrovirus and Opportunistic Infections
Wednesday, March 7
Psychological Issues and HIV
The forums are held at 7 P.M. in the Cronin Auditorium, 10th Floor of St. Vincent's Hospital at 11th Street and 7th Avenue, Manhattan. Forum summaries are available on CRIA's Web site: www.criany.org