New Tool Announced to Fight HIV Cure Hype in the Media
May 12, 2014
In an effort to aid in the fight against HIV cure hype and educate media sources as well as the broader community on the current state of HIV cure research, three agencies have teamed up and published the HIV/AIDS Cure Glossary. The agencies involved in the project include DARE (Delaney AIDS Research Enterprise), CARE and defeatHIV. The goal of the glossary of HIV cure research is to help journalists and bloggers write more responsibly and accurately and to counter the hype that has occurred thus far.
As a founding community advisory board member of DARE, Project Inform's Director of Research Advocacy David Evans describes DARE as "one of three such 'collaboratories' whereby academic researchers are partnering with private industry to hasten the pace of HIV cure research and lead to successful treatments." In both of his roles at DARE and Project Inform, Evans has been dismayed at having to put out so many fires when many in the general and other media often translates an academic press release or report from a science meeting into a story that starts off with a line like, "An HIV cure may be just around the corner!"
"A reliable and scale-able HIV cure is likely years away and not months. I think it plays with people's hopes and expectations in some really negative ways to misstate the truth in order to get a good headline and pick-up in social media," says Evans. "In the end it's cruel to get people's hopes up like that and can lead to a sense of skepticism that we will ever have a cure, which I do think we will one day."
"This new glossary can also be used by people living with HIV and their care and service providers to educate themselves and others about the basic concepts involved in current HIV cure efforts," remarks Evans.
This article was provided by Project Inform. Visit Project Inform's website to find out more about their activities, publications and services.
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