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Will HIV Ever Be Safe Enough for You?

A Video Blog

March 11, 2014

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Will HIV Ever Be Safe Enough for You?

There is a classic episode of Oprah from 1987 that can still raise my blood pressure. That year, the tiny town of Williamson, West Virginia, became part of a national discussion about AIDS when Mike Sisco, who had returned to his home town to die of the disease, dared to step into a public pool.

The community freakout was immediate. Sisco was quickly labeled a psychopath (rumors emerged accusing him of spitting into food at the grocery store), and the town pool was closed the next day to begin a Silkwood-style pressurized cleaning.

Soon thereafter, Oprah Winfrey arrived with cameras for a town hall forum about the incident. Fear was the order of the day. "If there's just one chance in a million that somebody could catch that virus from a swimming pool," the town's mayor told Winfrey's worldwide audience, "I think I did the right thing."

Sure. Why not react in the most extreme way possible, if there is a chance in a million?

Williamson citizens were not swayed by health officials who calmly explained the established routes of HIV transmission and the impossibility of infection from a pool. "The doctors can say you can't get it this way," a woman countered, "but what if they come back someday and say, 'We were wrong?'"

Indeed. What if? If there's a chance in a million ...?

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That broadcast might have remained a sad footnote in HIV/AIDS history, an instructive example of people ignoring scientific fact to protect a satisfying fear, if history didn't enjoy repeating itself so much. Today, though, the willful ignorance isn't coming from uneducated residents of a southern town you can barely find on a map.

It's coming from gay men. And they are just as threatened, frightened, and dismissive of science as the townsfolk of Williamson were thirty years ago.

Recently, research known as The PARTNER Study was presented at the prestigious Conference on Retroviruses and Opportunistic Infections (CROI). PARTNER proved something HIV advocates have long suspected: people with HIV with an undetectable viral load are not transmitting the virus to their partners. The study included nearly 800 couples, all involved in an HIV positive/negative relationship, gay and straight, with the positive partner maintaining an undetectable viral load. Over the course of two years, more than 30,000 sex acts were reported and documented (couples were chosen based on their tendency to have sex without condoms).

Not a single HIV transmission occurred during the study from someone with an undetectable viral load. If PARTNER had been researching a new medication, they would have stopped the trial and dispensed the drug immediately.

The PARTNER results bolster the prevention strategy known as "Treatment as Prevention" (TasP), meaning, a positive person on successful treatment prevents new infections. To date, there is not a single confirmed report of someone with an undetectable viral load infecting someone else, in studies or in real life.

Just don't tell that to a sizable contingent of skeptical gay men, many of whom took to their keyboards to dismiss the PARTNER findings. Phrases like "false sense of security," "positive guys lie," "junk science," and "if there's even a small risk" appeared on Facebook postings and in web site comment sections. The people of Williamson must be slowly nodding their heads.

Resistance to the PARTNER study corresponds with stubborn doubts about PrEP (pre-exposure prophylaxis, or HIV negative people taking the drug Truvada to prevent infection). Although virtually every nervous argument against PrEP has been overruled by the facts, naysayers continue to either reject the evidence outright or make moral judgments about the sex lives of HIV negative gay men on PrEP.

Yes, there are unknowns. There always are when scientific studies meet the real world. And every strategy will not work for every person. But the vehement rejection of such profound breakthroughs suggests there is something more, something deeper, going on in the minds of gay men. What is it?

Our collective memories of AIDS horror are hard to shake, and that's a good place to start. On a gut level, any study suggesting that HIV could be neutralized is met with a weary doubt. Good news is no match for the enduring grief that has shadowed us for 30 years.

The PARTNER study also threatens the view that positive men are nothing more than risks that must be managed. The study kills the HIV positive boogeyman. It means positive gay men who know their status might actually care enough about their health to seek out care, get on treatment, and become undetectable. And, once the positive partner is no longer a particular danger, both partners would bear responsibility for their actions. What an enormous psychic change that would require in our community.

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This article was provided by MyFabulousDisease.com. Visit Mark's live blog.
 
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Reader Comments:

Comment by: lerato (south Africa) Wed., Sep. 10, 2014 at 12:26 pm EDT
hi im a negative woman engaged to a positive man now I want to know is it safe for me do go down on him or am I putting myself at risk of being infected. how can we enjoy sex without fear of me being infected as well
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Comment by: Percy (Washington, DC) Mon., Mar. 24, 2014 at 3:24 pm EDT
I'm negative and my partner is positive. I never imagined dating someone with HIV, but now that I am I never really think about it. He is undetectable, I'm on PrEP. He takes his pill every night before bed, and I take mine. To me it's really a non-issue. I am almost relieved to be dating someone who is poz, because there is no ambiguity. I'd rather date someone who is positive and actively managing their illness than someone who assumes, for whatever reason that they are negative. I hear crazy things all the time and the number of people who assume they are safe because they only date "negative" people is shocking to me. It's high time that people get educated on HIV transmission and realize that this is 2014, not 1984.
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Comment by: Matt (Astoria, OR) Tue., Mar. 18, 2014 at 4:05 pm EDT
I'm from Seattle, 18, positive and undetectable, I appreciate this article. I have found though that when opinions make their way into entries like these, people tend to focus on the sarcasm and antagonistic phrases rather than the important facts.
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Comment by: Jacob (Phoenix, AZ) Mon., Mar. 17, 2014 at 11:18 pm EDT
But undetectable people DO have a viral load. A piece of poo in brownie batter still is undesirable if it's a teaspoon or 2 pints...there's still poo. Undetectable status can fluctuate. People use the term too loosely as to connote "don't fear me, it's the HIV DETECTIBLE person you need to fear" that's not fair either.
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Replies to this comment:
Comment by: Rory Fri., Mar. 21, 2014 at 9:44 pm EDT
Problem is, unless you wrap yourself in a bubble, there's probably "poo" on everything you and your precious cake have touched. The only question is whether you'd prefer sanitized poo you know is germ free.

btw, comparing gay men with HIV to feces in a cake? Really classless. You're not a confection, and we're not crap. Comparing other human beings to crap because you're a hypochondriac? That's loathsome.


Comment by: Ben (Chicago) Mon., Mar. 17, 2014 at 1:35 pm EDT
Amazing article; LOVED the snark.
It's very true that in 2014 we are the safest men you can "get" with...
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